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Experiences with
Hypomyelination with Atrophy of Basal ganglia and Cerebellum (H-ABC)
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Communities
6 public communities
Talk ED (eating disorders)
3,557 members
Talk ED (previously ABC) is a national UK eating disorders organisation with over 25 years of experience. We provide on-going care, emotional support and practical guidance for anyone affected by eating disorders. We support and care for those struggling personally and resource and equip parents, families, friends and professionals.
PBCers Organization
1,433 members
PBCers Organization is a community dedicated to providing reliable primary biliary cholangitis (PBC) information and offer support to its members. Topics discussed include symptoms, medication, diet, personal experiences, transplant and anything else PBC related.
PBC Foundation
9,443 members
The PBC Foundation hosts this community to provide support and information to those affected by Primary Biliary Cholangitis - an autoimmune condition that affects the liver. The PBC Foundation is the UK's only, and world's largest, organisation that specifically deals with PBC with registered service users in over 84 countries. We lead the world in PBC in advocacy, support and in providing services such as self-management tools, of which this forum is just one. If you wish to become a registered service user with the PBC Foundation, please visit our website www.pbcfoundation.org.uk and follow the registration process or alternatively please call our office +44 131 556 6811 and we can send out our registration pack free of charge. The current benefits of membership include: ~ free interactive self-management App ~ exclusive content on website, including videos ~ quarterly magazine full of the latest PBC news, including news of upcoming trials, latest research, etc
LIVErNORTH
426 members
We are a adult liver patient support group based at the Freeman Hospital in Newcastle upon Tyne, England. Whatever kind of liver disease you may have, we are here to support you. Whilst we will endeavour to assist you with any queries relating to liver disease it would be inappropraite for us to comment on liver function blood test as there are too many variables involved to generalise. Your hepatologist is the appropriate person to ask for advice in this instance.
Liver4Life
1,974 members
Liver4Life is run by a few individuals passionate about liver health. We all have extensive backgrounds of working in the health and charity sector and most importantly in the liver community. The team are all working on a purely voluntary basis, while we undertake some fundraising to get the key services together. L4L is a new and modern charity dedicated to supporting any person affected by a liver condition in the UK. • L4L offers support, education and campaigns on behalf of people with a liver condition to improve their care, their treatment and their support services. • L4L recognises the importance of preventing liver disease and the early detection of a liver condition, liver disease and liver cancer in the UK. • Our absolute priority is supporting liver patients in the UK
British Liver Trust
37,511 members
The British Liver Trust helps everyone affected by any liver condition, providing support, information and guidance, and lobbying for improved services across the country. Liver Disease is the only cause of death on the increase and affects an estimated 20% of the population. Only by increasing awareness of the risks, campaigning and funding research will we reduce the impact of liver disease in the future.