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Interferon
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ET + Anagrelide
I have ET+CALR, became resistant to Hydrea and couldn't tolerate the side effects of
Interferon
. Now that I'm on Anagrelide (0.5mg twice a day) my platelets are in the 600,000's and I seem to tolerate it ok. However I deal with rapid heartbeats, headaches, fatigue, mood swings and dizziness.
I have ET+CALR, became resistant to Hydrea and couldn't tolerate the side effects of
Interferon
. Now that I'm on Anagrelide (0.5mg twice a day) my platelets are in the 600,000's and I seem to tolerate it ok. However I deal with rapid heartbeats, headaches, fatigue, mood swings and dizziness.
Zeppelin11
in
MPN Voice
11 days ago
painkillers for toothache
I have ET and am on Pegasys
Interferon
. Hello My question is, I have very bad toothache and can’t see a dentist for a couple of weeks ! I want to take a painkiller stronger than paracetamol? Has anyone been in a similar situation and was able to take something stronger ?
I have ET and am on Pegasys
Interferon
. Hello My question is, I have very bad toothache and can’t see a dentist for a couple of weeks ! I want to take a painkiller stronger than paracetamol? Has anyone been in a similar situation and was able to take something stronger ?
Abrams
in
MPN Voice
5 months ago
Monday MRI
Besremi is just so close to beta
interferon
and my labs just got controlled. Just praying for no change and I can maybe breathe for awhile! Thanks for all the support!
Besremi is just so close to beta
interferon
and my labs just got controlled. Just praying for no change and I can maybe breathe for awhile! Thanks for all the support!
KLCTJC
in
MPN Voice
4 months ago
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ET: Changing from HU to Jakafi or an Interferon treatment
Additionally does anyone know if it's possible to go from Jakafi to an
Interferon
(in case I don't tolerate Jakafi)? Many thanks in advance for details of any relevant experiences.
Additionally does anyone know if it's possible to go from Jakafi to an
Interferon
(in case I don't tolerate Jakafi)? Many thanks in advance for details of any relevant experiences.
Bodensee
in
MPN Voice
4 months ago
Hydroxyurea Side Effects
Fortunately changed doctors, and put on
Interferon
. Thanks for any feedback. Howard
Fortunately changed doctors, and put on
Interferon
. Thanks for any feedback. Howard
hsdale3
in
MPN Voice
2 months ago
Pegasys - Medicare Payment Options and Dosing Schedule
Also since I see people on different dosing intertervals and I pay per dose apparently - wonderting if 45 every two weeks the same as 90 monthly for a drug like
interferon
(and can the body handle that). thanks
Also since I see people on different dosing intertervals and I pay per dose apparently - wonderting if 45 every two weeks the same as 90 monthly for a drug like
interferon
(and can the body handle that). thanks
gvibes
in
MPN Voice
2 months ago
Pegasys for MF transitioning from hydroxycarbamide
The hematologist was talking about introducing pegasys
interferon
injections, after her 3 bags of red cells and a ferinject. She is worried about losing her head of hair, as it's a bit thinner than it was, and she doesn't want to lose it.
The hematologist was talking about introducing pegasys
interferon
injections, after her 3 bags of red cells and a ferinject. She is worried about losing her head of hair, as it's a bit thinner than it was, and she doesn't want to lose it.
jointpain
in
MPN Voice
4 months ago
Coincidence or not?
Diagnosed ET May 2017, started on Hydroxycabamide June 2018 and switched to
Interferon
in May this year. Whilst I was taking Hydroxy I had no periods for around 4 years, since coming off it and starting
Interferon
my periods have come back with a vengeance!
Diagnosed ET May 2017, started on Hydroxycabamide June 2018 and switched to
Interferon
in May this year. Whilst I was taking Hydroxy I had no periods for around 4 years, since coming off it and starting
Interferon
my periods have come back with a vengeance!
beckyluck
in
MPN Voice
7 months ago
Pegasys starting dose for PMF
I have read that must begin with a lower dose of
interferon
because of the adverse effects. Now platelets have reached 1200 because the reduction of Hydrea. I am really worried how will I react at 135 Pegasys. Has anyone the same situation like me? My hem dr. is not a MPN specialist.
I have read that must begin with a lower dose of
interferon
because of the adverse effects. Now platelets have reached 1200 because the reduction of Hydrea. I am really worried how will I react at 135 Pegasys. Has anyone the same situation like me? My hem dr. is not a MPN specialist.
Goldie41
in
MPN Voice
4 months ago
AST, ALT high
Hi, while been on
Interferon
journey my AST and ALT rocketed up high to 64 for ast and 92 for alt.Is this change a concern ? How can I maintain liver enzymes ? I am on a low carb high fat diet but I am using all the healthy ingredients. Not sure if related.
Hi, while been on
Interferon
journey my AST and ALT rocketed up high to 64 for ast and 92 for alt.Is this change a concern ? How can I maintain liver enzymes ? I am on a low carb high fat diet but I am using all the healthy ingredients. Not sure if related.
kamiilos
in
MPN Voice
5 months ago
Big Question
I see Monarch mentioned on another thread that he knew of others who progressed when they stopped and had to go on higher doses of Peg
interferon
. I would not want that. Thank you all for being here.
