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Interferon beta-1b
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Medication choices after hydroxyurea
I've posted before about the challenges associated with HU and my own efforts to keep my sensitive digestive tract happy over the last 2 plus years. Unfortunately, this past week was a bit challenging with every possible bad digestive tract issue presenting itself. I'm on the mend but have to accept
I've posted before about the challenges associated with HU and my own efforts to keep my sensitive digestive tract happy over the last 2 plus years. Unfortunately, this past week was a bit challenging with every possible bad digestive tract issue presenting itself. I'm on the mend but have to accept
saltmarsh
in
MPN Voice
1 year ago
A very special interview with Nona Baker Co Chair of MPN Voice & Professor Claire Harrison
In this interview Professor Claire Harrison shares breaking news with up to date results from the MAJIC PV Study. Following a recent media article it also clarifies and reassures the importance of existing, very successful therapies such as Hydroxycarbamide and Interferons, which are used and reviewed
In this interview Professor Claire Harrison shares breaking news with up to date results from the MAJIC PV Study. Following a recent media article it also clarifies and reassures the importance of existing, very successful therapies such as Hydroxycarbamide and Interferons, which are used and reviewed
Debinha
Administrator
in
MPN Voice
1 year ago
Frequent traveler dealing with ET and concerns
Hello everybody, I was diagnosed with ET (presumably at least) 6 years ago. I started with Anagrelide and found it did not work for me since I developed heart racing. Therefore, I was put onto Interferon. Though it worked, I found dealing with health insurance and taking the vaccines onto planes quite
Hello everybody, I was diagnosed with ET (presumably at least) 6 years ago. I started with Anagrelide and found it did not work for me since I developed heart racing. Therefore, I was put onto Interferon. Though it worked, I found dealing with health insurance and taking the vaccines onto planes quite
marinescientist
in
MPN Voice
1 year ago
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Debating about starting Interferon
I have had PV for about 4 months now & have been pretty much asymptotic aside from numbness in my left foot and left hand (which is pretty scary & uncomfortable) . I have been having some pretty bad anxiety since being diagnosed because I’m so young (26) & am hoping that won’t interfere with me starting
I have had PV for about 4 months now & have been pretty much asymptotic aside from numbness in my left foot and left hand (which is pretty scary & uncomfortable) . I have been having some pretty bad anxiety since being diagnosed because I’m so young (26) & am hoping that won’t interfere with me starting
Nrl303
in
MPN Voice
1 year ago
Absence of joint pains
I used to suffer from joint pains, back, leg, occasionally hip. Diagnosed ET (Calr+) about 15 months ago and prescribed Peg. Interferon. Well, for the past few months, I’ve not experienced any joint pains whatsoever. Is this just coincidental or would that be the effect of interferon? Views welcome
I used to suffer from joint pains, back, leg, occasionally hip. Diagnosed ET (Calr+) about 15 months ago and prescribed Peg. Interferon. Well, for the past few months, I’ve not experienced any joint pains whatsoever. Is this just coincidental or would that be the effect of interferon? Views welcome
gilded
in
MPN Voice
1 year ago
ET and RA
Hello everyone, haven’t been on here for a while. I’ve been trying to sort things out after being told I now have RA too. It’s been a long process for consultants to find any medication I can take as I can’t take the standard prescribed RA medication as it interferes with others I’m on. I also have
Hello everyone, haven’t been on here for a while. I’ve been trying to sort things out after being told I now have RA too. It’s been a long process for consultants to find any medication I can take as I can’t take the standard prescribed RA medication as it interferes with others I’m on. I also have
Jynx93
in
MPN Voice
1 year ago
Travelling with Interferon
Hi folks I’m travelling abroad for first time for 5 years and from memory, I previously had to carry a letter from my consultant as justification for carrying my peg on the plane (presumably as it’s a needle). Does anyone who has travelled recently know if this is still the case? Thanks in advance
Hi folks I’m travelling abroad for first time for 5 years and from memory, I previously had to carry a letter from my consultant as justification for carrying my peg on the plane (presumably as it’s a needle). Does anyone who has travelled recently know if this is still the case? Thanks in advance
PT99
in
MPN Voice
1 year ago
MPN Voice Vlogcasts – In Conversation With… Alisia O’Sullivan, ET patient & MPN Voice volunteer
MPN Voice Vlogcasts – In Conversation With… a series of monthly informal conversations with members of the MPN community with Nona co-chair of MPN Voice and a MPN patient herself. The vlogcasts can be viewed on the MPN Voice YouTube channel. The 16th vlogcast in the series is - In Conversation With
MPN Voice Vlogcasts – In Conversation With… a series of monthly informal conversations with members of the MPN community with Nona co-chair of MPN Voice and a MPN patient herself. The vlogcasts can be viewed on the MPN Voice YouTube channel. The 16th vlogcast in the series is - In Conversation With
Mazcd
MPNVoice
in
MPN Voice
1 year ago
Can you come off Thyroxine permanently?
