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16 public communities
Achalasia Action
146 members
Welcome to the Achalasia Action (ACAC) community, which has been set up to help people living with achalasia and spasms in the oesophagus. Achalasia is a condition affecting motility and the ability of swallowed food to reach the stomach because of issues affecting peristalsis, the muscular process that propels food into the stomach. Our charity Achalasia Action is registered with the Charity Commission for England & Wales (no 1187367) and runs a website www.achalasia-action.org and a helpline 0300 772 7795. We organise patient support meetings two or three times a year, either online or, subject to COVID19 restrictions, at the Hospital of St John and St Elizabeth, 60 Grove End Road, St John’s Wood, London NW8 9NH. ‘Achalasia Explained’ can be downloaded from the ACAC website www.achalasia-action.org/information-hub.html We also produce a set of YouTube videos: Understanding Achalasia (the first we published) https://www.youtube.com/watch?v=LHWFGdKINpE&t=181s Diagnosing Achalasia https://www.youtube.com/watch?v=zRjzFzwJgnQ&t=378s Treatments: https://www.youtube.com/watch?v=JXLJE4ezKfY&t=361s ACAC Charity https://www.youtube.com/watch?v=A8jvPJZ3qwk&t=148s
Aspergillosis and Rare Fungal Infection Support
3,861 members
Serious fungal infections are very rare but also very under-diagnosed and that has several consequences. 1) There are many more cases than we currently know about 2) People who are diagnosed can be very isolated and benefit from community support This community is intended to address these issues by informing and educating people in the UK about serious fungal infections, what to look out for, how to get diagnosed and where the expert help is in the UK. We also feel that informing patients is a great way to support their medical teams. The National Aspergillosis Centre (www.nationalaspergillosiscentre.org.uk), currently based in Manchester is the main UK centre for the serious fungal infections caused by Aspergillus (see aspergillosis.org) and is where admin of this community is based, so we have all we need t to advise you on aspergillosis - maybe even get you a referral to this centre if warranted. This is also the site of the Mycology Reference Centre in Manchester (http://mrcm.org.uk/) which is a big skill base for the identification of all pathogenic fungi, consequently, we can support the diagnosis and treatment of other rare fungal diseases like cryptococcal meningitis, Candida bloodstream infection, Pneumocystis pneumonia and more. Note that we only support people who can use the UK NHS and only for questions and conversation about serious rare fungal infections and NOT the very common infections that you should be consulting your GP or pharmacist about - we cannot replace your relationship with your medical team but we may be able to help them help you. Any entries that seem to us to be better dealt with by your medical team first will be deleted. Any non-UK questions will also be deleted - sorry, but we are funded by the UK taxpayer and they have to come first!
Active Surveillance - Prostate Cancer
642 members
Active Surveillance is about men diagnosed with prostate cancer, trying to maintain the highest quality of life and living long enough to die from something else. We're about supporting each other in a world where overtreatment is the norm and where people just don't understand why men with cancer might want to delay or avoid treatment.
Prostate Cancer Caregivers
868 members
Welcome to caregivers currently caring for loved ones with PCa. Spouses and partners...a safe, caring community for all of us. It's OK to think of "me." You can't help the man you love if you don't take care of yourself, too. Sign up for our newsletter at https://malecare.org/prostate-cancer-newsletter/
Prostate Cancer Network
4,955 members
Newly diagnosed? On Active Surveillance? You've got brothers here! What's next after surgery or radiation? Impotent? Difficulty with Urine Control? Caregiver or Spouse? You are not alone, here. A friendly, safe, informal atmosphere where we can pick each other's brains. Your 24 hour online support group. Our community is run by Malecare Cancer Support. We are men, fighting prostate cancer, together.
Fight Prostate Cancer
2,802 members
This community is no longer actively moderated. Please visit the other prostate cancer community to continue receiving support: healthunlocked.com/advanced-prostate-cancer/posts/138237903/welcome-new-members
Advanced Prostate Cancer
21,056 members
A friendly prostate cancer support group where we can pick each other's brains. Our 24-hour online support group. Talking about advanced prostate cancer is a powerful tool. Malecare Cancer Support runs our community. We are people fighting prostate cancer together.
Endometriosis New Zealand
1,284 members
Endometriosis New Zealand is New Zealand’s national endometriosis organisation and has affiliated Support Networks throughout the country. We represent the tens of thousands of girls and women with endometriosis in New Zealand and we work with those who treat the condition and researchers to find solutions. We provide unique and professional services and programs to reach individuals, communities, schools, workplaces and all stakeholders involved in improving health outcomes for those with endometriosis and persistent pelvic pain.
Not Defined By Endometriosis
432 members
We are a peer-support group providing support to fellow endometriosis warriors and advocating and fighting for better research, funding and an eventual cure for endometriosis.
My Breast Cancer Community
3,850 members
Welcome to My Breast Cancer Community. Here you can safely talk to other people affected by breast cancer – whether you are going through treatment, have finished treatment or are supporting a family member or friend, everyone is welcome.
High Blood Pressure Support
5,416 members
We are a peer support community for people living with Hypertension and High Blood Pressure. Join to ask questions, blog about living with HBP and connect with others like you.
SHARE Breast Cancer Support
2,376 members
SHARE Breast Cancer Support is a space where you can feel safe, supported, and empowered to tell your story and discuss your issues. SHARE peer volunteers, as well as other women just like you, are here to answer your questions and provide encouragement. Please visit our website to learn more: www.sharecancersupport.org. Many of our community members have questions about experience with specific breast cancer treatments like Tamoxifen, Xeloda, Letrozole, Fulvestrant, etc. You can type the name of the treatment you're looking for into the post search box to find all posts that reference these treatments. There is a lot of good information here from other patients, survivors, and caregivers on topics like DCIS, mastectomy/double mastectomy surgery, inflammatory breast cancer, taxol, breast lumps, breast cancer stages, and more. If you don't find what you're looking for, feel free to message an admin who will get back to you. As a community we have rules. Inappropriate, abusive, or irrelevant posts, advertisements, and sexual photographs will be removed, as will disrespectful or offensive comments on threads. Please respect the diversity of political, spiritual and nonspiritual beliefs of our users, and please note, we DO NOT permit messaging with a bias against any group of people. Any content on this site is NOT to be construed as medical advice! Members should always consult their doctors regarding a medical condition or treatment. Organizations must post events and services as individual users and must avoid direct advertising. The views presented on this site do not represent the views of SHARE. This community is monitored Mon-Fri, 9:30 am - 5:30 pm ET. Any content reported outside of this timeframe may not be reviewed until the following business day.
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