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Low MCHC
Hello all. I have a new aspect of my cbc report that has just become Low. It is MCHC. Normal is 31.0 gm/dL to 36.5. I am now 30.7. I would love comments from any others who have had low MCHC. Did you eventually need oxygen. Did they start treatment due to this? How low can it go before you physically
Hello all. I have a new aspect of my cbc report that has just become Low. It is MCHC. Normal is 31.0 gm/dL to 36.5. I am now 30.7. I would love comments from any others who have had low MCHC. Did you eventually need oxygen. Did they start treatment due to this? How low can it go before you physically
davidgrush
in
CLL Support
1 year ago
ALC is still going up
Well, today I had another CBC. My ALC continues to go up consistently at each 2 week check and I will be seeing my onco at the beginning of Feb. In addition to the rising alc, test shows a few other little changes that i don't fully understand -- my MCV is now reading high (99.50) and my MCHC is low
Well, today I had another CBC. My ALC continues to go up consistently at each 2 week check and I will be seeing my onco at the beginning of Feb. In addition to the rising alc, test shows a few other little changes that i don't fully understand -- my MCV is now reading high (99.50) and my MCHC is low
Moonmyst
in
CLL Support
1 year ago
CLL Staging
Hello. My husband, Simon, was diagnosed with CLL several years ago and has been closely monitored. On his last visit to his consultant he was told that he needs to start treatment. Either Rituximab or Venetoclax. My husband is always dismissive of his condition and does not want to discuss with me
Hello. My husband, Simon, was diagnosed with CLL several years ago and has been closely monitored. On his last visit to his consultant he was told that he needs to start treatment. Either Rituximab or Venetoclax. My husband is always dismissive of his condition and does not want to discuss with me
Rocky0181
in
CLL Support
1 year ago
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Husband's last O Infusion rescheduled due to low Neutrophils and WBC
UPDATE: After a week off of all meds, Absolute Neutrofils have gone DOWN to .60, Absolute Eosinophils down to 0. He will start on GCSF Infusions tomorrow for 4 days. His Specialist is confident that his numbers will go up for FINAL infusion next week. At that point dosage of Venetoclax will be reduced
UPDATE: After a week off of all meds, Absolute Neutrofils have gone DOWN to .60, Absolute Eosinophils down to 0. He will start on GCSF Infusions tomorrow for 4 days. His Specialist is confident that his numbers will go up for FINAL infusion next week. At that point dosage of Venetoclax will be reduced
lisakc1
in
CLL Support
1 year ago
HOLIDAY INSURANCE.
Hello everyone, I was diagnosed with CLL in August 2018 and so far have remained on watch and wait. In September 2019, I had successful surgery for colon cancer, had a stoma for 6 months and then a reversal and have been "all clear" since then. Also, as a bonus, the chemo I had for the colon cancer
Hello everyone, I was diagnosed with CLL in August 2018 and so far have remained on watch and wait. In September 2019, I had successful surgery for colon cancer, had a stoma for 6 months and then a reversal and have been "all clear" since then. Also, as a bonus, the chemo I had for the colon cancer
donevning2213
in
CLL Support
1 year ago
genetic test results
Hello CLL fellows and Specialists, Hematologists I want to share my experience here. We have been fortunate to meet Dr. Christen Chen at the Princes Margaret Cancer Hospital in Toronto. She is very kind and friendly. She has ordered several tests one of them is a FISH test and it is reported as trisomy
Hello CLL fellows and Specialists, Hematologists I want to share my experience here. We have been fortunate to meet Dr. Christen Chen at the Princes Margaret Cancer Hospital in Toronto. She is very kind and friendly. She has ordered several tests one of them is a FISH test and it is reported as trisomy
Sagarcanada
in
CLL Support
1 year ago
Patient Power's MOST-READ ARTICLEs for 2022
MOST-READ ARTICLE What Does My Lymphocyte Count Mean? If you’ve had a complete blood count blood test and are wondering what the results for the white blood cells — or lymphocytes — mean, you’re not alone. LEARN MORE https://www.patientpower.info/navigating-cancer/what-does-my-lymphocyte-count-mean
MOST-READ ARTICLE What Does My Lymphocyte Count Mean? If you’ve had a complete blood count blood test and are wondering what the results for the white blood cells — or lymphocytes — mean, you’re not alone. LEARN MORE https://www.patientpower.info/navigating-cancer/what-does-my-lymphocyte-count-mean
lankisterguy
Volunteer
in
CLL Support
1 year ago
Latest Consultation/Bloods
Hi I am in UK. I have just had, in November, my consultation with haematologist to check bloods. I am on watch and wait. All looks stable. The key markers were: Hb 136, white cells 14.9, platelets 253, neutrophils 3, lymphocytes 11.3, creatine 59, CRP less than 1, LDH 215, immunoglobulins normal.
