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Ruxolitinib/Pegylated Interferon Alpha 2a Reduces Spleen Length in Myelofibrosis
« Such deep molecular responses, to our knowledge, have never been seen in patients with myelofibrosis before,” Kiladjian noted » »A previously developed mathematical model for predicting long-term responses in patients with PV and ET was found to be applicable to this study and predicted a long-term
« Such deep molecular responses, to our knowledge, have never been seen in patients with myelofibrosis before,” Kiladjian noted » »A previously developed mathematical model for predicting long-term responses in patients with PV and ET was found to be applicable to this study and predicted a long-term
Manouche
in
MPN Voice
2 years ago
myelofibrosis
hello anyone with mf,I'm not sure if I should start treatment a lot of people on here are on treatment. my platelets are normal, hb slightly low ,slightly enlarged spleen ,fatigue is main symptom. I'm on watch and wait but should I be on something to stop the mf progressing.
hello anyone with mf,I'm not sure if I should start treatment a lot of people on here are on treatment. my platelets are normal, hb slightly low ,slightly enlarged spleen ,fatigue is main symptom. I'm on watch and wait but should I be on something to stop the mf progressing.
glyndale
in
MPN Voice
2 years ago
Teenager Leukaemia free after a world-first use of sophisticated cell engineering.
A 13-year-old girl who relapsed with a particular type of blood cancer is now
leukaemia
-free after a world-first use of what scientists have described as the most sophisticated cell engineering to date.https://www.independent.co.uk/news/science/scientists-medical-research-council-tcell-leicester-medics-b2242976
A 13-year-old girl who relapsed with a particular type of blood cancer is now
leukaemia
-free after a world-first use of what scientists have described as the most sophisticated cell engineering to date.https://www.independent.co.uk/news/science/scientists-medical-research-council-tcell-leicester-medics-b2242976
Juliette02
in
CLL Support
2 years ago
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Meet Henry
Spot
Leukaemia
News!!! Us and
Leukaemia
UK are excited to launch our new Spot
Leukaemia
video which aims to make the signs and symptoms the most memorable yet! Introducing Henry! He’s here to make the signs and symptoms of
leukaemia
memorable.
Spot
Leukaemia
News!!! Us and
Leukaemia
UK are excited to launch our new Spot
Leukaemia
video which aims to make the signs and symptoms the most memorable yet! Introducing Henry! He’s here to make the signs and symptoms of
leukaemia
memorable.
NicoleLeukaemiaCare
in
Leukaemia Support
2 years ago
CLL patients, we need your help!
We're submitting a case to The National Institute for Health and Care Excellence (NICE) to advocate for new chronic lymphocytic
leukaemia
(CLL) treatments on behalf of patients. But before we do we need you to share your experience of CLL treatments.
We're submitting a case to The National Institute for Health and Care Excellence (NICE) to advocate for new chronic lymphocytic
leukaemia
(CLL) treatments on behalf of patients. But before we do we need you to share your experience of CLL treatments.
LCAlex
in
Leukaemia Support
2 years ago
IgHV - unmutated and Acalabrutinib
He said thats another B cell
leukaemia
and we do tend to see genetic factors at play. So now I have to worry about passing this on to the kids! Just something to add to my worry machine. Kate
He said thats another B cell
leukaemia
and we do tend to see genetic factors at play. So now I have to worry about passing this on to the kids! Just something to add to my worry machine. Kate
Eucalyptus22
in
CLL Support
2 years ago
Faster growing CLL
Hi everyone, I was just reading the
Leukaemia
& Lymphoma Society section about CLL and it stated the following- [i]
People with the faster-growing variety may have:Enlarged lymph nodes. The nodes can compress nearby organs, causing them to function improperly.
Hi everyone, I was just reading the
Leukaemia
& Lymphoma Society section about CLL and it stated the following- [i]
People with the faster-growing variety may have:Enlarged lymph nodes. The nodes can compress nearby organs, causing them to function improperly.
