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Experiences with
Natural desiccated thyroid (NDT)
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Triplet Therapy
My husband is going to start triplet therapy starting with a firmagon shot next week followed by chemo. How much is the typical gap between ADT and starting chemo - 2 weeks, 4 weeks ?
My husband is going to start triplet therapy starting with a firmagon shot next week followed by chemo. How much is the typical gap between ADT and starting chemo - 2 weeks, 4 weeks ?
Cali3
in
Advanced Prostate Cancer
4 months ago
Criteria for "my ADT has stopped working and we have to move to another"
Hello - So my third post ADT initiation (Lupron+Abi) PSA test is coming up and since it was <.1 six weeks ago, I asked how the criteria of “has stopped working” works -to my Hopkins MO and I got this - “We want to declare a therapy no longer effective when PSA is clearly going up. We look for 0.3
Hello - So my third post ADT initiation (Lupron+Abi) PSA test is coming up and since it was <.1 six weeks ago, I asked how the criteria of “has stopped working” works -to my Hopkins MO and I got this - “We want to declare a therapy no longer effective when PSA is clearly going up. We look for 0.3
jackwfrench
in
Advanced Prostate Cancer
4 months ago
restricted urinary flow
Finished IMRT/ SBRT radiation to lymph nodes last week. Since then Ive begun have early AM restricted urinary flow - Very narrow stream. Rad Onc suggested tamsulosin or ibuprophen. MO, tamsulosin. Any work around for the early AM problem that I could take overnight? Ibuprophen has to be taken all
Finished IMRT/ SBRT radiation to lymph nodes last week. Since then Ive begun have early AM restricted urinary flow - Very narrow stream. Rad Onc suggested tamsulosin or ibuprophen. MO, tamsulosin. Any work around for the early AM problem that I could take overnight? Ibuprophen has to be taken all
kainasar
in
Fight Prostate Cancer
4 months ago
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How do I test when taking NDT?
I switched to
NDT
in early December. I need to do a test now because I am so tired I can barely function but I can't sleep either. I have my kit. How should I take the meds the day before? I was testing 12hrs after my last T3 and 24hrs after my last T4 when I was using combo.
I switched to
NDT
in early December. I need to do a test now because I am so tired I can barely function but I can't sleep either. I have my kit. How should I take the meds the day before? I was testing 12hrs after my last T3 and 24hrs after my last T4 when I was using combo.
FancyPants54
in
Thyroid UK
1 year ago
ADT and crying
Does anyone else that has been on ADT drugs for years have trouble with tears or crying for no real reason? I tear up anymore at just the thought of something sad. It’s a major pain in the ass, not to mention embarrassing because I am still employed. Wondering if there is a solution other than stopping
Does anyone else that has been on ADT drugs for years have trouble with tears or crying for no real reason? I tear up anymore at just the thought of something sad. It’s a major pain in the ass, not to mention embarrassing because I am still employed. Wondering if there is a solution other than stopping
joeguy
in
Advanced Prostate Cancer
4 months ago
Still confused about PSA and Testosterone testing
I have been reading posts here for some time and there seems to be a split between those who only get PSA tests each time they go to their doctors and those that get both tests each time. I had a baseline testosterone test before Lupron and before radiation. I am now doing my 6 month follow up and
I have been reading posts here for some time and there seems to be a split between those who only get PSA tests each time they go to their doctors and those that get both tests each time. I had a baseline testosterone test before Lupron and before radiation. I am now doing my 6 month follow up and
Mgtd
in
Advanced Prostate Cancer
4 months ago
Eating thyroid gland from local farm?
I thought I may try it to see how it goes since
NDT
doesn't work well for me well unfortunately. What can I lose if I try it for a few weeks right? Is that a thing? I was thinking I would just buy some from local farm that have organic grass feed beef or lamb.
