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Pegasys
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Sarcomatoid SCCs and ruxolitinib BMB
I’m still hoping that I can find a drug or combination of drugs ( adding
Pegasys
to rux has had good results in the Danish study recently posted ) thar will not give me the acute recurring aggressive disfiguring generally crap sarcomatoid SCCs. that rux alone does, but will keep control of the
I’m still hoping that I can find a drug or combination of drugs ( adding
Pegasys
to rux has had good results in the Danish study recently posted ) thar will not give me the acute recurring aggressive disfiguring generally crap sarcomatoid SCCs. that rux alone does, but will keep control of the
Rachelthepotter
in
MPN Voice
4 years ago
Anyone with sudden WBC elevation while on Pegasys?
Has anyone experienced this while on
Pegasys
? Thanks!
Has anyone experienced this while on
Pegasys
? Thanks!
Alexbits
in
MPN Voice
4 years ago
Going on interferon pegasys
Hi everyone, and happy new year 💞 From next Wednesday I am having to go onto interferon
pegasys
injections....wish me luck. 😘😘
Hi everyone, and happy new year 💞 From next Wednesday I am having to go onto interferon
pegasys
injections....wish me luck. 😘😘
Yvette49
in
MPN Voice
4 years ago
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Teleconsultations
I have just had my regular heamo appointment after being on
Pegasys
for 6 weeks. My consultant has left , ( 3rd one in a year! ) My platelets are still in the 600 range. I have now been told that I am being moved to Telephone consultations with a heamo nurse. ( I’ve never met her!
I have just had my regular heamo appointment after being on
Pegasys
for 6 weeks. My consultant has left , ( 3rd one in a year! ) My platelets are still in the 600 range. I have now been told that I am being moved to Telephone consultations with a heamo nurse. ( I’ve never met her!
swimswam
in
MPN Voice
4 years ago
Combined ruxolitinib and pegasys therapy for MF and PV gives great results. Danish phase 2 study Jan 2020 ( ruxopeg)
The combination of ruxolitinib and
pegasys
does look to be worth trying.
Ruxolitinib And Interferon-Α2 Combination Therapy For Patients With Polycythemia Vera Or Myelofibrosis: A Phase II Study.
The combination of ruxolitinib and
pegasys
does look to be worth trying.
Ruxolitinib And Interferon-Α2 Combination Therapy For Patients With Polycythemia Vera Or Myelofibrosis: A Phase II Study.
Rachelthepotter
in
MPN Voice
4 years ago
Moving back to UK (On Peginterferon)
Hi all, I am currently on bi-weekly
Pegasys
Peginterferon injections here in HK. I am planning on moving back to the UK this summer. Does anyone know or have experience about how to go about continuing my injections through the NHS when I return?
Hi all, I am currently on bi-weekly
Pegasys
Peginterferon injections here in HK. I am planning on moving back to the UK this summer. Does anyone know or have experience about how to go about continuing my injections through the NHS when I return?
dengor
in
MPN Voice
4 years ago
Pain injecting Pegasys
I have been injecting
Pegasys
for six months and it's always been painless. But today, although I didn't do anything differently, it was painful when I inserted the needle and emptied the syringe and remained painful for about a minute afterwards. It bled a little, but occasionally it does anyway.
I have been injecting
Pegasys
for six months and it's always been painless. But today, although I didn't do anything differently, it was painful when I inserted the needle and emptied the syringe and remained painful for about a minute afterwards. It bled a little, but occasionally it does anyway.
Otterfield
in
MPN Voice
4 years ago
Good news re allele burden
He said he was not surprised and that for him this was just the confirmation that
Pegasys
is a slow-acting drug and that it’s important to be patient.
He said he was not surprised and that for him this was just the confirmation that
Pegasys
is a slow-acting drug and that it’s important to be patient.
Marossi
in
MPN Voice
4 years ago
Pegasys Injection Sites?
Hello, My mom got diagnosed with ET a few months back and just got started on
Pegasys
. She had her first injection today by the nurse in her upper arm.
Hello, My mom got diagnosed with ET a few months back and just got started on
Pegasys
. She had her first injection today by the nurse in her upper arm.
Dragon85
in
MPN Voice
4 years ago
A little knowledge is a dangerous thing
Last week I wrote a post asking about the significance of low leukocytes (and high eosinophils) on
Pegasys
. Thank you to those of you who answered. I must admit I was pretty worried. Turns out I was looking at the wrong column on the results.
Last week I wrote a post asking about the significance of low leukocytes (and high eosinophils) on
Pegasys
. Thank you to those of you who answered. I must admit I was pretty worried. Turns out I was looking at the wrong column on the results.
Marossi
in
MPN Voice
4 years ago
Anyone on Pegasys experiencing a lowering of white blood cells?
I understand that
Pegasys
doesn't distinguish between different blood types so the fact that my white blood cell count is down overall might just mean I need to reduce my dose (I'm currently on 90 mcg every 3 weeks).
