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27 public communities
Radiotherapy Cancer Treatment
212 members
We are an online community for people who have experienced radiotherapy. Share your experiences and support one another through treatment and beyond!
Pelvic Radiation Disease Association
673 members
The PRDA community is a peer support group where people can ask questions and share their experiences as well as supporting each other in living with Pelvic Radiation Disease (PRD). The group is run by the Pelvic Radiation Disease Association which is a UK based, patient-led charity set up to provide information and support to people who experience PRD following cancer treatment. PRD is a long-term side-effect (‘late effect’) affecting an estimated 100,000 people in the UK. We understand that people living with PRD can often have a complex set of symptoms which may affect their bowel, bladder, sexual and/or other functions for many years after radiotherapy. These symptoms sometimes only appearing several years or even decades after their radiotherapy treatment. PRD is defined as one or more ongoing symptoms of variable complexity that may affect people who have previously had radiotherapy to the pelvic region to treat their cancer. This includes pelvic radiotherapy for cancers of the colon, rectum, anus, prostate, testes, bladder, cervix and womb, but also total body radiotherapy and radiotherapy in the pelvic area for other primary and secondary cancers. Other words that are sometimes used to describe symptoms of PRD include: Radiation enteritis, Radiation proctitis, Radiation colitis, Radiation enteropathy, Radiation cystitis, Radiation cystopathy, Radiation-induced lumbar plexopathy and Pelvic insufficiency fractures.
Tenovus
590 members
We are the leading cancer charity focusing on supporting those affected by cancer. We help patients and their families get access to treatment, advice and support.
Hunts Community Cancer Network
107 members
Hunts Community Cancer Network welcomes you to this site which is designed to support people recovering from, living with or experiencing the late effects of treatment for all types of cancer. The site is managed by the HCCN nursing team who work out of Hinchingbrooke Hospital along with volunteer patients all of whom understand the challenges that can face people as they come to terms with their condition. We are supported by specialists in exercise, healthy eating, work related problems, and emotional well being who are keen to supplement the all important support people can give each other. We look forward to getting to know you.
My Cancer Community
1,704 members
Welcome to My Cancer Community. This is a safe space to connect with others who’ve been impacted by cancer. Whether you are going through treatment, have finished treatment, or are supporting a family member or friend, everyone is welcome. Introduce yourself to the community today: https://healthunlocked.com/my-cancer-community/write
Young Adults with Melanoma
431 members
Welcome to the Young Adults with Melanoma community, a place where you can access peer to peer support from others affected by melanoma.
Melanoma UK
182 members
We are an online support community for melanoma patients and carers committed to promoting discuss and caring between patients. Join us to share your experiences, ask questions and support one another!The community is run by Melanoma UK.
Melanoma Support Ireland
43 members
Melanoma Support Ireland is a Peer led support organisation. We were set up by a group of Irish melanoma patients who wish to offer and gain support from others patients or family members living with a diagnosis of melanoma in Ireland. We do not offer medical advice but we welcome you to share your experiences in our group. Peer support is incredibly important for patients and can help cope with feelings of isolation and fear especially when dealing with a diagnosis of cancer. We look forward to interacting with you and encourage you to share your experiences and any links you may have that will help support our members. Any information provided on the forum needs to be from a verifiable scientifically proven source as we do not allow posts about alternative unproven cures in our group.
Melanoma Caregivers
284 members
Welcome to the Melanoma Caregiver community, a place where you can access peer to peer support. We are the partners, parents, children and other loved ones to people who have been diagnosed with melanoma. We're here to listen, to offer advice and to generally provide support to one another.
Melanoma Wellness Canada
88 members
Melanoma Wellness Canada is a group created and maintained by the Canadian melanoma patient group Save Your Skin Foundation. It exists as a place for patients and caregivers touched by melanoma skin cancer to connect and share resources. We strive to support overall wellness for melanoma. Wellness is about more than just the absence of physical illness. Working towards wellness encourages us to work towards complete health. We believe that emotional wellness fosters physical wellness and physical wellness increases our emotional wellness. Team members of Save Your Skin Foundation will facilitate the page, but this is your space; please feel free to share, as long as it is relevant to the group and respectful. This may include your experience with melanoma, or any other articles or resources you feel the rest of the group could benefit from.
Pancreatic Cancer Action
1,776 members
Pancreatic Cancer Action aims to support those impacted by pancreatic cancer. We do this by increasing awareness, influencing government policy and providing support to patients and their families.
SHARE Breast Cancer Support
2,418 members
SHARE Breast Cancer Support is a space where you can feel safe, supported, and empowered to tell your story and discuss your issues. SHARE peer volunteers, as well as other women just like you, are here to answer your questions and provide encouragement. Please visit our website to learn more: www.sharecancersupport.org. Many of our community members have questions about experience with specific breast cancer treatments like Tamoxifen, Xeloda, Letrozole, Fulvestrant, etc. You can type the name of the treatment you're looking for into the post search box to find all posts that reference these treatments. There is a lot of good information here from other patients, survivors, and caregivers on topics like DCIS, mastectomy/double mastectomy surgery, inflammatory breast cancer, taxol, breast lumps, breast cancer stages, and more. If you don't find what you're looking for, feel free to message an admin who will get back to you. As a community we have rules. Inappropriate, abusive, or irrelevant posts, advertisements, and sexual photographs will be removed, as will disrespectful or offensive comments on threads. Please respect the diversity of political, spiritual and nonspiritual beliefs of our users, and please note, we DO NOT permit messaging with a bias against any group of people. Any content on this site is NOT to be construed as medical advice! Members should always consult their doctors regarding a medical condition or treatment. Organizations must post events and services as individual users and must avoid direct advertising. The views presented on this site do not represent the views of SHARE. This community is monitored Mon-Fri, 9:30 am - 5:30 pm ET. Any content reported outside of this timeframe may not be reviewed until the following business day.
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