Hi I am in UK. I have just had, in November, my consultation with haematologist to check bloods. I am on watch and wait. All looks stable. The key markers were: Hb 136, white cells 14.9, platelets 253, neutrophils 3, lymphocytes 11.3, creatine 59, CRP less than 1, LDH 215, immunoglobulins normal.
Divisidero
in
CLL Support
1 year ago
Mini Oven Recommendations
I love to cook. It has always been my favourite hobby and relaxation. However, I struggle with chopping and slicing these days ..... Food processor has helped no end on this front. But my biggest problem is getting things out of the wall oven and while HM is fantastic at lifting heavy things for me
I love to cook. It has always been my favourite hobby and relaxation. However, I struggle with chopping and slicing these days ..... Food processor has helped no end on this front. But my biggest problem is getting things out of the wall oven and while HM is fantastic at lifting heavy things for me
LhasaMomma
in
Fibromyalgia Action UK
1 year ago
Richters maybe
Well, the dreaded word Richters has come up. Next week going in for a lymph node biopsy and full body Pet/CT scan. Send positive thoughts my way please.
Well, the dreaded word Richters has come up. Next week going in for a lymph node biopsy and full body Pet/CT scan. Send positive thoughts my way please.
Alex830
in
CLL Support
1 year ago
Am Iwell?
I have my bi-monthly consultant review next week, which always starts with the question, well how are you? My usual reaction, is that perhaps you should tell me! I have just got the results (After 1 hour) of my latest blood test but I'm not sure which questions to ask. I started treatment with 6xRituximab
I have my bi-monthly consultant review next week, which always starts with the question, well how are you? My usual reaction, is that perhaps you should tell me! I have just got the results (After 1 hour) of my latest blood test but I'm not sure which questions to ask. I started treatment with 6xRituximab
Dawson21
in
CLL Support
1 year ago
He’s home! Hurrah!
After 7 weeks in hospital my husband is home. Initially they were treating him for an infection and no antibiotics were touching it. It was only when they got the bone marrow culture showing Hodgkins transformation that he turned a corner. The ABVD chemo was a game changer. He had two chemos in hospital
After 7 weeks in hospital my husband is home. Initially they were treating him for an infection and no antibiotics were touching it. It was only when they got the bone marrow culture showing Hodgkins transformation that he turned a corner. The ABVD chemo was a game changer. He had two chemos in hospital
Fowey2009
in
CLL Support
1 year ago
Allopurinol with V &O treatment for CLL
Has ànyone taken Allopurinol to prevent tumor lysis with Gazyva and Venclexta treatment? How long did you take it and has anyone had an allergic reaction to it?
Has ànyone taken Allopurinol to prevent tumor lysis with Gazyva and Venclexta treatment? How long did you take it and has anyone had an allergic reaction to it?
