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Interferon
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Variations in Patient Response to interferons
I found this very interesting and wondering if anyone else on
interferon
has heard anything similar. I also found this reassuring since my goal is to eliminate the need for phlebotomies and am still waiting for that to happen after titrating up to 500 mcgs after a year on besremi.
I found this very interesting and wondering if anyone else on
interferon
has heard anything similar. I also found this reassuring since my goal is to eliminate the need for phlebotomies and am still waiting for that to happen after titrating up to 500 mcgs after a year on besremi.
mfh7
in
MPN Voice
1 year ago
No meds except warfrin
Hi is there anyone with PV been on hydroxy then pegusus
interferon
but due to negative side effects of both of these are currently taking warfrin only.Adiewon
Hi is there anyone with PV been on hydroxy then pegusus
interferon
but due to negative side effects of both of these are currently taking warfrin only.Adiewon
Hidden
in
MPN Voice
1 year ago
Anyone on interferon who has retinoschisis?
Hello I have ET and am getting more and more interested in changing from hydroxycarbemide to
interferon
Pegasus. I did note that a rare side effect is to cause problems with the retina.
Hello I have ET and am getting more and more interested in changing from hydroxycarbemide to
interferon
Pegasus. I did note that a rare side effect is to cause problems with the retina.
Na56
in
MPN Voice
1 year ago
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Interferon and CMR according to ChatGPT
While
interferon
therapy can help reduce the size of tumors and the number of cancer cells in the body, it is not always able to achieve a complete molecular response (CMR).
While
interferon
therapy can help reduce the size of tumors and the number of cancer cells in the body, it is not always able to achieve a complete molecular response (CMR).
Manouche
in
MPN Voice
1 year ago
Update appointment
Hi all, Been on 90mg pegasys
interferon
alpha 4 weeks now ,no side effects apart from a little cold tired after I've inject myself,after few days a do feel good in myself,my tinglings are still here in my feet not such much in my hands comes and goes,still get slightly headaches which I take paracetamols
Hi all, Been on 90mg pegasys
interferon
alpha 4 weeks now ,no side effects apart from a little cold tired after I've inject myself,after few days a do feel good in myself,my tinglings are still here in my feet not such much in my hands comes and goes,still get slightly headaches which I take paracetamols
Jody00
in
MPN Voice
1 year ago
ET JAK2 Positive
I have been on Aspirin and because my symptoms are not improving and have left me basically incapacitated my team are planning to start me on
Interferon
Alpha . I am kindly asking how’s the treatment and the side effects?? Does it worsen the fatigue or make it better ?? Thanks
I have been on Aspirin and because my symptoms are not improving and have left me basically incapacitated my team are planning to start me on
Interferon
Alpha . I am kindly asking how’s the treatment and the side effects?? Does it worsen the fatigue or make it better ?? Thanks
Afya23
in
MPN Voice
1 year ago
Discovery of a signaling feedback circuit that defines interferon responses in myeloproliferative neoplasms- Published: 01 April 2022
This gets a little deep, but nonetheless may explain some things:
Abstract
Interferons (IFNs) are key initiators and effectors of the immune response against malignant cells and also directly inhibit tumor growth. IFNα is highly effective in the treatment of myeloproliferative neoplasms (MPNs
This gets a little deep, but nonetheless may explain some things:
Abstract
Interferons (IFNs) are key initiators and effectors of the immune response against malignant cells and also directly inhibit tumor growth. IFNα is highly effective in the treatment of myeloproliferative neoplasms (MPNs
PhysAssist
in
MPN Voice
1 year ago
Hydroxy v Interferon
Hello again, I wrote a post with same title 7 months ago and had a great and really helpful response and I want to thank you all. I had read and reread all your replies many times and have found them all incredibly supportive. I have had a pack of Pegasys in my fridge since November and TODAY is the
Hello again, I wrote a post with same title 7 months ago and had a great and really helpful response and I want to thank you all. I had read and reread all your replies many times and have found them all incredibly supportive. I have had a pack of Pegasys in my fridge since November and TODAY is the
RazB
in
MPN Voice
1 year ago
Stay on Bomedemstat or....not?
I may likely go back on H.U or try
interferon
, but the fatigue I hate. I guess I'm asking for your thoughts on my situation knowing it is support I'm seeking. Namaste
I may likely go back on H.U or try
interferon
, but the fatigue I hate. I guess I'm asking for your thoughts on my situation knowing it is support I'm seeking. Namaste
givingITMybest
in
MPN Voice
1 year ago
Ruxolitinib is intolerant, what should I do
Maybe it's because my situation is worse, because I've been feeling like I have PMF since 2012, but I wasn't diagnosed or intervened until 2017 when I was diagnosed and used
interferon
. I noticed that I began to have an intolerant reaction to Ruxolitinib when I was taking it for about 3 years.
