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Cancer again
Has anyone gotten a secondary cancer while on W & W ? I had breast cancer two years ago and had a lumpectomy with no chemo or radiation. My cancer is now back in same breast. Thinking of a mastectomy this time but still concerned that the CLL might be an underlying cause. Any comments would be very
Has anyone gotten a secondary cancer while on W & W ? I had breast cancer two years ago and had a lumpectomy with no chemo or radiation. My cancer is now back in same breast. Thinking of a mastectomy this time but still concerned that the CLL might be an underlying cause. Any comments would be very
1962jns
in
CLL Support
3 years ago
Hija
We’ll I am on hydroxycarbamide, same thing , because I have Polycythemia Vera , also diagnosed in 2018, also very rare. I t belongs to the same group of blood cancer. I still get itchy skin, fatigue , feeling hot at night and have developed a fatty liver. I have done well on my meds overall. If you
We’ll I am on hydroxycarbamide, same thing , because I have Polycythemia Vera , also diagnosed in 2018, also very rare. I t belongs to the same group of blood cancer. I still get itchy skin, fatigue , feeling hot at night and have developed a fatty liver. I have done well on my meds overall. If you
Triergirl55
in
MPN Voice
3 years ago
Is there anyone with M.E. and CLL ?
is there anyone especially in the UK , with Myalgic Encephalomyelitis. (M E ) and. CLL ? As you can see on my profile I was diagnosed with ME a long time ago and then in 2013 also with CLL. I am still on watch and wait but particularly interested if anyone with ME and CLL has had treatment as I
is there anyone especially in the UK , with Myalgic Encephalomyelitis. (M E ) and. CLL ? As you can see on my profile I was diagnosed with ME a long time ago and then in 2013 also with CLL. I am still on watch and wait but particularly interested if anyone with ME and CLL has had treatment as I
Greencyclist
in
CLL Support
3 years ago
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COVID-19 Mortality, Hospitalization Risk Higher in Patients With Blood Cancers
We've discussed this often here. This is the latest from ASH 2021. Of interest: <<Patients with MPN and plasma cell dyscrasia had less severe COVID-19 illness overall compared to patients with CLL, leukemia, MDS, or lymphoma.>> https://www.pharmacytimes.com/view/covid-19-mortality-hospitalization-risk-higher-in-patients-with-blood-cancers
We've discussed this often here. This is the latest from ASH 2021. Of interest: <<Patients with MPN and plasma cell dyscrasia had less severe COVID-19 illness overall compared to patients with CLL, leukemia, MDS, or lymphoma.>> https://www.pharmacytimes.com/view/covid-19-mortality-hospitalization-risk-higher-in-patients-with-blood-cancers
EPguy
in
MPN Voice
3 years ago
ASH 2021 -- cytopenic myelofibrosis
I've been checking out the Hematology conference. For cytopenic myelofibrosis a Phase 3 trial PERSIST-2 reports pacritinib has advantages over Rux. https://www.cancernetwork.com/view/treatment-with-tafasitamab-lenalidomide-and-r-chop-yields-promising-activity-in-untreated-dlbcl <<Among the 43 patients
I've been checking out the Hematology conference. For cytopenic myelofibrosis a Phase 3 trial PERSIST-2 reports pacritinib has advantages over Rux. https://www.cancernetwork.com/view/treatment-with-tafasitamab-lenalidomide-and-r-chop-yields-promising-activity-in-untreated-dlbcl <<Among the 43 patients
EPguy
in
MPN Voice
3 years ago
Is inositol, hexaphosphate form, bad for CLL?
Hi, all. IP6 (a form of inositol called inositol hexaphosphate readily available as a supplement) has been shown to be very anti-cancer, including at least one blood cancer, AML I think. However, as I read about how it works, it seems to indicate that it increases or activates Bruton Tyrosine Kinase
Hi, all. IP6 (a form of inositol called inositol hexaphosphate readily available as a supplement) has been shown to be very anti-cancer, including at least one blood cancer, AML I think. However, as I read about how it works, it seems to indicate that it increases or activates Bruton Tyrosine Kinase
Vlaminck
in
CLL Support
3 years ago
Summary Paper from Drs, Claire N. Harrison and Donal P. McLornan
Nice summary I just came across from some of the experts. I've included some outtakes I found notable. Lots more in there on R&D for MF. https://onlinelibrary.wiley.com/doi/pdf/10.1111/bjh.16573 From chart, HCT control matters. This was discovered ~2011 and is likely a big part of what we've discussed
Nice summary I just came across from some of the experts. I've included some outtakes I found notable. Lots more in there on R&D for MF. https://onlinelibrary.wiley.com/doi/pdf/10.1111/bjh.16573 From chart, HCT control matters. This was discovered ~2011 and is likely a big part of what we've discussed
EPguy
in
MPN Voice
3 years ago
Support leukaemia patients and sign our petition to keep universal access to free lateral flow tests
📜 In a recent poll by
Leukaemia
Care, 92% of patients said they benefitted from access to lateral flow tests, with 64% sharing that it benefitted their mental health.
📜 In a recent poll by
Leukaemia
Care, 92% of patients said they benefitted from access to lateral flow tests, with 64% sharing that it benefitted their mental health.
