Search
Search
About
Log in
Join
Experiences with
Tocilizumab
Posts
Communities
684 public posts
Filter results
Severe head pain - feels like its my whole head! RA?
Could it also be link to the RA or the
Tocilizumab
reaction? It has now happened 3 times over 2 weeks (if this were an infection, surely the pain would return quickly?). I am going to call the GP today and see what they have to say... PS. - a sketch I’ve been playing with
Could it also be link to the RA or the
Tocilizumab
reaction? It has now happened 3 times over 2 weeks (if this were an infection, surely the pain would return quickly?). I am going to call the GP today and see what they have to say... PS. - a sketch I’ve been playing with
Brushwork
in
NRAS
3 years ago
Tapering Pred, on Tocilizumab,
Hello dear experts! I finally received my TCZ injection pens after some months delay - I will take my 7th dose ( 48 prescribed) tomorrow. I was on 22.5 mg Pred at the start of TCZ, and have tapered to 15 today over those 7 weeks. Rheumy advised going to 18.5, then 15, in 2 x 2-weekly steps. This seemed
Hello dear experts! I finally received my TCZ injection pens after some months delay - I will take my 7th dose ( 48 prescribed) tomorrow. I was on 22.5 mg Pred at the start of TCZ, and have tapered to 15 today over those 7 weeks. Rheumy advised going to 18.5, then 15, in 2 x 2-weekly steps. This seemed
Jonimoroni
in
PMRGCAuk
2 years ago
Tocilizumab arrived at last! Do I need a new taper plan?
Just in case anyone else is 'in-waiting" - I was prescribed TCZ back in July, after a flare, and was expecting to start the course in August, but it didn't arrive - due I believe to supplies being diverted to Covid patients in ICU's. However, supplies arrived yesterday (05/11/210 ) and I'm expecting
Just in case anyone else is 'in-waiting" - I was prescribed TCZ back in July, after a flare, and was expecting to start the course in August, but it didn't arrive - due I believe to supplies being diverted to Covid patients in ICU's. However, supplies arrived yesterday (05/11/210 ) and I'm expecting
Jonimoroni
in
PMRGCAuk
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
3rd Pfizer
First off, I am on
Tocilizumab
, which apparently is also being used to treat covid patients. Been on for 3 years now and have a sort of normal but slow life now. First covid shot I had zero reaction, Second was same as first, Now 3rd has hit me a bit. Lethargy and overall malaise.
First off, I am on
Tocilizumab
, which apparently is also being used to treat covid patients. Been on for 3 years now and have a sort of normal but slow life now. First covid shot I had zero reaction, Second was same as first, Now 3rd has hit me a bit. Lethargy and overall malaise.
dwsurquhart
in
NRAS
3 years ago
Tocilizumab/Actemra extension to March 2022
Hi, I have searched past posts and can't find it anywhere, but am pretty sure someone posted that TCZ had been extended to March 2022. I am seeing my consultant (for the first time EVER) tomorrow, and feel I need to back up this statement. Can anyone help. I am wondering if it was a response to another
Hi, I have searched past posts and can't find it anywhere, but am pretty sure someone posted that TCZ had been extended to March 2022. I am seeing my consultant (for the first time EVER) tomorrow, and feel I need to back up this statement. Can anyone help. I am wondering if it was a response to another
Sophiestree
in
PMRGCAuk
2 years ago
Tocilizumab
., anyway he says the rheumatologist will probably want to start me on
Tocilizumab
. What are peoples experiences as I declined Methotrexate due to already having a tendency to bleed easily. I can't tolerate even aspirin without bleeding.
., anyway he says the rheumatologist will probably want to start me on
Tocilizumab
. What are peoples experiences as I declined Methotrexate due to already having a tendency to bleed easily. I can't tolerate even aspirin without bleeding.
MavisEllen
in
PMRGCAuk
3 years ago
3rd COVID vaccine and flu jab - ✔️
My poor body - I had my usual
tocilizumab
on Wednesday and I’m taking my antihistamines. My system must be a bit overloaded and maybe confused. 😂 Came out of the vaccination centre to find an email from my golf club saying they’d had to close due to staff members testing positive.
My poor body - I had my usual
tocilizumab
on Wednesday and I’m taking my antihistamines. My system must be a bit overloaded and maybe confused. 😂 Came out of the vaccination centre to find an email from my golf club saying they’d had to close due to staff members testing positive.
Brushwork
in
NRAS
3 years ago
Stomach problems due to Prednisalone.
Had my
tocilizumab
jab the day after I returned home. Thanks for reading!
Had my
tocilizumab
jab the day after I returned home. Thanks for reading!
SheffieldJane
in
PMRGCAuk
3 years ago
Got a call back and an email - after a nudge…
The consultant had asked if I wanted to change from
Tocilizumab
to another mab (didn’t quite catch the name). Also wanted to know how long the rash and cough lasted post injection, well actually most of the week now.
The consultant had asked if I wanted to change from
Tocilizumab
to another mab (didn’t quite catch the name). Also wanted to know how long the rash and cough lasted post injection, well actually most of the week now.
Brushwork
in
NRAS
3 years ago
Developing allergic reaction to Tocilizumab…
It all started really well with
Tocilizumab
, no injection site issues just quickly effective RA control.
