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Provenge
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30 months with PCA - experiences with ADT, Docetaxel, Xtandi / Nubeqa, Provenge and experimental immunotherapy trial.
The gamble with the first trial may have flopped, but I believe doing
Provenge
early has been beneficial.
The gamble with the first trial may have flopped, but I believe doing
Provenge
early has been beneficial.
Namork
in
Advanced Prostate Cancer
2 years ago
We have reached castrate resistance...what to do next?
trials in Denver (we live an hour north of Denver, CO) As far as staging, this is what I can find in his medical history: Clinical stage from 2/26/2020: Stage IVB (cTX, cNX, pM1c, PSA: 5, Grade Group: 5) His mutations are: PIK3CA, PTEN, and RAD21; the MO stated this means he is not a candidate for
Provenge
trials in Denver (we live an hour north of Denver, CO) As far as staging, this is what I can find in his medical history: Clinical stage from 2/26/2020: Stage IVB (cTX, cNX, pM1c, PSA: 5, Grade Group: 5) His mutations are: PIK3CA, PTEN, and RAD21; the MO stated this means he is not a candidate for
Provenge
Bmvg02
in
Advanced Prostate Cancer
2 years ago
Third Jevtana/Carboplatin treatment completed. Total of 10 chemo treatments are now completed overall. Hoping for better results.
My oncologist indicates Other options including
Provenge
, xofigo , mitoxantrone, clinical trials. I'm adding the possibility of Lu-177 to the mix. We're all in this together! Keep Going!
My oncologist indicates Other options including
Provenge
, xofigo , mitoxantrone, clinical trials. I'm adding the possibility of Lu-177 to the mix. We're all in this together! Keep Going!
Mount_Rainier
in
Advanced Prostate Cancer
2 years ago
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Anyone have any info or experience with Dr. Gary Onik and his Immunotherapy?
Does anyone know how his immunotherapy compares to
Provenge
and Car-T? His treatment is all private pay and is upward of $60k. We do whatever we need to to get that if we knew there was a good chance of helping. What are the potential downsides of immunotherapies?
Does anyone know how his immunotherapy compares to
Provenge
and Car-T? His treatment is all private pay and is upward of $60k. We do whatever we need to to get that if we knew there was a good chance of helping. What are the potential downsides of immunotherapies?
SuppWife
in
Advanced Prostate Cancer
2 years ago
Next Move
Provenge
a maybe,but haven't heard of great results from this group. Guidelines point to docetaxel or Jevtana, but still stuck on those neuropathy side effects.
Provenge
a maybe,but haven't heard of great results from this group. Guidelines point to docetaxel or Jevtana, but still stuck on those neuropathy side effects.
Kentucky1
in
Advanced Prostate Cancer
2 years ago
1st post. 1st line of tx ending? Looking into next best step.
Wonder when is best time to try
Provenge
. Any other txs? Should we look into 2nd consult? Any recommendations for consult- we live in southeast Indiana? Thank You.
Wonder when is best time to try
Provenge
. Any other txs? Should we look into 2nd consult? Any recommendations for consult- we live in southeast Indiana? Thank You.
Ramblingon
in
Advanced Prostate Cancer
2 years ago
does xtandi side effects cause extreme emotional upset or added with LUPRON etc.
spouse just got a lupron shot- he is in his 2nd yr- end of 2nd yr- and he takes Xtandi- he had
provenge
in JAN. and he has very bad brain side effects.
spouse just got a lupron shot- he is in his 2nd yr- end of 2nd yr- and he takes Xtandi- he had
provenge
in JAN. and he has very bad brain side effects.
gloriahale
in
Advanced Prostate Cancer
2 years ago
Anyone been on Keytruda for PCa?
Good folks, Due to my veins not being visible enough for
Provenge
, my MO is recommending 6 infusions of Keytruda (pembrolizumab) one every other week. Has any of you done this and what was the experience like.
Good folks, Due to my veins not being visible enough for
Provenge
, my MO is recommending 6 infusions of Keytruda (pembrolizumab) one every other week. Has any of you done this and what was the experience like.
Bdale
in
Advanced Prostate Cancer
2 years ago
The 5 Year Club
Immediately was put on casodex for 2 weeks, 6 rounds of chemo, completed
provenge
and currently on Xtandi for 24 months now. PSA is undetectable.
Immediately was put on casodex for 2 weeks, 6 rounds of chemo, completed
provenge
and currently on Xtandi for 24 months now. PSA is undetectable.
Nicnatno
in
Advanced Prostate Cancer
2 years ago
Car T vs Provenge treatment
Do any of the wise sages on here know if Car T and
provenge
are basically the same thing? I have heard great things about Car T treatment with blood cancers, but didnt know if it had any potential for PC. From what I can tell about
Provenge
, it may or may not do anything.
