Experiences with

Tysabri

He highly stressed she stop Tysabri and start Aubagio. He said Tysabri was too strong for her mild MS. We are so confused and she doesn’t know who to believe? What should she do?

My daughter had been put on tysabri infusions once a month. She was diagnosed as severe RRMS and tested negative for the JC virus. Do any of you have experience with tysabri? The neurologist will test for JC virus every 6 months. Seems a bit scary!

I have been messaging my neuro about so many things lately with my medication change from Tysabri to Ocrevus and 5 days of Solu-Medrol so I thought I’d see if any of you knew. Thanks! Jennifer

Been on Tysabri 6 years. JCV has been “indeterminate” until 6 months ago, but now low positive and my neuro says it’s time to switch. I’m interested in anyone’s experience switching to Ocrevus from Tysabri. Have read about “Tysabri rebound” and am quite concerned.

I took tysabri, a monoclonal antibody treatment for two years. Then I was dx'd with PD and am still taking Rytary, a form of sinemet. My only symptom was olfactory hallucinations. This was smelling things that aren't real.

All of it made me wonder if being on 10 years of powerful DMT’s screwed up my kidneys. (5 years on Tysabri and now 5 years on Ocrevus.) So…I wanted to ask the MS peeps here if anyone has experienced kidney problems from their DMT and if so, what did you do about it?

Well after a summer of infections I've had to switch from Tysabri to Aubagio. Two life flights to the hospital with sepsis has made that decision for me. I have been on the Aubagio for over a month now with no problems except one small infection that I handled myself.

JCVirus

My JCV titers are approaching the cutoff for Tysabri at 1.40, so that is no longer option either even tho I did quite well on Tysabri. Aubagio is the only other choice i think because the others tank the immune system so badly.

One was getting his first Ocrevus infusion and the other was getting her Tysabri infusion. I was jealous cuz she came in after me and go to leave before me! At least the center has nice new comfy chairs. I saw my neuro today & she was pleased that I didn't have any reactions.

This is the first new lesion in over 8 years: 5 years on Tysabri and the last 3 on Ocrevus. I’m frustrated to learn this but not surprised to be honest. I’ve been having weird unrelenting medical problems since last October and have been trying to figure out what’s causing what.

I had my Tysabri infusion on the 24th and my stomach was feeling a little cranky. Thought it was just a food thing until Thursday rolled around and I didn’t feel any better so I figured I had the flu.

I’m on Tysabri and I have my COVID vaccine tomorrow at 4pm at my GP’s 😳😳😳😳

anyone have it yet while taking Tysabri? If so how’d it Go?

After close consultation with my doctor and finally finding some results of patience on tysabri. One study shows that the vaccine will be 77% effective. it seems to be a little bit different with each medicine but with the news of the mutations of the virus coming out. I have to do it.

Hello everyone, I have been getting Tysabri infusions for for four months now and I am noticing that for several days leading up to my infusion I am more tired than usual. I am just curious if anyone else has noticed anything similar.

I knew it was coming time for the monthly tysabri when I was beginning to have the hallucinations again. The day after the infusion the hallucinations were gone. Ultimately I no longer would get the hallucinations and asked the neuro if we could stop the tysabri infusions.

Have to switch from Tysabri. My JC virus shut up too fast. Any experiences. Good or bad. Please

For those on Tysabri have you gotten flu shot if so any issues? Haven’t gotten yet. Little nervous.

My next drug will likely be Ocrevus or Tysabri. Have any of you been on both?? Am looking at what side effects that others have experienced and which they liked better. Am trying to weigh the risks/benefits. Thanks