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6 public communities
Canadian Organization for Rare Disorders
192 members
CORD is Canada's national network for organizations representing all those with rare disorders. CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. CORD works with governments, researchers, clinicians and industry to promote research, diagnosis, treatment and services for all rare disorders in Canada. 1 in 12 Canadians has a rare disorder. Many others are affected or at risk but remain undiagnosed and unaware. CORD provides information to individuals, and links to other rare disorder support groups and organizations from Prince Rupert, British Columbia to St. Johns, Newfoundland.
St Thomas Lupus Trust
1,368 members
The St. Thomas Lupus Trust was set up as a registered charity in 1991. Its aim was, and still is, to fund 100% of the vital lupus research at St. Thomas’ & Guys Hospital and raise awareness of lupus. We provide lupus information through leaflets and posters and through our website, where there is a free online lupus nurse service. We also regularly send out a free online newsletter which can be received by signing up to news on our website.
Achalasia Action
146 members
Welcome to the Achalasia Action (ACAC) community, which has been set up to help people living with achalasia and spasms in the oesophagus. Achalasia is a condition affecting motility and the ability of swallowed food to reach the stomach because of issues affecting peristalsis, the muscular process that propels food into the stomach. Our charity Achalasia Action is registered with the Charity Commission for England & Wales (no 1187367) and runs a website www.achalasia-action.org and a helpline 0300 772 7795. We organise patient support meetings two or three times a year, either online or, subject to COVID19 restrictions, at the Hospital of St John and St Elizabeth, 60 Grove End Road, St John’s Wood, London NW8 9NH. ‘Achalasia Explained’ can be downloaded from the ACAC website www.achalasia-action.org/information-hub.html We also produce a set of YouTube videos: Understanding Achalasia (the first we published) https://www.youtube.com/watch?v=LHWFGdKINpE&t=181s Diagnosing Achalasia https://www.youtube.com/watch?v=zRjzFzwJgnQ&t=378s Treatments: https://www.youtube.com/watch?v=JXLJE4ezKfY&t=361s ACAC Charity https://www.youtube.com/watch?v=A8jvPJZ3qwk&t=148s
Mamafit
278 members
Mamafit® is an award winning and leading health, fitness and wellbeing programme for pregnant women, mums and families. The Mamafit community is a place to ask questions, seek support and make connections. Becoming a mum can be a daunting and lonely experience, having a community of other mums to turn to when you need advice, support, to share, or to celebrate the big and little wins is invaluable. Our community is a safe space for you to reach out, make friends and support one another along the unpredictable journey that is motherhood! Mamafit® exercise classes We offer a wide range of classes suitable for pregnant women and mums of all fitness and experience levels, whether you are a regular exerciser or a complete beginner! Delivered in fun and friendly environments perfect for getting fit while making new friends. We work in partnership with local NHS hospitals, midwifery services, public health teams, clinical commissioning groups and children’s centres helping to improve the health, fitness and wellbeing of families, through the delivery of high-quality physical activity & lifestyle courses and fitness classes, both ‘in person’ and online. The Mamafit® programme adheres to current NHS, CMO and NICE guidelines around physical activity; ensuring new & expectant mums receive up to date advice and exercise safely during pregnancy and postnatally, once baby is born. Book a Mamafit exercise class here: https://bookwhen.com/Mamafit What is Mums SOCIAL? Mums SOCIAL offers fun, friendly and inclusive meet-ups at local parks, encouraging chat and interaction to help you to build confidence, find peer support and develop new friendships! FREE Mums SOCIAL buggy walks are available in Liverpool, Knowsley, St Helens and Halton. Find your nearest Mums SOCIAL meet-up here: https://bookwhen.com/MumsSOCIAL
Eczema Association of Australasia Inc
428 members
We support and educate Eczema sufferers and carers, along with the wider community, in all aspects of Eczema and its impact in Australia and New Zealand.
Changing Faces
3,150 members
This community is for the 1.3 million people in the UK with a visible difference, from a mark, scar or condition that makes them look different. We provide advice, support and psycho-social services to children, young people and adults. We challenge discrimination and we campaign for Face Equality: a world that truly values and respects people who look different We want a future where everyone with a visible difference on their face or body has the confidence, support and opportunity to lead the lives they want. If you would like to talk to someone, Changing Faces offers the Support and Information Line in the UK, for people affected by any visible difference caused by a mark, scar or condition, whether on the face or body, and families and friends. To get in touch with us, please follow this link: https://www.changingfaces.org.uk/services-support/support-information-line/