Hi everyone I have asked this question before but here i am again!I have been on Thyroxine for around 8yrs due to Interferon causing my thyroid to become very overactive at first then becoming underactive! The question i would like to ask is i have read that if your thyroid numbers are normal
Hi everyone I have asked this question before but here i am again!I have been on Thyroxine for around 8yrs due to Interferon causing my thyroid to become very overactive at first then becoming underactive! The question i would like to ask is i have read that if your thyroid numbers are normal
ballie52
in
Thyroid UK
1 year ago
pseudohyperkalemia
update from recent doctor discussion. She agreed we proved Pseudohyperkalemia. This week’s blood testing adventure again triggered unnecessary attention but perhaps needed attention as the issue of invalid blood samples had to get attention. The first step was again getting a second blood test at
update from recent doctor discussion. She agreed we proved Pseudohyperkalemia. This week’s blood testing adventure again triggered unnecessary attention but perhaps needed attention as the issue of invalid blood samples had to get attention. The first step was again getting a second blood test at
Mishie14
in
MPN Voice
1 year ago
Ruxolitinib Versus Best Available Therapy for Polycythemia Vera Intolerant or Resistant to Hydroxycarbamide in a Randomized Trial
« Patients with PV often have high JAK2 V 617F VAF (>50%) because of the emergence of a dominant clone with concurrent loss of wild-type JAK2, which in turn is associated with increased risk of vascular events and transformation to myelofibrosis. In MPN, unlike other hematologic malignancies, for example
« Patients with PV often have high JAK2 V 617F VAF (>50%) because of the emergence of a dominant clone with concurrent loss of wild-type JAK2, which in turn is associated with increased risk of vascular events and transformation to myelofibrosis. In MPN, unlike other hematologic malignancies, for example
Manouche
in
MPN Voice
1 year ago
Interferon
Hi my name is Denise I have been asked by Haematology consultant to consider starting on Interferon but I am worried about side effects. Particularly hair loss.
Hi my name is Denise I have been asked by Haematology consultant to consider starting on Interferon but I am worried about side effects. Particularly hair loss.