I see Monarch mentioned on another thread that he knew of others who progressed when they stopped and had to go on higher doses of Peg
interferon
. I would not want that. Thank you all for being here.
Planti
in
MPN Voice
6 months ago
COVID and Pegylated Interferon
At my last Haematology appointment the Dr told me that
Interferon
helps strengthen the immune system. I have also read that
Interferon
has been given to some patients with COVID to help with their recovery. I therefore wonder if the latest upcoming booster vaccination is required.
At my last Haematology appointment the Dr told me that
Interferon
helps strengthen the immune system. I have also read that
Interferon
has been given to some patients with COVID to help with their recovery. I therefore wonder if the latest upcoming booster vaccination is required.
AnitaJ
in
MPN Voice
8 months ago
changing medication
I’ve been on
interferon
95mcg for a year but with horrid side effects, however kept my blood in line. haem consultant suggested I come off over Xmas fir 6 weeks and my results have shown changes in all blood counts.
I’ve been on
interferon
95mcg for a year but with horrid side effects, however kept my blood in line. haem consultant suggested I come off over Xmas fir 6 weeks and my results have shown changes in all blood counts.
Sanga
in
MPN Voice
3 months ago
Low hemoglobin but high erythrocytes count
I have polycythemia vera and was on
interferon
for almost a year but had to stop it due to mental health side effects. Since then, it's been 2 years, I only take asprin 100mg daily.
I have polycythemia vera and was on
interferon
for almost a year but had to stop it due to mental health side effects. Since then, it's been 2 years, I only take asprin 100mg daily.
DariBee
in
MPN Voice
3 months ago
Trouble getting interferon?
We have talked about trying
interferon
, but my Dr is convinced that it is extremely hard if not impossible to get the drug right now. Has anyone else experienced a problem getting your hands on
interferon
? I live in North Idaho, so I'm not sure if our remoteness is part of the problem.
We have talked about trying
interferon
, but my Dr is convinced that it is extremely hard if not impossible to get the drug right now. Has anyone else experienced a problem getting your hands on
interferon
? I live in North Idaho, so I'm not sure if our remoteness is part of the problem.
Owl-fan
in
MPN Voice
7 months ago
New to MS group
Now the medication I wanted for my PV is alpha
interferon
, you will never find another autoimmune disease and cancer combo that is treated with
interferon
, weird! So, I convinced neurologist and oncologist to let me try it. My blood counts have now normalized after almost a year.
Now the medication I wanted for my PV is alpha
interferon
, you will never find another autoimmune disease and cancer combo that is treated with
interferon
, weird! So, I convinced neurologist and oncologist to let me try it. My blood counts have now normalized after almost a year.
KLCTJC
in
My MSAA Community
2 months ago
ET CALR
on daily Aspirin and started law does Anagrelide 0.5 twice was doubled to 4 tablets daily and a month later 6 tablets daily , unfortunately my platelets are still rising was now it’s 940 and my hematologist decided to change my medicine to Hydroxyurea 500 mg 2 capsules beside 5 Anagrelide daily ,,
interferon
on daily Aspirin and started law does Anagrelide 0.5 twice was doubled to 4 tablets daily and a month later 6 tablets daily , unfortunately my platelets are still rising was now it’s 940 and my hematologist decided to change my medicine to Hydroxyurea 500 mg 2 capsules beside 5 Anagrelide daily ,,
interferon
Neghdar73
in
MPN Voice
2 months ago
Starting Interferon - advice please
I am just about to start on
interferon
, lowest dose fortnightly 45mcg. I am interested in knowing what people's experience with side effects has been and how quickly these might have settled down. Also how quickly you started to experience benefits from the treatment..
I am just about to start on
interferon
, lowest dose fortnightly 45mcg. I am interested in knowing what people's experience with side effects has been and how quickly these might have settled down. Also how quickly you started to experience benefits from the treatment..
Mrs_Average
in
MPN Voice
6 months ago
Peg and rash
I changed to peg
interferon
in Oct 23 dose 45mg every fortnight. I have very dry skin and a rash on my arms,legs, chest and we're iv scratched sores that don't heal.
I changed to peg
interferon
in Oct 23 dose 45mg every fortnight. I have very dry skin and a rash on my arms,legs, chest and we're iv scratched sores that don't heal.
gbeam
in
MPN Voice
1 month ago
Chest pains & hypertension due to Interferon or Hydrea?
I took
Interferon
for the very first time a few months ago and ended up in the hospital 48 hours later with very high blood pressure, chest pains and shortness of breath. We tried reducing the dose over the months that followed, but my body didn't tolerate it well. I had to go on Hydrea.
I took
Interferon
for the very first time a few months ago and ended up in the hospital 48 hours later with very high blood pressure, chest pains and shortness of breath. We tried reducing the dose over the months that followed, but my body didn't tolerate it well. I had to go on Hydrea.
JustKeepSw1mming
in
MPN Voice
4 months ago
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