Gradyboy
in
CLL Support
1 year ago
My MD Anderson doctor is leaving
I received a letter on Saturday that my oncologist at MD Anderson, Dr. Philip Thompson, is leaving effective January 3, 2023. Nooooooooo! Dr. Thompson is originally from Australia and has made the decision to return to Melbourne and join the Low-Grade Lymphoma and CLL group at the Peter MacCallum Cancer
I received a letter on Saturday that my oncologist at MD Anderson, Dr. Philip Thompson, is leaving effective January 3, 2023. Nooooooooo! Dr. Thompson is originally from Australia and has made the decision to return to Melbourne and join the Low-Grade Lymphoma and CLL group at the Peter MacCallum Cancer
Lisa-1959
in
CLL Support
1 year ago
Starting treatment
Hello everyone, I've been on W&W Since Jan 2020. Two weeks ago at my consultation my consultant said its time for treatment, that week I had a CT scan, blood tests and an echo heart test. My next step I assumed would be a meeting regarding my treatment, however she called today to say I need a pet
Hello everyone, I've been on W&W Since Jan 2020. Two weeks ago at my consultation my consultant said its time for treatment, that week I had a CT scan, blood tests and an echo heart test. My next step I assumed would be a meeting regarding my treatment, however she called today to say I need a pet
mfc86
in
CLL Support
1 year ago
Internet censorship?
Internet censorship of medical information? As I mentioned before, I had anaphylactic shock during first infusion with obinutuzumab, which does not appear to be uncommon. There was a man across from me in my last infusion group who had same reaction. Quick witted infusion nurse jabbed me with EpiPen
Internet censorship of medical information? As I mentioned before, I had anaphylactic shock during first infusion with obinutuzumab, which does not appear to be uncommon. There was a man across from me in my last infusion group who had same reaction. Quick witted infusion nurse jabbed me with EpiPen
Big_Dee
in
CLL Support
1 year ago
test interpretation
I have a rather long summary page from my flow cytrometry test and I understand none of it. Can someone here please help? translate to common language I can understand? I apologize if this is not the right thing to post. I had to push to get the test done as within this past year my lymphocytes and white
I have a rather long summary page from my flow cytrometry test and I understand none of it. Can someone here please help? translate to common language I can understand? I apologize if this is not the right thing to post. I had to push to get the test done as within this past year my lymphocytes and white
DianeSH
in
CLL Support
2 years ago
All good things must come to an end
I just had my 3 month checkup and it looks like my Ibrutinib is starting to stop keeping my counts in check. They have not gone crazy but have been slowing rising this past year and actually doubled over a 6 month period. My Doctor thinks it's probably good to look at another treatment while I am still
I just had my 3 month checkup and it looks like my Ibrutinib is starting to stop keeping my counts in check. They have not gone crazy but have been slowing rising this past year and actually doubled over a 6 month period. My Doctor thinks it's probably good to look at another treatment while I am still
rcusher
in
CLL Support
2 years ago
Another 6 month checkup done
Hi all. I just thought I would share my good news. After the last 6 months of having a tooth removal, a root canal, 7 crowns and a bridge all under a general anesthetic and finally getting to go on our postponed dive holiday to South East Sulawesi Indonesia from 2020, it was more good vibes with all
Hi all. I just thought I would share my good news. After the last 6 months of having a tooth removal, a root canal, 7 crowns and a bridge all under a general anesthetic and finally getting to go on our postponed dive holiday to South East Sulawesi Indonesia from 2020, it was more good vibes with all
Dragonspen
in
CLL Support
2 years ago
Vitamin K2 for bones - how much, how frequent?
Hi, I have random question for anyone on here who is taking Vitamin K2 to support their calcium/magnesium/D3 intake for bones compromised by coeliac and/or allergic or intolerant to dairy. I do take a dropper type of K2 (oil based) which is pricey, and looking at cheaper brands that are pill based (basic
Hi, I have random question for anyone on here who is taking Vitamin K2 to support their calcium/magnesium/D3 intake for bones compromised by coeliac and/or allergic or intolerant to dairy. I do take a dropper type of K2 (oil based) which is pricey, and looking at cheaper brands that are pill based (basic
Hidden
in
Gluten Free Guerrillas
2 years ago
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