Do any of the wise sages on here know if Car T and
provenge
are basically the same thing? I have heard great things about Car T treatment with blood cancers, but didnt know if it had any potential for PC. From what I can tell about
Provenge
, it may or may not do anything.
joeguy
in
Advanced Prostate Cancer
2 years ago
Decision time. Input welcome
scan showed progression of osseous metastases. 2/8/21: Underwent CT guided biopsy of right ilium osseous lesion, which showed metastatic prostate adenocarcinoma. 4/7/21: Underwent TURP (for BPH) and bilateral orchiectomy. 4/21/21: Discontinue enzalutamide. 4/22/21 to 5/2021: Completed 3 cycles of
provenge
scan showed progression of osseous metastases. 2/8/21: Underwent CT guided biopsy of right ilium osseous lesion, which showed metastatic prostate adenocarcinoma. 4/7/21: Underwent TURP (for BPH) and bilateral orchiectomy. 4/21/21: Discontinue enzalutamide. 4/22/21 to 5/2021: Completed 3 cycles of
provenge
Miccoman
in
Advanced Prostate Cancer
2 years ago
DO provenge side effects of dizziness and double vision go away
but it is because they lowered his xtandi so he could qualify for
provenge
. and now he complains about the
provenge
side effects. I am at wits end.
but it is because they lowered his xtandi so he could qualify for
provenge
. and now he complains about the
provenge
side effects. I am at wits end.
gloriahale
in
Advanced Prostate Cancer
2 years ago
Under NHS UK, is provenge available? What is the state if immunotherapy treatment/trial under NHS? Does uk has BiTE or Car-T trial location?
Under NHS UK, is
provenge
available? What is the state if immunotherapy treatment/trial under NHS? Does uk has BiTE or Car-T trial location?
Under NHS UK, is
provenge
available? What is the state if immunotherapy treatment/trial under NHS? Does uk has BiTE or Car-T trial location?
Soumen79
in
Advanced Prostate Cancer
2 years ago
Good imho - a little no frill
I did not accept their
Provenge
recommendation. Went to VA at that point and found a refuge. Recently changed providers from Austin to Asheville NC, which is much better staffed than Central Texas. I have never felt tempted to return to community care.
I did not accept their
Provenge
recommendation. Went to VA at that point and found a refuge. Recently changed providers from Austin to Asheville NC, which is much better staffed than Central Texas. I have never felt tempted to return to community care.
Fastingguy
in
Advanced Prostate Cancer
2 years ago
Starting Provenge in January
I am scheduled to start
Provenge
treatment in January. Will post how it goes. Also starting Lynparza primarily based on BRCA1 mutation.
I am scheduled to start
Provenge
treatment in January. Will post how it goes. Also starting Lynparza primarily based on BRCA1 mutation.
33Ford
in
Advanced Prostate Cancer
3 years ago
How effective, generally, is provenge?
How effective, generally, is
provenge
? I don't hear much about these days?
How effective, generally, is
provenge
? I don't hear much about these days?
cesces
in
Advanced Prostate Cancer
3 years ago
And on it goes…Car T trial in process at Dana Farber. Anyone else doing Car T? Advice, comments welcome
Quick update: brother DX 2018, G9 with Mets, Lupron, Docetaxel,
Provenge
, Zytiga,Xtandi, ARV 110 trial, Keytruda (msh2 +6, HTB). Keytruda lasted eight months with no side effects. Bone scan in November stable with ALP at 109. PSA rose to 45 and lymph nodes were all growing.
Quick update: brother DX 2018, G9 with Mets, Lupron, Docetaxel,
Provenge
, Zytiga,Xtandi, ARV 110 trial, Keytruda (msh2 +6, HTB). Keytruda lasted eight months with no side effects. Bone scan in November stable with ALP at 109. PSA rose to 45 and lymph nodes were all growing.
Faith1111
in
Advanced Prostate Cancer
2 years ago
Rising PSA and want to be the best advocate!
He cannot have the prostate bed radiated again, so I'm wondering what the best options are for additional medications when that time presents itself...Zytiga, Xofigo,
Provenge
, Jevtana, etc.? I've always been his biggest cheerleader and he is the greatest warrior I've ever known in my life.
He cannot have the prostate bed radiated again, so I'm wondering what the best options are for additional medications when that time presents itself...Zytiga, Xofigo,
Provenge
, Jevtana, etc.? I've always been his biggest cheerleader and he is the greatest warrior I've ever known in my life.
Abcsoup73
in
Advanced Prostate Cancer
2 years ago
Looking for some hope
Armstrong at Duke and his recommendation is
provenge
, and, radiation to two spots that are worrisome the one on my neck especially and one on my hip to help prevent any fracture and then chemotherapy after a few months. But I wasn’t very encouraged by the outlook of chemotherapy.
Armstrong at Duke and his recommendation is
provenge
, and, radiation to two spots that are worrisome the one on my neck especially and one on my hip to help prevent any fracture and then chemotherapy after a few months. But I wasn’t very encouraged by the outlook of chemotherapy.
Oct18
in
Advanced Prostate Cancer
3 years ago
Good Report
My only treatments so far have been Zytiga, Eligard,
Provenge
, and Xgeva which I was on for a year but stopped after it started causing jawbone loss I had to have dead bone removed twice.
My only treatments so far have been Zytiga, Eligard,
Provenge
, and Xgeva which I was on for a year but stopped after it started causing jawbone loss I had to have dead bone removed twice.
leo2634
in
Advanced Prostate Cancer
3 years ago
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