It all started really well with
Tocilizumab
, no injection site issues just quickly effective RA control.
Brushwork
in
NRAS
3 years ago
Sore throat, neg LFT x 2, should I take my tocilizumab?
The sore throat appeared on Monday evening, I was due to inject
Tocilizumab
on Tuesday but was concerned about COVID so wanted to get at least a couple of days of negative tests, which I have now done. Could I now safely take
Tocilizumab
? Look forward to some advice, please. Go gently
The sore throat appeared on Monday evening, I was due to inject
Tocilizumab
on Tuesday but was concerned about COVID so wanted to get at least a couple of days of negative tests, which I have now done. Could I now safely take
Tocilizumab
? Look forward to some advice, please. Go gently
Brushwork
in
NRAS
3 years ago
Forever on the line!
Having only one injection of
Tocilizumab
left, which I should take tomorrow, I called my supply service (who I know have a shortage of Toc.) they were extremely busy and I was on for a long time, and more than once, I didn't manage to get through to anyone.
Having only one injection of
Tocilizumab
left, which I should take tomorrow, I called my supply service (who I know have a shortage of Toc.) they were extremely busy and I was on for a long time, and more than once, I didn't manage to get through to anyone.
lindyloy
in
PMRGCAuk
3 years ago
ADT having no measurable effect on severity of COVID-19 in men with APC. Neither Better nor Worse.
ADT had no impact on death rate, COVID-19 severity, intubation, ICU admission, or need for corticoid treatment, interferon beta, or
tocilizumab
.
ADT had no impact on death rate, COVID-19 severity, intubation, ICU admission, or need for corticoid treatment, interferon beta, or
tocilizumab
.
MateoBeach
in
Advanced Prostate Cancer
3 years ago
Tocilizumab & Covid vaccine
I seem to remember that I delayed my Toc jab when I had my Phizer jab. Is that correct? If so, by a day or a week? Getting booster today when I’d normally inject Toc.
I seem to remember that I delayed my Toc jab when I had my Phizer jab. Is that correct? If so, by a day or a week? Getting booster today when I’d normally inject Toc.
Bachblues
in
PMRGCAuk
3 years ago
Tocilizumab treatment?
What is the safety profile of
tocilizumab
?
What is the safety profile of
tocilizumab
?
Ozark
in
PMRGCAuk
3 years ago
Tocilizumab
I am due to start
Tocilizumab
Infusions in two weeks. Does anyone know the difference between infusions and injections? Does either cause less side effects or work better? I have tried all kinds of drugs for RA and none have worked and most made me feel worse.
I am due to start
Tocilizumab
Infusions in two weeks. Does anyone know the difference between infusions and injections? Does either cause less side effects or work better? I have tried all kinds of drugs for RA and none have worked and most made me feel worse.
tazman3
in
NRAS
3 years ago
Has anyone achieved a reduction in fatigue from PMR through the introduction of tocilizumab (Actemra) into their treatment regimen?
So I would be very much interested in hearing from anyone who has gotten relief from PMR fatigue through the use of
tocilizumab
(Actemra) or, perhaps less commonly, Kevzara (sarilumab).
So I would be very much interested in hearing from anyone who has gotten relief from PMR fatigue through the use of
tocilizumab
(Actemra) or, perhaps less commonly, Kevzara (sarilumab).
Ozark
in
PMRGCAuk
3 years ago
Tocilizumab and coming off prednisolone
Just looking for current advice as regards the usage of
tocilizumab
as an aid to getting down and off prednisolone. I met a helpful person on this site and he had been on prednisolone for many years - more than my 12 years.
Just looking for current advice as regards the usage of
tocilizumab
as an aid to getting down and off prednisolone. I met a helpful person on this site and he had been on prednisolone for many years - more than my 12 years.
Stkeyna
in
PMRGCAuk
3 years ago
Tocilizumab
Hi anyone on toc how are people managing with the shortage of it.. are you delaying your weekly injection ? I’m 2 days over and struggling .. just like to know how others are managing .. I’ve had the text and letter to say short supply.. can’t get through to my nurses to speak about it but will
Hi anyone on toc how are people managing with the shortage of it.. are you delaying your weekly injection ? I’m 2 days over and struggling .. just like to know how others are managing .. I’ve had the text and letter to say short supply.. can’t get through to my nurses to speak about it but will
Vonnie10
in
NRAS
3 years ago
Tocilizumab
Hi I started
tocilizumab
about 22 weeks ago and it hasn't helped at all and I have gained half a stone in no time despite my exercise and healthy eating efforts ..it's so frustrating ....so 2 weeks ago I told my rheumatologist that I was coming off it as I can't afford to gain anymore weight .....my
Hi I started
tocilizumab
about 22 weeks ago and it hasn't helped at all and I have gained half a stone in no time despite my exercise and healthy eating efforts ..it's so frustrating ....so 2 weeks ago I told my rheumatologist that I was coming off it as I can't afford to gain anymore weight .....my
994464
in
NRAS
3 years ago
1
...
10
11
12
...
35
Next page
10
20
30
Filter results
Clear filters
Posted in
All communities
NRAS
333 results
PMRGCAuk
282 results
Vasculitis UK
20 results
View top 10 communities
Sort by
Most Relevant
Newest