Plentyuk80
in
CLL Support
2 years ago
Real-world treatments and thrombotic events in polycythemia vera patients in the USA
»The majority of patients in both risk groups (60% of high-risk and 83% of low-risk) initiated treatment with phlebotomy monotherapy, and during a median follow-up period of 808 days, the vast majority (81% low-risk, 74% high-risk) maintained their original therapy during the follow-up period. Hematocrit
»The majority of patients in both risk groups (60% of high-risk and 83% of low-risk) initiated treatment with phlebotomy monotherapy, and during a median follow-up period of 808 days, the vast majority (81% low-risk, 74% high-risk) maintained their original therapy during the follow-up period. Hematocrit
Manouche
in
MPN Voice
2 years ago
Real world experience with Besremi in ET and PV following exposure to Pegasys.
Abstract Despite widespread use of Pegylated forms of Inteferon in the management of Myeloproliferative Neoplasms (MPN), most clinicians have experience predominantly with peginterferon alfa-2a (Pegasys). Third generation pegylated IFNα, ropeginterferon alfa-2b (ropegIFN; Besremi), was recommended
Abstract Despite widespread use of Pegylated forms of Inteferon in the management of Myeloproliferative Neoplasms (MPN), most clinicians have experience predominantly with peginterferon alfa-2a (Pegasys). Third generation pegylated IFNα, ropeginterferon alfa-2b (ropegIFN; Besremi), was recommended
Manouche
in
MPN Voice
2 years ago
Happy New Year!
The year may be new, but our goal of being here for all those affected by
leukaemia
remains the same. With the festive period now over, our support services will resume as normal. ☎️If you ever need to chat, you can give us a call on our helpline on 08088010444.
The year may be new, but our goal of being here for all those affected by
leukaemia
remains the same. With the festive period now over, our support services will resume as normal. ☎️If you ever need to chat, you can give us a call on our helpline on 08088010444.
LCAlex
in
Leukaemia Support
2 years ago
A New Cell Therapy Trial for MF
Not sure if this has come up before. This company is focused on improving SCT for bone cancers with a new agent, Orca-T. https://orcabio.com/clinical-programs/ A phase 2 trial for MF had this result among others: "Regression of marrow fibrosis to MF grade 0 or 1 was noted by D+ 100 in 7 of 7 Orca-T
Not sure if this has come up before. This company is focused on improving SCT for bone cancers with a new agent, Orca-T. https://orcabio.com/clinical-programs/ A phase 2 trial for MF had this result among others: "Regression of marrow fibrosis to MF grade 0 or 1 was noted by D+ 100 in 7 of 7 Orca-T
EPguy
in
MPN Voice
2 years ago
Allele Burden (this is a different question - I PROMISE!!!)
3 years ago my blood was tested for Jak2. The report said: "My JAK2 mutation comprises > 60% of [u]
total JAK2
[/u], suggestive of a homozygous/hemizygous mutation. Patients with this type of mutation usually have more aggressive disease." I went on hydroxyurea in Dec 2021. My bloodwork was
3 years ago my blood was tested for Jak2. The report said: "My JAK2 mutation comprises > 60% of [u]
total JAK2
[/u], suggestive of a homozygous/hemizygous mutation. Patients with this type of mutation usually have more aggressive disease." I went on hydroxyurea in Dec 2021. My bloodwork was
ERei
in
MPN Voice
2 years ago
CAR-T availability in Australia
can anyone enlighten me on the current status of CAR-T availability for CLL patients in Australia? I’m aware it wasn’t available for CLL after a small trial a couple of years ago but is being used for other types of Blood Cancers. Thank you :)
can anyone enlighten me on the current status of CAR-T availability for CLL patients in Australia? I’m aware it wasn’t available for CLL after a small trial a couple of years ago but is being used for other types of Blood Cancers. Thank you :)
Billarina
in
CLL Support
2 years ago
Evosheld
Thank you for contacting me about support for people living with
leukaemia
. I recognise that the Covid-19 pandemic has had a significant impact on many people currently living with
Leukaemia
and other conditions.
