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Pegasys
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Switching from HU To Pegasys: Skin Cancer Risk
Today I met with my hematologist , to discuss HU vs
Pegasys
in relation to my skin cancer risk. She agreed that switching to
Pegasys
was “a very good choice” for me. So next week I’ll start the switch with a start dose of 45 mcg every other week.
Today I met with my hematologist , to discuss HU vs
Pegasys
in relation to my skin cancer risk. She agreed that switching to
Pegasys
was “a very good choice” for me. So next week I’ll start the switch with a start dose of 45 mcg every other week.
Minify
in
MPN Voice
1 year ago
Dry scalp/skin - ET & Interferon
in my lifestyle has changed, absolutely nothing, except starting
Pegasys
and I'm wondering if it's this as I know it can cause dry skin! Has anyone else experienced this too?? Does anyone have any tips?!
in my lifestyle has changed, absolutely nothing, except starting
Pegasys
and I'm wondering if it's this as I know it can cause dry skin! Has anyone else experienced this too?? Does anyone have any tips?!
cgcheets
in
MPN Voice
1 year ago
HU to Peg Transition Problems -
Hello I am asking for help with difficulties I am having transitioning from hydroxyurea to
Pegasys
. I am 58, male, CalR-ET, diagnosed in 2008, started HU in 2011.
Hello I am asking for help with difficulties I am having transitioning from hydroxyurea to
Pegasys
. I am 58, male, CalR-ET, diagnosed in 2008, started HU in 2011.
LongETinUS
in
MPN Voice
1 year ago
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Pegasys & thyroid
HiI have been taking
Pegasys
for 10yrs & recently my thyroid levels have been increasing. I am aware that the treatment can affect the thyroid. Does anyone have any experience of this? If the treatment is stopped will the thyroid levels rectify or is this now permanent.
HiI have been taking
Pegasys
for 10yrs & recently my thyroid levels have been increasing. I am aware that the treatment can affect the thyroid. Does anyone have any experience of this? If the treatment is stopped will the thyroid levels rectify or is this now permanent.
Beartime
in
MPN Voice
1 year ago
Seeing an MPN Specialist tomorrow!
Going on 5 years with ET+CALR and currently taking aspirin and 2 pills of Hydrea daily AND 90mcg of
Pegasys
once a week. We are in a transitional period right now and I will eventually just be taking
Pegasys
and aspirin. Took my 4th dose of
Pegasys
yesterday.
Going on 5 years with ET+CALR and currently taking aspirin and 2 pills of Hydrea daily AND 90mcg of
Pegasys
once a week. We are in a transitional period right now and I will eventually just be taking
Pegasys
and aspirin. Took my 4th dose of
Pegasys
yesterday.
Zeppelin11
in
MPN Voice
1 year ago
Pegasys and Liver Heath
My ALT and Potassium have gone up since I have been on
Pegasys
. Is there anything I can do (or not do) to improve liver function? I have a pretty healthy diet and will avoid acetaminophen going forward. I work out, drink coffee, all the things.
My ALT and Potassium have gone up since I have been on
Pegasys
. Is there anything I can do (or not do) to improve liver function? I have a pretty healthy diet and will avoid acetaminophen going forward. I work out, drink coffee, all the things.
Zeppelin11
in
MPN Voice
1 year ago
Pegasys - to start or not
I am now seriously considering starting
Pegasys
and reserved today an appointment with my specialist to discuss how we would go about it. In my country this line of treatment is not standard for low risk ET.
I am now seriously considering starting
Pegasys
and reserved today an appointment with my specialist to discuss how we would go about it. In my country this line of treatment is not standard for low risk ET.
Bigcheat
in
MPN Voice
1 year ago
New Pegasys Manufacturer
Just received my next 6 month supply of
Pegasys
. Packaging and presentation is identical to the former Roche version but it’s now from the new licence holder Pharma& and manufactured by their subsidiary LOBA, both based in Austria.
Just received my next 6 month supply of
Pegasys
. Packaging and presentation is identical to the former Roche version but it’s now from the new licence holder Pharma& and manufactured by their subsidiary LOBA, both based in Austria.
AndyT
in
MPN Voice
1 year ago
St, Jak2, and now Asxl1...
It confirmed, and I started
Pegasys
. 3 months in, my platelets were still in the low 8's and we did a consult. Dr said that she wanted them to come down quicker and would normally add Hydroxy at this point, but instead increased my dosage of Peg.
It confirmed, and I started
Pegasys
. 3 months in, my platelets were still in the low 8's and we did a consult. Dr said that she wanted them to come down quicker and would normally add Hydroxy at this point, but instead increased my dosage of Peg.
Mortysdad
in
MPN Voice
1 year ago
Just saw MPN Specialist | ET+CALR
He agreed that Interferon (
Pegasys
) is the best treatment at this point. I asked him about Besremi and he said that only people with PV have this option (from insurance companies) but he doesn't prefer one over the other. So
Pegasys
is fine.
He agreed that Interferon (
Pegasys
) is the best treatment at this point. I asked him about Besremi and he said that only people with PV have this option (from insurance companies) but he doesn't prefer one over the other. So
Pegasys
is fine.
