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Half Sinemet CR
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Frustrated every time I push it a little exercise wise to get moving I get dystonia......
Hi everyone, moaning sesssion......... I have dystonia secondary to PD. Lucky girl :) I like to be active with my yoga etc. but as soon as try and do a little cardio I take a nose dive fatigue wise and totally wipe out sleeping all day for few days and the calf muscle on my right leg clenches
Hi everyone, moaning sesssion......... I have dystonia secondary to PD. Lucky girl :) I like to be active with my yoga etc. but as soon as try and do a little cardio I take a nose dive fatigue wise and totally wipe out sleeping all day for few days and the calf muscle on my right leg clenches
Yogibear
in
Cure Parkinson's
12 years ago
Sinemet and not sleeping........
Sinemet is great but I am finding that I go a few days with a straight 5hrs sleep - yippee and then I go a few days with sleeping for an hour waking and then ping I am wide awake until 5am or 6am and up at 7am. Hence getting 2 to 3 hrs sleep. Then I have a night where I totally crash out at 11pm and
Sinemet is great but I am finding that I go a few days with a straight 5hrs sleep - yippee and then I go a few days with sleeping for an hour waking and then ping I am wide awake until 5am or 6am and up at 7am. Hence getting 2 to 3 hrs sleep. Then I have a night where I totally crash out at 11pm and
Yogibear
in
Cure Parkinson's
12 years ago
DR B REPLIES....... NEUROLOGISTS OUTCOME
From Dr B.... Unfortunately, the top neurologist who you saw is clearly not a top RLS specialist. His advice is absolutely incorrect and as you have noted it should not be followed. You are already on a high dose of Mirapex (Mirapexin) and are developing augmentation (worsening of your RLS from
From Dr B.... Unfortunately, the top neurologist who you saw is clearly not a top RLS specialist. His advice is absolutely incorrect and as you have noted it should not be followed. You are already on a high dose of Mirapex (Mirapexin) and are developing augmentation (worsening of your RLS from
Cobourg
in
Restless Legs Syndrome
12 years ago
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Neurologists Outcome
Well, not what I thought. After waiting 7 months to see a certain consultant. He really didn't help much. Told me my doctor could give me whatever, asked if Ihad taken the following..... then he rattled off about six different drugs I had never heard of. I said no, why not, I haven't been offered them
Well, not what I thought. After waiting 7 months to see a certain consultant. He really didn't help much. Told me my doctor could give me whatever, asked if Ihad taken the following..... then he rattled off about six different drugs I had never heard of. I said no, why not, I haven't been offered them
Cobourg
in
Restless Legs Syndrome
12 years ago
medicaion
i am 43 and was diagnosed when i was 40. i am taking sinemet and mirapex and sometimes i feel like the meds make me feel worse. does anyone else experience that? i also sometimes think i take too much. i take every 2 hrs. is that about normal? sometimes i need sooner and sometimes when i take a
i am 43 and was diagnosed when i was 40. i am taking sinemet and mirapex and sometimes i feel like the meds make me feel worse. does anyone else experience that? i also sometimes think i take too much. i take every 2 hrs. is that about normal? sometimes i need sooner and sometimes when i take a
tmhiggs
in
Cure Parkinson's
12 years ago
Meds wear off out in public how to handle.
Yesterday whole shopping with one of my son my meds wore off. It was 1/2 hour before the next dose. I started tremors so bad which affects my speech. I just want to know how do you handle this when out in public all of a sudden your shaking so bad. My son is 18 but he could not drive so I went and
Yesterday whole shopping with one of my son my meds wore off. It was 1/2 hour before the next dose. I started tremors so bad which affects my speech. I just want to know how do you handle this when out in public all of a sudden your shaking so bad. My son is 18 but he could not drive so I went and
blessed4431
in
Cure Parkinson's
12 years ago
Experience of Parkinsons in a 77 year old ?
We have suspected that my Dad has had PD for the past couple of years/mainly due to a restful trremor. However since New Years Day his health seems to have deteriorated at an alarming rate. He has had lots of stomach problems, then fainted through low blood pressure & ended up in hospital, developed
We have suspected that my Dad has had PD for the past couple of years/mainly due to a restful trremor. However since New Years Day his health seems to have deteriorated at an alarming rate. He has had lots of stomach problems, then fainted through low blood pressure & ended up in hospital, developed
ourlife
in
Cure Parkinson's
12 years ago
Hello from a new boy
Hello Everyone - I have been diagnosed for 9 years and am better now than i was 4 years ago. I put that down to seeing a marvellous Neuorlogist in Cambridge (not my home town) who recommended Azilect as an adddition to my Sinemet Plus and Amantadine and to change my Ropinirole to Requip XL. This change
Hello Everyone - I have been diagnosed for 9 years and am better now than i was 4 years ago. I put that down to seeing a marvellous Neuorlogist in Cambridge (not my home town) who recommended Azilect as an adddition to my Sinemet Plus and Amantadine and to change my Ropinirole to Requip XL. This change
froggatt55
in
Cure Parkinson's
12 years ago
help im piling on weight is it d meds not eating any ting extra walk 2 miles most days on 3 sinemet plus a day
ftadh
in
Cure Parkinson's
12 years ago
How do you kick start effectively in the morning?
Hi everyone, I am wearing off during the night and am struggling in the mornings to get up, dressed and ready to drive to work for 8:30am. I have the following medications:- - Madopar Booster tablets 12.5mg/40mg dispersible. Tablet form. - Standard - Sinemet - 12.5mg/50mg. Tablet form. -
Hi everyone, I am wearing off during the night and am struggling in the mornings to get up, dressed and ready to drive to work for 8:30am. I have the following medications:- - Madopar Booster tablets 12.5mg/40mg dispersible. Tablet form. - Standard - Sinemet - 12.5mg/50mg. Tablet form. -
Yogibear
in
Cure Parkinson's
12 years ago
Does anyone know of a safe cleanse routine for PD patients?