Thank you for contacting me about support for people living with
leukaemia
. I recognise that the Covid-19 pandemic has had a significant impact on many people currently living with
Leukaemia
and other conditions.
kitchengardener2
in
CLL Support
2 years ago
Research Evaluating Risk of Richter Syndrome
Apologies if this has been posted before, do feel free to delete and re-direct me if so. It is of particular interest to me because my recent experience suggests that the NHS does not test for complex karyotype CLL (using Chromosome Banding Analysis). I know only that I had an aggressive presentation
Apologies if this has been posted before, do feel free to delete and re-direct me if so. It is of particular interest to me because my recent experience suggests that the NHS does not test for complex karyotype CLL (using Chromosome Banding Analysis). I know only that I had an aggressive presentation
jonathan7176
in
CLL Support
2 years ago
Happy New Year
The boarding of flight 2023 has been announced ....Your luggage should only contain three best souvenirs from 2022 .... The bad and sad moments should be left behind ..... The duration of the flight will be 12 months, with stops. So tighten your seat belt. The next stop overs will be: The Islands of
The boarding of flight 2023 has been announced ....Your luggage should only contain three best souvenirs from 2022 .... The bad and sad moments should be left behind ..... The duration of the flight will be 12 months, with stops. So tighten your seat belt. The next stop overs will be: The Islands of
kitchengardener2
in
CLL Support
2 years ago
Update on possible transformation to M f
I particularly wanted the white blood cell count as one reply mentioned that
leukaemia
involves high white counts. Thank you for all the replies and info.
I particularly wanted the white blood cell count as one reply mentioned that
leukaemia
involves high white counts. Thank you for all the replies and info.
lizzziep
in
MPN Voice
2 years ago
Night shift work
Hello. I work evenings on a hospital nursing unit. I am scheduled to work one night every two weeks. I will remain on evenings and do this cross shift in order to cover the short staff on nights. I am on watch and wait, have stage two CLL with enlarged spleen and a large number of B-cell Lymphomas
Hello. I work evenings on a hospital nursing unit. I am scheduled to work one night every two weeks. I will remain on evenings and do this cross shift in order to cover the short staff on nights. I am on watch and wait, have stage two CLL with enlarged spleen and a large number of B-cell Lymphomas
Taza1
in
CLL Support
2 years ago
Fascinating: Development of Venetoclax
For a few years, I've taken a breather from HU while focusing on full life rather than my CLL. I'm stepping up to post a new podcast from Dana Farber Hospital, which I found fascinating. Particularly for those on Venetoclax, or considering the drug, I couldn't resist sharing it. The Season 2 Trailer
For a few years, I've taken a breather from HU while focusing on full life rather than my CLL. I'm stepping up to post a new podcast from Dana Farber Hospital, which I found fascinating. Particularly for those on Venetoclax, or considering the drug, I couldn't resist sharing it. The Season 2 Trailer
starsafta
in
CLL Support
2 years ago
Genomic testing and clinical decision making in CLL from the (European) ERIC 2022 Meeting
Genomic testing and clinical decision making in CLL- These videos are from European CLL experts intended for medical professionals and presented at or connected with the ERIC 2022 Meeting- using Med-Speak. https://www.vjhemonc.com/feature/the-importance-of-genomic-testing-in-cll/ Advances
Genomic testing and clinical decision making in CLL- These videos are from European CLL experts intended for medical professionals and presented at or connected with the ERIC 2022 Meeting- using Med-Speak. https://www.vjhemonc.com/feature/the-importance-of-genomic-testing-in-cll/ Advances
lankisterguy
Volunteer
in
CLL Support
2 years ago
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