I thought I may try it to see how it goes since
NDT
doesn't work well for me well unfortunately. What can I lose if I try it for a few weeks right? Is that a thing? I was thinking I would just buy some from local farm that have organic grass feed beef or lamb.
newbie85
in
Thyroid UK
1 year ago
Importance of ADT
Are there any good outcomes without using ADT ( hormone therapy)? I delayed it for a couple of years with bad results. My history -- [u]
2021
[/u]: Age 78. PSA was 7.79, Gleason 4+3=7. Small lesion in prostate, with perineural invasion. Had 20 IMRT for prostate. No ADT. [u]
2022
[/u]: PSA
Are there any good outcomes without using ADT ( hormone therapy)? I delayed it for a couple of years with bad results. My history -- [u]
2021
[/u]: Age 78. PSA was 7.79, Gleason 4+3=7. Small lesion in prostate, with perineural invasion. Had 20 IMRT for prostate. No ADT. [u]
2022
[/u]: PSA
vintage42
in
Advanced Prostate Cancer
4 months ago
Thanks and hope to all
No questions …just wanted to thank everyone for all your input and support …especially during the holidays. Had my Christmas radiation treatment yesterday and 7 of 15 linac dose today.. Brachytherapy prior with ADT for the last 7 months. Things seem to be going as smoothly as it sometimes does. Appreciate
No questions …just wanted to thank everyone for all your input and support …especially during the holidays. Had my Christmas radiation treatment yesterday and 7 of 15 linac dose today.. Brachytherapy prior with ADT for the last 7 months. Things seem to be going as smoothly as it sometimes does. Appreciate
Yokohama2023
in
Advanced Prostate Cancer
4 months ago
Thyroid-S further and test results
I was hoping that
NDT
would be my "miracle" but after 9 months I will add levy tomorrow as I am tired of feeling awful.
I was hoping that
NDT
would be my "miracle" but after 9 months I will add levy tomorrow as I am tired of feeling awful.
MiaMam
in
Thyroid UK
10 months ago
Is nmCRPC potentially curable?
I would appreciate any input on this. I searched the internet and found this article from Fred Saad: Treatment of nonmetastatic castration-resistant prostate cancer: focus on second-generation androgen receptor inhibitors https://www.nature.com/articles/s41391-020-00310-3 I couldn't find anything
I would appreciate any input on this. I searched the internet and found this article from Fred Saad: Treatment of nonmetastatic castration-resistant prostate cancer: focus on second-generation androgen receptor inhibitors https://www.nature.com/articles/s41391-020-00310-3 I couldn't find anything
Seasid
in
Advanced Prostate Cancer
4 months ago
CBC test anemia: high MCV, MCH, low RBC and leukocytes?
Writing for my partner, who is exhausted and down after 5 months ADT and 28x radiation. Returning home he went for CBC, and it came back high MCV MCH, low RBC and leukocytes. His primary w/0 knowledge of cancer tx says nothing. I'm not content with this, I hate to see my partner so tired and unenthused
Writing for my partner, who is exhausted and down after 5 months ADT and 28x radiation. Returning home he went for CBC, and it came back high MCV MCH, low RBC and leukocytes. His primary w/0 knowledge of cancer tx says nothing. I'm not content with this, I hate to see my partner so tired and unenthused
quietcorner
in
Advanced Prostate Cancer
4 months ago
QoL Rest Ye Merry Gentlemen/women :-)
https://youtu.be/HGVNzgUxE-g?si=xy8PUcVuFg__Q7ym
JOY Alert
!! Tis the Season... I "borrowed" the above from the Web, printed them up as photos at Walgreens and mailed them to HU members to whom I mailed things before, hope they arrived. HMU if you want one 😁 or just copy the image Here are
https://youtu.be/HGVNzgUxE-g?si=xy8PUcVuFg__Q7ym
JOY Alert
!! Tis the Season... I "borrowed" the above from the Web, printed them up as photos at Walgreens and mailed them to HU members to whom I mailed things before, hope they arrived. HMU if you want one 😁 or just copy the image Here are
dockam
in
Advanced Prostate Cancer
4 months ago
happy holidays …. And a quick update
Just a quick note to wish all the warriors here a happy holidays with friends and family. As an update, I’m off all treatments and my psa remains <0.014. I remain grateful for the respite. My last degeralix injection and darolutamide was in May, and the SBRT to my ribs and neck about 2 years ago