I understand that
Pegasys
doesn't distinguish between different blood types so the fact that my white blood cell count is down overall might just mean I need to reduce my dose (I'm currently on 90 mcg every 3 weeks).
Marossi
in
MPN Voice
4 years ago
Pegasys and breast feeding
I think that
pegasys
and breast feeding is contra indicated but I also think that peg is not fully approved in pregnancy? I injected interferon throughout pregnancy and thankfully all went well. I now need to start taking it again. I'm currently breast feeding and would like to continue.
I think that
pegasys
and breast feeding is contra indicated but I also think that peg is not fully approved in pregnancy? I injected interferon throughout pregnancy and thankfully all went well. I now need to start taking it again. I'm currently breast feeding and would like to continue.
hansyhand
in
MPN Voice
4 years ago
Change from Interferon to Pegasys
At last my trust has approved the change from basic Interferon to
Pegasys
. I have only been allowed standard Interferon for the past year, but the last few months my platlets have risen from 350 to nearly 700, and I have had to increase my injections to every other day.
At last my trust has approved the change from basic Interferon to
Pegasys
. I have only been allowed standard Interferon for the past year, but the last few months my platlets have risen from 350 to nearly 700, and I have had to increase my injections to every other day.
swimswam
in
MPN Voice
4 years ago
Hair and Pegasys
Hi since starting
Pegasys
a few months ago I haven't had hair loss but my hair has become rather dry and brittle. Can anyone recommend any shampoos and conditioners available in the UK that could help? Thanks
Hi since starting
Pegasys
a few months ago I haven't had hair loss but my hair has become rather dry and brittle. Can anyone recommend any shampoos and conditioners available in the UK that could help? Thanks
hall2
in
MPN Voice
4 years ago
New to HU
I’ve been taking
Pegasys
for 9 months with limited results. I’ve got a platelet count of 1900 and amongst other symptoms erythromylalgia in my fingers and toes. How long will HU take to kick in and stop all this nerve pain? And will resting instead of going into work help it work quicker.
I’ve been taking
Pegasys
for 9 months with limited results. I’ve got a platelet count of 1900 and amongst other symptoms erythromylalgia in my fingers and toes. How long will HU take to kick in and stop all this nerve pain? And will resting instead of going into work help it work quicker.
Charlieapple2018
in
MPN Voice
4 years ago
Cataract Operation / Lens Implant
I have ET (MPL) and on
Pegasys
.
I have ET (MPL) and on
Pegasys
.
Raphael_UK
in
MPN Voice
4 years ago
Hydroxy to Pegasys switch
Hello - couldn’t find this on a search and wonder if you can help. Here’s the context: Partner is 33, ET triple negative with acquired Von willebrand on 1.5mg hydroxy a day after heart attack and platelets approaching 2m. All under control now after a lot of time adjusting the dose. We’re thinking of
Hello - couldn’t find this on a search and wonder if you can help. Here’s the context: Partner is 33, ET triple negative with acquired Von willebrand on 1.5mg hydroxy a day after heart attack and platelets approaching 2m. All under control now after a lot of time adjusting the dose. We’re thinking of
intothewoods
in
MPN Voice
4 years ago
Pegasys update
So after 8 weeks on 45 Mcg
Pegasys
my platelets are down to 420. Pre starting Peg they were at 820. Not an easy journey starting the meds but a whole lot better for me as Ruxolitinib and Hydroxycarbamide hardly touched my platelets Regards Graham
So after 8 weeks on 45 Mcg
Pegasys
my platelets are down to 420. Pre starting Peg they were at 820. Not an easy journey starting the meds but a whole lot better for me as Ruxolitinib and Hydroxycarbamide hardly touched my platelets Regards Graham
Graham7694
in
MPN Voice
4 years ago
Hens teeth, aggressive sarcomatoid sccs and ruxolitinib
Pegasys
or Ropeg might now be available: don’t know. I see that Fedratinib has been approved : anyone here had any experience of it? Its supposed to be less immunosuppressive than ruxolitinib - or is that one of the others?
Pegasys
or Ropeg might now be available: don’t know. I see that Fedratinib has been approved : anyone here had any experience of it? Its supposed to be less immunosuppressive than ruxolitinib - or is that one of the others?
Rachelthepotter
in
MPN Voice
4 years ago
Pegasus and Liver Function
The next day I had a call to say my LFT had been gradually rising and they wanted me to stop
Pegasys
altogether and be reviewed in 4 weeks, as anyone else had this issue, apparently
Pegasys
can cause a problem witn the Liver which I was not aware of. Regards Lynn.
The next day I had a call to say my LFT had been gradually rising and they wanted me to stop
Pegasys
altogether and be reviewed in 4 weeks, as anyone else had this issue, apparently
Pegasys
can cause a problem witn the Liver which I was not aware of. Regards Lynn.
lindyloulou
in
MPN Voice
5 years ago
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