Mudmaker
in
MPN Voice
1 year ago
Coping with itchiness and side effects of peg-interferon
Hi everyone, I'm new to this forum and relatively new to pegylated interferon. I haven't really had the side effects I was expecting but after a month or so on it my skin is now so itchy that it's extremely painful to shower or to have any water touch my skin, basically. Does anyone have any experience
Hi everyone, I'm new to this forum and relatively new to pegylated interferon. I haven't really had the side effects I was expecting but after a month or so on it my skin is now so itchy that it's extremely painful to shower or to have any water touch my skin, basically. Does anyone have any experience
emcee19
in
MPN Voice
1 year ago
Discovery of a signaling feedback circuit that defines interferon responses in myeloproliferative neoplasms- Published: 01 April 2022
This gets a little deep, but nonetheless may explain some things:
Abstract
Interferons (IFNs) are key initiators and effectors of the immune response against malignant cells and also directly inhibit tumor growth. IFNα is highly effective in the treatment of myeloproliferative neoplasms (MPNs
This gets a little deep, but nonetheless may explain some things:
Abstract
Interferons (IFNs) are key initiators and effectors of the immune response against malignant cells and also directly inhibit tumor growth. IFNα is highly effective in the treatment of myeloproliferative neoplasms (MPNs
PhysAssist
in
MPN Voice
1 year ago
struggling with ET symptoms after covid
Hi all. I was diagnosed with JAK2 positive ET 2 years ago and up until early this week I was injecting 180mg of interferon weekly. My platelets have hovered around the 800 mark for some time so during an appointment with an MPN specialist they suggested changing my medication to Anegralide. Before mid
Hi all. I was diagnosed with JAK2 positive ET 2 years ago and up until early this week I was injecting 180mg of interferon weekly. My platelets have hovered around the 800 mark for some time so during an appointment with an MPN specialist they suggested changing my medication to Anegralide. Before mid
FashionLover
in
MPN Voice
1 year ago
Good good news I am doing so much better
hello hello 👋 to each and every warrior fighting the good fight with whatever ails you I hope that you are all as well as your body is allowing you to be Well now have battled IBS (GP misdiagnosed as pancreatic cancer after she didn’t read the radiographers report stating no cancer detected no masses
hello hello 👋 to each and every warrior fighting the good fight with whatever ails you I hope that you are all as well as your body is allowing you to be Well now have battled IBS (GP misdiagnosed as pancreatic cancer after she didn’t read the radiographers report stating no cancer detected no masses
Arpin
in
IBS Network
1 year ago
Besremi - Dosing Change
I consulted my hematologist after having 3 months of low WBC, RBC, and HCT. I followed his suggestion to inject 100 mcg of Besremi every month instead of of bi-weekly, This dose is consistent with the manufacturer's recommendation and I quote from Pharma Essentia website: "BESREMi is not chemotherapy
I consulted my hematologist after having 3 months of low WBC, RBC, and HCT. I followed his suggestion to inject 100 mcg of Besremi every month instead of of bi-weekly, This dose is consistent with the manufacturer's recommendation and I quote from Pharma Essentia website: "BESREMi is not chemotherapy
Pat032018
in
MPN Voice
1 year ago
Interferon side effects
Right here we go, topic for conversation. After 10 years on hydroxy, I have changed to Interferon Doctors now working on me separately Raised liver enzymes raised thyroid and now today, high rh factor result aahhhh Havent seen my haem Consultant for couple years, he passes messages to continue
Right here we go, topic for conversation. After 10 years on hydroxy, I have changed to Interferon Doctors now working on me separately Raised liver enzymes raised thyroid and now today, high rh factor result aahhhh Havent seen my haem Consultant for couple years, he passes messages to continue
Hidden
in
MPN Voice
1 year ago
Vit D and interferon
I wanted to put this out there since so many of us are on interferon. As a lot of you know I am the super lucky one with MS is well! Gotta love when you are like one in however many million! For once I want to be ordinary! Anyways, I saw my neurologist and he recommended vit D as he said it helps
I wanted to put this out there since so many of us are on interferon. As a lot of you know I am the super lucky one with MS is well! Gotta love when you are like one in however many million! For once I want to be ordinary! Anyways, I saw my neurologist and he recommended vit D as he said it helps
KLCTJC
in
MPN Voice
1 year ago
interferon alpha effectiveness for ET
hi again 😃 I recently asked how long it takes for interferon alpha perg to start working and decrease my platelet count. My diagnosis is ER (triple negative). I have been injecting weekly for 12 weeks now, 8 weeks at 90mg and the last 4 weeks at 135mg. My platelet count remains stubbornly at 1300😳.
hi again 😃 I recently asked how long it takes for interferon alpha perg to start working and decrease my platelet count. My diagnosis is ER (triple negative). I have been injecting weekly for 12 weeks now, 8 weeks at 90mg and the last 4 weeks at 135mg. My platelet count remains stubbornly at 1300😳.
Maxamber
in
MPN Voice
1 year ago
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