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
Venetoclax and calquence combo for Cll
Anyone have experience with V and Calquence together? My husband has been on calquence 4 months but Haemotolgist states his bone marrow still 80 to 90% full of cancerous lymphocytes. Doc wants V and R but husband has had no issues with Calquence and would prefer to stay on it along with Venetoclax. Lymphocytes
Anyone have experience with V and Calquence together? My husband has been on calquence 4 months but Haemotolgist states his bone marrow still 80 to 90% full of cancerous lymphocytes. Doc wants V and R but husband has had no issues with Calquence and would prefer to stay on it along with Venetoclax. Lymphocytes
smirnof
in
CLL Support
3 years ago
Mutations in MPNs to “interfere-on »
IFNα therapy has been shown to deplete the MPN HSPC pool through activation and exit from a quiescent state and induction of differentiation. These biological effects seem to be influenced by driver mutation status, JAK2V617F homozygosity, and dosing approach. The clinical implication of the findings
IFNα therapy has been shown to deplete the MPN HSPC pool through activation and exit from a quiescent state and induction of differentiation. These biological effects seem to be influenced by driver mutation status, JAK2V617F homozygosity, and dosing approach. The clinical implication of the findings
Manouche
in
MPN Voice
3 years ago
Leukaemia Care webinar - COVID-19 and leukaemia; what more do we know?
Helen is a clinical lecturer leading research into optimising vaccination strategies and minimising infection risk in patients with
leukaemia
Webinar details
Date: Tuesday 28th September Time: 4:30pm Topic: COVID-19 and
leukaemia
; what more do we know?
Helen is a clinical lecturer leading research into optimising vaccination strategies and minimising infection risk in patients with
leukaemia
Webinar details
Date: Tuesday 28th September Time: 4:30pm Topic: COVID-19 and
leukaemia
; what more do we know?
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
3.30pm 14th October webinar - Immunisations and living with the challenges of a compromised immune system with CLL
Leukaemia
Care have organised this webinar to follow on from yesterday's webinar for people affected by a diagnosis of CLL .
Leukaemia
Care have organised this webinar to follow on from yesterday's webinar for people affected by a diagnosis of CLL .
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
How do majority of CLL patients respond to Rituximab and venetoclax and what are common side effects?
Calquence not working to clear cll from bone marrow. Can person continue to do rather heavy work while on V and R?
Calquence not working to clear cll from bone marrow. Can person continue to do rather heavy work while on V and R?
smirnof
in
CLL Support
3 years ago
Shopping on AmazonSmile helps your CLL Charity!!!
I just received this for my CLL Society Charity: This is the quarterly notification to inform you that AmazonSmile has made a charitable donation to the charity you’ve selected, Leukemia & Lymphoma Society, in the amount of $79,087.73 as a result of qualifying purchases made by you and other customers
I just received this for my CLL Society Charity: This is the quarterly notification to inform you that AmazonSmile has made a charitable donation to the charity you’ve selected, Leukemia & Lymphoma Society, in the amount of $79,087.73 as a result of qualifying purchases made by you and other customers
WinJ3
in
CLL Support
3 years ago
The combinations are here...
Johnson today announced the submission of a Type II variation application to the European Medicines Agency (EMA) seeking approval of a new treatment option for IMBRUVICA® (ibrutinib) as a fixed-duration combination with venetoclax (I+V) for adult patients with previously untreated chronic lymphocytic
leukaemia
Johnson today announced the submission of a Type II variation application to the European Medicines Agency (EMA) seeking approval of a new treatment option for IMBRUVICA® (ibrutinib) as a fixed-duration combination with venetoclax (I+V) for adult patients with previously untreated chronic lymphocytic
leukaemia
MovingForward4423
in
CLL Support
3 years ago
Share with your contacts how they can become a spotty super hero during September for Blood Cancer Awareness Month! Or have a go yourself.
something to raise awareness for Spot
Leukaemia
.
something to raise awareness for Spot
Leukaemia
.
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
Just diagnosed
42 year old speech therapist diagnosed with large granular lymphocytic leukemia day after thanksgiving 2021. Haven’t had my first appointment yet. No idea what to ask or what treatments will he recommended.
42 year old speech therapist diagnosed with large granular lymphocytic leukemia day after thanksgiving 2021. Haven’t had my first appointment yet. No idea what to ask or what treatments will he recommended.
basketballmom645_US
in
Leukaemia Support
3 years ago
Wednesday is the start of Blood Cancer Awareness Month - Help raise awareness of the signs and symptoms of leukaemia to save lives
Currently, patients with
leukaemia
have a significantly higher rate of emergency diagnosis than other forms of cancer. The highest emergency presentation rates for any cancer type occur in acute lymphoblastic
leukaemia
(ALL), at 66% of patients.
Currently, patients with
leukaemia
have a significantly higher rate of emergency diagnosis than other forms of cancer. The highest emergency presentation rates for any cancer type occur in acute lymphoblastic
leukaemia
(ALL), at 66% of patients.
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
Myelofibrosis and nausea
Hi everyone. I was diagnosed with Prefibrotic Myelofibrosis 3 years ago and current take asprin and 500mg Hu 8 times a week. I take the medication in the mornings with breakfast. The last few weeks I have been waking feeling nauseous- once I have eaten it eases but if I am late having lunch it returns
Hi everyone. I was diagnosed with Prefibrotic Myelofibrosis 3 years ago and current take asprin and 500mg Hu 8 times a week. I take the medication in the mornings with breakfast. The last few weeks I have been waking feeling nauseous- once I have eaten it eases but if I am late having lunch it returns
kiwitraveller
in
MPN Voice
3 years ago
HELP—Positive COVID test
Hi all, I’m thankful for this community, I’m a long time reader, I don’t comment often but I need some advice tonight. My mom was diagnosed with CLL in Spring 2019. She is on ibrutinib and her lymphocytes have come down from 711 (!) in May 2019 to 98 a few months ago at her last appointment. She developed
Hi all, I’m thankful for this community, I’m a long time reader, I don’t comment often but I need some advice tonight. My mom was diagnosed with CLL in Spring 2019. She is on ibrutinib and her lymphocytes have come down from 711 (!) in May 2019 to 98 a few months ago at her last appointment. She developed
DaughterofCLLfighter
in
CLL Support
3 years ago
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