Zeppelin11
in
MPN Voice
1 year ago
Hair Loss on Hydrea
After starting to an MPN Specialist almost 2 yrs ago & switching to
Pegasys
, my hair is coming back in. My hair dresser is amazed at how much regrowth I’ve had. It’s still fairly thin on top, but slowly filling back in. Good luck!
After starting to an MPN Specialist almost 2 yrs ago & switching to
Pegasys
, my hair is coming back in. My hair dresser is amazed at how much regrowth I’ve had. It’s still fairly thin on top, but slowly filling back in. Good luck!
Golfersmom
in
MPN Voice
1 year ago
Update on appointments
Hi guys , got my letter threw post today with my results which was from 6th of March that would of been 4 weeks then off
pegasys
interferon, Hb - 127 WBC-5.1 Neutrophils-2.9 Platelets-475 Am due back on 17th of April to let them know in-between if I need too.
Hi guys , got my letter threw post today with my results which was from 6th of March that would of been 4 weeks then off
pegasys
interferon, Hb - 127 WBC-5.1 Neutrophils-2.9 Platelets-475 Am due back on 17th of April to let them know in-between if I need too.
Jody00
in
MPN Voice
1 year ago
Pegasys injection
Hi, i have a
pegasys
injection every week into lower tummy for two years, i alternate either side. Last week the injection site is quite red and sore, has anyone experienced this and could recommend anything to help. Thank you.
Hi, i have a
pegasys
injection every week into lower tummy for two years, i alternate either side. Last week the injection site is quite red and sore, has anyone experienced this and could recommend anything to help. Thank you.
Robeets_33
in
MPN Voice
1 year ago
Urgent! Help deciding on Pegasys dose today
Hi gang, I have an appointment with my Haem in a couple of hours to prescribe
pegasys
and I’m trying to decide what the best starting dose will be. Would appreciate any input/advice you guys can give!
Hi gang, I have an appointment with my Haem in a couple of hours to prescribe
pegasys
and I’m trying to decide what the best starting dose will be. Would appreciate any input/advice you guys can give!
IrishSarah
in
MPN Voice
1 year ago
Hydroxy v Interferon
I have had a pack of
Pegasys
in my fridge since November and TODAY is the day that have decided to start taking it! I’ll let you know how I get on….💪🙏🤞
I have had a pack of
Pegasys
in my fridge since November and TODAY is the day that have decided to start taking it! I’ll let you know how I get on….💪🙏🤞
RazB
in
MPN Voice
1 year ago
Pegasys starting dose
I got my prescription to start
Pegasys
due to my platelets being in the 1.5M range. I haven’t discussed the dose with my hematologist (not an MPN specialist) but I see now that she wants me to start with 90 mcg weekly.
I got my prescription to start
Pegasys
due to my platelets being in the 1.5M range. I haven’t discussed the dose with my hematologist (not an MPN specialist) but I see now that she wants me to start with 90 mcg weekly.
Aelle
in
MPN Voice
1 year ago
Pegasys Delay
I'm currently taking 1500mg of Hydrea and my Hematologist wants me to keep taking it while starting a
Pegasys
dose of 180mcg. I told him I thought that was too high and prefer to start with 45mcg and work my way up if need be. So I will continue the 3 pills of Hydrea with 45mcg of
Pegasys
.
I'm currently taking 1500mg of Hydrea and my Hematologist wants me to keep taking it while starting a
Pegasys
dose of 180mcg. I told him I thought that was too high and prefer to start with 45mcg and work my way up if need be. So I will continue the 3 pills of Hydrea with 45mcg of
Pegasys
.
Zeppelin11
in
MPN Voice
1 year ago
LDH Levels
I'm going on three weeks with
Pegasys
(90mcg once per week) and still taking two pills of Hydrea as well as an aspirin per day. My platelets continue to go down and are at 780,000 as if yesterday. However my LDH level is at 359 which is concerning me.
I'm going on three weeks with
Pegasys
(90mcg once per week) and still taking two pills of Hydrea as well as an aspirin per day. My platelets continue to go down and are at 780,000 as if yesterday. However my LDH level is at 359 which is concerning me.
Zeppelin11
in
MPN Voice
1 year ago
What does remission look like?
Had to stop
Pegasys
4 months ago because of liver issues. This is after being on it 8 years. Since then my platelets have remained at around 550. Liver enzymes continue to drop. Could this possibly constitute remission?
Had to stop
Pegasys
4 months ago because of liver issues. This is after being on it 8 years. Since then my platelets have remained at around 550. Liver enzymes continue to drop. Could this possibly constitute remission?
Mountainbiker12
in
MPN Voice
1 year ago
Pegasys Dosage Waste
I am starting
Pegasys
next week to treat my polycythemia vera. HU was discussed, but not a great choice for me to start on. My dosage is 90mcg from a 180mcg vial, the remainder is thrown away. At approximately $1,000 a vial I will be flushing $500 down the drain a week! Truly disgusting.
I am starting
Pegasys
next week to treat my polycythemia vera. HU was discussed, but not a great choice for me to start on. My dosage is 90mcg from a 180mcg vial, the remainder is thrown away. At approximately $1,000 a vial I will be flushing $500 down the drain a week! Truly disgusting.
BadgerPV
in
MPN Voice
1 year ago
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