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Interferon in Polycythemia Vera (PV) Yields Improved Myelofibrosis-Free and Overall Survival
« Conclusion: Our results support early use of rIFN-a as a safe, disease-modifying treatment of rigorously defined PV to delay and potentially prevent Post PV
myelofibrosis
, and prolong overall survival of PV pts » https://ash.confex.com/ash/2020/webprogram/Paper141796.html
« Conclusion: Our results support early use of rIFN-a as a safe, disease-modifying treatment of rigorously defined PV to delay and potentially prevent Post PV
myelofibrosis
, and prolong overall survival of PV pts » https://ash.confex.com/ash/2020/webprogram/Paper141796.html
Manouche
in
MPN Voice
4 years ago
Picture of blast cell
Blasts should not be seen circulating in the blood unless you have
myelofibrosis
or leukemia.
Blasts should not be seen circulating in the blood unless you have
myelofibrosis
or leukemia.
clubdino
in
MPN Voice
4 years ago
AOP Orphan announces 5-year results on BESREMi® in PV at the ASH Annual Meeting 2020
* Disease progression was reduced to 0.2%-per-patient year (one case of
myelofibrosis
) in patients receiving Besremi vs. 1.0%-per-patient year observed in the control group (two cases of transformation to acute leukemia and two cases of
myelofibrosis
).
* Disease progression was reduced to 0.2%-per-patient year (one case of
myelofibrosis
) in patients receiving Besremi vs. 1.0%-per-patient year observed in the control group (two cases of transformation to acute leukemia and two cases of
myelofibrosis
).
Manouche
in
MPN Voice
4 years ago
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jak-2 mutated
could I ask if anyone knows about jak2 mutated postive tested has i still not right sure what it means its on my letters with the condition ive got essential thrombocythaemia which could get aggressive into thrombosis but also says could progess to
myelofibrosis
or acute myeloid lumkemia ?
could I ask if anyone knows about jak2 mutated postive tested has i still not right sure what it means its on my letters with the condition ive got essential thrombocythaemia which could get aggressive into thrombosis but also says could progess to
myelofibrosis
or acute myeloid lumkemia ?
Jody00
in
MPN Voice
4 years ago
Going well so far with MF on Ruxolitinib
When I was diagnosed with post ET
Myelofibrosis
in August, I was terrified and extremely grateful for the support on this forum. I thought I would just update you and let you know that Ruxolitinib appears to be working well for me.
When I was diagnosed with post ET
Myelofibrosis
in August, I was terrified and extremely grateful for the support on this forum. I thought I would just update you and let you know that Ruxolitinib appears to be working well for me.
Otterfield
in
MPN Voice
4 years ago
ET
months was on 497 then 596 then 679 now back down to 597 am tested for jak2 take 75mg asprin a day to live a,healthy lifestyle and a diet a have my bloods done every 3 months and check up over phone at moment with my haematologist,long terms complications are rare and can include progression to
myelofibrosis
months was on 497 then 596 then 679 now back down to 597 am tested for jak2 take 75mg asprin a day to live a,healthy lifestyle and a diet a have my bloods done every 3 months and check up over phone at moment with my haematologist,long terms complications are rare and can include progression to
myelofibrosis
Jody00
in
MPN Voice
4 years ago
MYELOFIBROSIS (MF) for Patients - A Talk by MESA & SCHERBER
:D Yes, and now the talk on
Myelofibrosis
(MF), as the third in the series of talks by Dr Ruben Mesa & Dr Robyn Scherber concerning the three (3) more classical Myeloproliferative Neoplasm (MPN) conditions.
:D Yes, and now the talk on
Myelofibrosis
(MF), as the third in the series of talks by Dr Ruben Mesa & Dr Robyn Scherber concerning the three (3) more classical Myeloproliferative Neoplasm (MPN) conditions.
socrates_8
in
MPN Voice
4 years ago
MPN-u unclassified
I have no mutations but slightly raised platelets ( for 21years & I’m 51) but slight scarring on bone marrow which is a little fibrous .Really worried because it can not always turn into
myelofibrosis
.I don’t fully understand it all I just know it’s quite rare & ive just got to see what happens so they
I have no mutations but slightly raised platelets ( for 21years & I’m 51) but slight scarring on bone marrow which is a little fibrous .Really worried because it can not always turn into
myelofibrosis
.I don’t fully understand it all I just know it’s quite rare & ive just got to see what happens so they
Lizzy19
in
MPN Voice
4 years ago
Myelofibrosis - thank you for the support
A few days ago I posted about my new diagnosis of post ET
Myelofibrosis
and I just want to say thank you for all the responses and support I received. Without this forum I would feel quite lost. I'm feeling absolutely exhausted today, as if having my morning shower was enough exertion for one day.
A few days ago I posted about my new diagnosis of post ET
Myelofibrosis
and I just want to say thank you for all the responses and support I received. Without this forum I would feel quite lost. I'm feeling absolutely exhausted today, as if having my morning shower was enough exertion for one day.
Otterfield
in
MPN Voice
4 years ago
ET progressed to Myelofibrosis
I was discharged from hospital yesterday, originally admitted with shortness of breath but was soon diagnosed with
Myelofibrosis
. It was a huge shock as my haematologist has repeatedly told me that my falling blood counts could not be MF as my WBC were falling.
I was discharged from hospital yesterday, originally admitted with shortness of breath but was soon diagnosed with
Myelofibrosis
. It was a huge shock as my haematologist has repeatedly told me that my falling blood counts could not be MF as my WBC were falling.