I have visceral off meaning I'm becoming more and more dependent on laxatives, etc. Last week when I had a big schedule I seriously felt like I was dying. I can't fast because I have to take meds with a snack. I'm up to 100/25 sinimet every 3 hours. That's a lot of snacking. Maybe I'm to the point
I have visceral off meaning I'm becoming more and more dependent on laxatives, etc. Last week when I had a big schedule I seriously felt like I was dying. I can't fast because I have to take meds with a snack. I'm up to 100/25 sinimet every 3 hours. That's a lot of snacking. Maybe I'm to the point
PatV
in
Cure Parkinson's
12 years ago
Husband saw new Movement Disorder Specialist who increased his Sinemet which has helped his walking.
Only problem is from time he goes to bed and gets up in the morning he has had no meds and then can't walk again until he takes his morning meds. Anyone else experiencing this problem? Hate waking him up in the middle of the night to take the medicine. It takes almost an hour for the Sinemet to kick
Only problem is from time he goes to bed and gets up in the morning he has had no meds and then can't walk again until he takes his morning meds. Anyone else experiencing this problem? Hate waking him up in the middle of the night to take the medicine. It takes almost an hour for the Sinemet to kick
Hidden
in
Cure Parkinson's
12 years ago
can sinemet cause a rash have a lot lately ichy and red on face
ftadh
in
Cure Parkinson's
12 years ago
My question is below.
I've had PD for about 14 years. I've been thinking about starting Sinemet, but I'm really weary about the side effects. I know there is a possibility of dyskinesia, but what other side effects are there? How long before you start having side effects. I know we all respond differently, but I would
I've had PD for about 14 years. I've been thinking about starting Sinemet, but I'm really weary about the side effects. I know there is a possibility of dyskinesia, but what other side effects are there? How long before you start having side effects. I know we all respond differently, but I would
maryalice
in
Cure Parkinson's
12 years ago
Have you developed dyskenesia and, if so, how troublesome and/or noticeable is it?
Have any of you been on sinemet for many years without developing dyskenesia? Those of you that have it, is it periodic depending on your meds, or is it continual? Does it inhibit you socially and how do you deal with it?
Have any of you been on sinemet for many years without developing dyskenesia? Those of you that have it, is it periodic depending on your meds, or is it continual? Does it inhibit you socially and how do you deal with it?
Mark1
in
Cure Parkinson's
12 years ago
Has anyone experienced changes io their body odour?
I have never had a strong natural scent (honestly!). However, even with a much reduced sense of smell, I noticed a change to my body odour in the year or so post diagnosis. Then, when I started sinemet, my body odour returned to normal! One of the more trivial changes with PD, but i should be interested
I have never had a strong natural scent (honestly!). However, even with a much reduced sense of smell, I noticed a change to my body odour in the year or so post diagnosis. Then, when I started sinemet, my body odour returned to normal! One of the more trivial changes with PD, but i should be interested
Mark1
in
Cure Parkinson's
12 years ago
I don't have a tremor. My symptoms are all movement related and I have
problems with fine motor movements in my hands. I was on Sinemet 25/100 (1 1/2 tabs 4 x day). At my last visit I told my specialist that I didn't think the meds worked as I never have on/off times. I saw my specialist on Tuesday after being off my meds for 48 hrs. He is now not sure if I have Parkinsons
problems with fine motor movements in my hands. I was on Sinemet 25/100 (1 1/2 tabs 4 x day). At my last visit I told my specialist that I didn't think the meds worked as I never have on/off times. I saw my specialist on Tuesday after being off my meds for 48 hrs. He is now not sure if I have Parkinsons
tlongmire
in
Cure Parkinson's
12 years ago
My husband and RLS - I just wanted to share
Firstly I am new and Hi to all. Just wanted to share stuff. My husband I have known for 4 years and now married this month for 2 years has, since I have known him, always had RLS and will continue to do so I guess. He was diagnosed a long while before I met him. He had undergone a lot of tests with
Firstly I am new and Hi to all. Just wanted to share stuff. My husband I have known for 4 years and now married this month for 2 years has, since I have known him, always had RLS and will continue to do so I guess. He was diagnosed a long while before I met him. He had undergone a lot of tests with
Hidden
in
Restless Legs Syndrome
12 years ago
Sinemet best practice - take a tablet when you feel you need it or stick to 3 times a day and be uncomfortable.
I cannot stick to 1 tablet of Sinemet, 62.5mg 3 times a day as directed by my PD Nurse as I definitely need one every 4 hours or I wear off and have very uncomfortable, painful restless leg syndrome. I have started taking 5 a day and then add in Sinemet CR 25mg Levodopa at night to try and get some
I cannot stick to 1 tablet of Sinemet, 62.5mg 3 times a day as directed by my PD Nurse as I definitely need one every 4 hours or I wear off and have very uncomfortable, painful restless leg syndrome. I have started taking 5 a day and then add in Sinemet CR 25mg Levodopa at night to try and get some
Yogibear
in
Cure Parkinson's
12 years ago
Self managing PD - Are we serious or not?
I’m back. With good reason though, inspired by a message I received, I decided to post. The following issues, in my opinion, are not being addressed properly within the whole pd community. (I am in the UK but this could equally apply anywhere). Ok here we go. (Another lengthy one) The drugs
I’m back. With good reason though, inspired by a message I received, I decided to post. The following issues, in my opinion, are not being addressed properly within the whole pd community. (I am in the UK but this could equally apply anywhere). Ok here we go. (Another lengthy one) The drugs
Leyther
in
Cure Parkinson's
12 years ago
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