Maybe it's because my situation is worse, because I've been feeling like I have PMF since 2012, but I wasn't diagnosed or intervened until 2017 when I was diagnosed and used
interferon
. I noticed that I began to have an intolerant reaction to Ruxolitinib when I was taking it for about 3 years.
merlisa
in
MPN Voice
4 months ago
struggling with ET symptoms after covid
I was diagnosed with JAK2 positive ET 2 years ago and up until early this week I was injecting 180mg of
interferon
weekly. My platelets have hovered around the 800 mark for some time so during an appointment with an MPN specialist they suggested changing my medication to Anegralide.
I was diagnosed with JAK2 positive ET 2 years ago and up until early this week I was injecting 180mg of
interferon
weekly. My platelets have hovered around the 800 mark for some time so during an appointment with an MPN specialist they suggested changing my medication to Anegralide.
FashionLover
in
MPN Voice
1 year ago
feeling quite fed up, is it possible that interferon doesn’t work for me?
my questions are - does
interferon
not work for everyone. Maybe I have stubborn platelets that won’t reduce with
interferon
?
my questions are - does
interferon
not work for everyone. Maybe I have stubborn platelets that won’t reduce with
interferon
?
Nickyanne
in
MPN Voice
1 year ago
diagnosed with Polycythemia Vera
They are hopeful with
interferon
injections it can be managed . They said i would of had this for 5 years maybe 8 because my blood results have not been right since 2015 and the signs were ignored by my GP.
They are hopeful with
interferon
injections it can be managed . They said i would of had this for 5 years maybe 8 because my blood results have not been right since 2015 and the signs were ignored by my GP.
Blonde25
in
MPN Voice
1 year ago
Risks of Pegasus?
I'm 79, with ET and JAK2. At present I take 500mg Hydroxy and 4×0.5 Anagrelide daily. My platelet count is 660 and slowly rising. I asked my consultant about changing to Pegasys but she said that interferons are not advised for the over-60s. Is this right? Why would my age make any difference? And will
I'm 79, with ET and JAK2. At present I take 500mg Hydroxy and 4×0.5 Anagrelide daily. My platelet count is 660 and slowly rising. I asked my consultant about changing to Pegasys but she said that interferons are not advised for the over-60s. Is this right? Why would my age make any difference? And will
Sivasi
in
MPN Voice
9 months ago
Update on Pegylated interferon and parastheasia
Hi I wondered if anyone out there who is experiencing the finger and feet numbness using Pegylated
interferon
treatment ,has a noticeable reduction with these symptoms after reducing /stopping the treatment?
Hi I wondered if anyone out there who is experiencing the finger and feet numbness using Pegylated
interferon
treatment ,has a noticeable reduction with these symptoms after reducing /stopping the treatment?
Bobadog
in
MPN Voice
1 year ago
PV and Sore legs
My consultant stopped Peg
Interferon
l must say it was a releif. Side effects are still a problem in particular restless legs. Soreness through the day and in particular at night so lm not getting to much sleep.
My consultant stopped Peg
Interferon
l must say it was a releif. Side effects are still a problem in particular restless legs. Soreness through the day and in particular at night so lm not getting to much sleep.
Hidden
in
MPN Voice
1 year ago
Does High symptom burden mean aggresive cancer?
Did they get better with
interferon
treatment?
Did they get better with
interferon
treatment?
Xuzy
in
MPN Voice
1 year ago
Questions regarding pegylated interferon
And where can I find the best information about pegylated
interferon
so I can make an informed decision? I have a follow up appointment in 3 months time... Many thanks, Lucy
And where can I find the best information about pegylated
interferon
so I can make an informed decision? I have a follow up appointment in 3 months time... Many thanks, Lucy
LRH77
in
MPN Voice
1 year ago
Update on appointments
Hi guys , got my letter threw post today with my results which was from 6th of March that would of been 4 weeks then off pegasys
interferon
, Hb - 127 WBC-5.1 Neutrophils-2.9 Platelets-475 Am due back on 17th of April to let them know in-between if I need too.
Hi guys , got my letter threw post today with my results which was from 6th of March that would of been 4 weeks then off pegasys
interferon
, Hb - 127 WBC-5.1 Neutrophils-2.9 Platelets-475 Am due back on 17th of April to let them know in-between if I need too.
Jody00
in
MPN Voice
1 year ago
Immune suppression caused by Urso
Urso suppresses the production of immunoglobulins IgA, IgG and IgM (although IgM is generally chronically raised in PBC) also B and T cells, Interleukin-2 Interleukin-4,
interferon
-gamma and thymocyte proliferation.
Urso suppresses the production of immunoglobulins IgA, IgG and IgM (although IgM is generally chronically raised in PBC) also B and T cells, Interleukin-2 Interleukin-4,
interferon
-gamma and thymocyte proliferation.
Skypony
in
PBC Foundation
3 months ago
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