Otterfield
in
MPN Voice
4 years ago
My Covid-19 experience – so far
I have had
Myelofibrosis
since 2010 and have been on Ruxolitinib since late 2013. On Saturday 19th September I was at home watching TV in the evening and felt what seemed to be an insect bite in my right side about waist high. There were no insects around and there seemed to be 3 tiny spots.
I have had
Myelofibrosis
since 2010 and have been on Ruxolitinib since late 2013. On Saturday 19th September I was at home watching TV in the evening and felt what seemed to be an insect bite in my right side about waist high. There were no insects around and there seemed to be 3 tiny spots.
MichaelS
in
MPN Voice
4 years ago
Cytogenetics showed dup(1q)
Have just received a copy of the last phone consultation under diagnosis: polycythemia vera 1997 JAK2 V617F positive/Post polycythemia
myelofibrosis
2019, came this it wasn't mentioned in the call.
Have just received a copy of the last phone consultation under diagnosis: polycythemia vera 1997 JAK2 V617F positive/Post polycythemia
myelofibrosis
2019, came this it wasn't mentioned in the call.
Kabuki
in
MPN Voice
4 years ago
5th Anniversary
Hi Folks , , many of you will be aware of my Stem Cell Transplant for Primary
Myelofibrosis
which happened 5 years ago today. . It wasn't an easy ride in my case and my battle with Graft Versus Host Disease is well documented on the Forum.
Hi Folks , , many of you will be aware of my Stem Cell Transplant for Primary
Myelofibrosis
which happened 5 years ago today. . It wasn't an easy ride in my case and my battle with Graft Versus Host Disease is well documented on the Forum.
JediReject
in
MPN Voice
4 years ago
Is Anyone using Reblozyl (luspatercept) for anemia due to MPN/ Hydroxyurea?
Hi everyone, I've been taking Aranesp injections for 2 years for severe anemia due to
myelofibrosis
/ET and also side effects of hydroxy. The Aranesp stopped working, and I've been taking luspatercept injections for the last 9 weeks.
Hi everyone, I've been taking Aranesp injections for 2 years for severe anemia due to
myelofibrosis
/ET and also side effects of hydroxy. The Aranesp stopped working, and I've been taking luspatercept injections for the last 9 weeks.
goodluckjoe
in
MPN Voice
4 years ago
JAK v617f tests
Hi all I have a diagnosis of CALR positive Primary
Myelofibrosis
with ASXL1. My haematologist has suggested I have a JAK v617f disease burden test but that this test isn’t available with NHS funding (at least in my local health authority area).
Hi all I have a diagnosis of CALR positive Primary
Myelofibrosis
with ASXL1. My haematologist has suggested I have a JAK v617f disease burden test but that this test isn’t available with NHS funding (at least in my local health authority area).
ConniesDad
in
MPN Voice
4 years ago
Welcome
I am Chris, 67 year old male, from the uk and I was diagnosed with
Myelofibrosis
in 2010 for which I had a stem cell transplant (SCT) in 2011. Yes I had a small amount of gvhd (graft versus host disease) but not much and I am several years clear of it.
I am Chris, 67 year old male, from the uk and I was diagnosed with
Myelofibrosis
in 2010 for which I had a stem cell transplant (SCT) in 2011. Yes I had a small amount of gvhd (graft versus host disease) but not much and I am several years clear of it.
MFBMT2011
in
MPN Voice
4 years ago
Longterm Interferon treatment
Does it help prevent transition to
myelofibrosis
? Thank you my fellow travelers!
Does it help prevent transition to
myelofibrosis
? Thank you my fellow travelers!
Loooonglife
in
MPN Voice
4 years ago
Illuminating novel biological aspects and potential new therapeutic approaches for chronic myeloproliferative malignancies
In MPNs, we focus on efforts beyond JAK‐STAT and the merits of integrating activin receptor ligand traps, interferon‐α, and allografting in the current treatment algorithm for patients with
myelofibrosis
(MF). https://onlinelibrary.wiley.com/doi/abs/10.1002/hon.2771#.XvpmuWq35SE.twitter
In MPNs, we focus on efforts beyond JAK‐STAT and the merits of integrating activin receptor ligand traps, interferon‐α, and allografting in the current treatment algorithm for patients with
myelofibrosis
(MF). https://onlinelibrary.wiley.com/doi/abs/10.1002/hon.2771#.XvpmuWq35SE.twitter
Manouche
in
MPN Voice
4 years ago
Myelofibrosis advice
Im new here.just one previous post.My bone marrow test results show after waiting 7 weks that i have primary myelofibrosis.I am upset that it is worse than I thought.I dont seem to be able to get any straight answers about life expectancy and really how I am going to be feeling and how soon. I have
Im new here.just one previous post.My bone marrow test results show after waiting 7 weks that i have primary myelofibrosis.I am upset that it is worse than I thought.I dont seem to be able to get any straight answers about life expectancy and really how I am going to be feeling and how soon. I have
caroline_284
in
MPN Voice
4 years ago
The Myeloproliferative Neoplasm Landscape: A Patient’s Eye View
Jonathan Mathias ABSTRACT Patients with myeloproliferative neoplasms (MPNs), a group of rare haematological conditions including polycythaemia vera, essential thrombocythaemia, and
myelofibrosis
, often experience a range of symptoms which can significantly impact their quality of life (QoL).
Jonathan Mathias ABSTRACT Patients with myeloproliferative neoplasms (MPNs), a group of rare haematological conditions including polycythaemia vera, essential thrombocythaemia, and
myelofibrosis
, often experience a range of symptoms which can significantly impact their quality of life (QoL).
socrates_8
in
MPN Voice
4 years ago
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