Just a quick note to wish all the warriors here a happy holidays with friends and family. As an update, I’m off all treatments and my psa remains <0.014. I remain grateful for the respite. My last degeralix injection and darolutamide was in May, and the SBRT to my ribs and neck about 2 years ago
PGDuan
in
Advanced Prostate Cancer
4 months ago
Radiation PSA, Orgovyx, Bone density
Rouge clone radiation on 10/31/23 has PSA continuing to drop to 0.85. MO plans to monitor PSA before requesting PSMA scan (insurance) unless it is increasing. Considering switch from Eligard to Orgovyx if PSA looks good in early Feb since Orgovyx apparently has less severe SE and doesn't tie me to
Rouge clone radiation on 10/31/23 has PSA continuing to drop to 0.85. MO plans to monitor PSA before requesting PSMA scan (insurance) unless it is increasing. Considering switch from Eligard to Orgovyx if PSA looks good in early Feb since Orgovyx apparently has less severe SE and doesn't tie me to
alperk
in
Advanced Prostate Cancer
4 months ago
ERLEADA brain dead
Hey guys, everyone has been truly helpful on this site I keep posting as I endure my 18-24 months of hormone therapy that I have remaining. The last leg based on the Stampede Trial. I started on Lupron and Zytiga after successful radiation to my lymph node. This was seven years after proton radiation
Hey guys, everyone has been truly helpful on this site I keep posting as I endure my 18-24 months of hormone therapy that I have remaining. The last leg based on the Stampede Trial. I started on Lupron and Zytiga after successful radiation to my lymph node. This was seven years after proton radiation
icanwintwice
in
Advanced Prostate Cancer
4 months ago
Once again it's time to help keep Malecare afloat and thriving. Please give.
It's the time of the year when people put aside differences and unite for common causes. Aren't the holiday seasons wonderful? I really don't know who coined the phrase "It's the season of giving," but I do know the words ring true. Much of Malecare's operating budget comes from individual donations
It's the time of the year when people put aside differences and unite for common causes. Aren't the holiday seasons wonderful? I really don't know who coined the phrase "It's the season of giving," but I do know the words ring true. Much of Malecare's operating budget comes from individual donations
Hidden
in
Advanced Prostate Cancer
4 months ago
Prostate-Kidney and BPH Decision for treatment.
Hi everyone. Hoping to get some input from the collective experience and knowledge of the helpful people on this forum in making a decision on course of treatment. I apologize for length of post, but, with two issues (prostate and kidney) it took a bit to accurately explain. Newly diagnosed with Prostate
Hi everyone. Hoping to get some input from the collective experience and knowledge of the helpful people on this forum in making a decision on course of treatment. I apologize for length of post, but, with two issues (prostate and kidney) it took a bit to accurately explain. Newly diagnosed with Prostate
Seminole0412
in
Advanced Prostate Cancer
4 months ago
NDT Question
With my parents help I was able to go to a private endocrinologist and obtain Erfa
NDT
. So three months ago I started on half a grain in the morning, half in the afternoon. Felt great.
With my parents help I was able to go to a private endocrinologist and obtain Erfa
NDT
. So three months ago I started on half a grain in the morning, half in the afternoon. Felt great.
Maelanro
in
Thyroid UK
2 years ago
Adding Docetaxel to T3b?
My husband is 63, stage T3b N0M0. His biopsy showed all 12 cores positive with 80%+ cancer, GL 4+5 with
intraductal carcinoma
and original PSA was 12. According to PSMA pet scan 12 months ago, he has additional risk factors such as
ECE, SVI, PNI
, but no other spread. He has completed 39
My husband is 63, stage T3b N0M0. His biopsy showed all 12 cores positive with 80%+ cancer, GL 4+5 with
intraductal carcinoma
and original PSA was 12. According to PSMA pet scan 12 months ago, he has additional risk factors such as
ECE, SVI, PNI
, but no other spread. He has completed 39
Adendino
in
Advanced Prostate Cancer
4 months ago
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