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Erlotinib
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Great new blog by Alan Hoffman
Alan is one of the 12 participants in the Nilotinib study at Georgetown. He is a great guy and has begun a really good blog with lots of info and commentary that anyone with PD will find very interesting.
Alan is one of the 12 participants in the Nilotinib study at Georgetown. He is a great guy and has begun a really good blog with lots of info and commentary that anyone with PD will find very interesting.
rrunk7
in
Cure Parkinson's
8 years ago
Update on Nilotinib for PD - MJFF is now involved!
This seems to have slipped by unnoticed at HU. Some recent articles from MJFF and ScienceDaily: https://www.michaeljfox.org/foundation/news-detail.php?nilotinib-update-where-we-stand-with-cancer-drug-for-parkinson https://www.sciencedaily.com/releases/2016/07/160712101230
This seems to have slipped by unnoticed at HU. Some recent articles from MJFF and ScienceDaily: https://www.michaeljfox.org/foundation/news-detail.php?nilotinib-update-where-we-stand-with-cancer-drug-for-parkinson https://www.sciencedaily.com/releases/2016/07/160712101230
jeffreyn
in
Cure Parkinson's
8 years ago
NAC, update
As always, I try different things at the same time so it is hard to judge. This time I took 600 mg NAC twice yesterday thanks to Park_bear's recent post and it was the best day in 2 months. The confounding factors are: I stopped my 7 cups of coffee (1/3 cup of coffee grains in 16 oz) per day due to
As always, I try different things at the same time so it is hard to judge. This time I took 600 mg NAC twice yesterday thanks to Park_bear's recent post and it was the best day in 2 months. The confounding factors are: I stopped my 7 cups of coffee (1/3 cup of coffee grains in 16 oz) per day due to
zawy
in
Cure Parkinson's
8 years ago
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New treatments for Parkinson's disease. How inhibiting the activity of a specific protein in the brain could stop or slow the disease.
The c-Abl inhibitor, Nilotinib, protects dopaminergic neurons in a preclinical animal model of Parkinson's disease http://www.nature.com/articles/srep04874
The c-Abl inhibitor, Nilotinib, protects dopaminergic neurons in a preclinical animal model of Parkinson's disease http://www.nature.com/articles/srep04874
emmemi
in
Cure Parkinson's
8 years ago
Off Label use of Nilotinib for Parkinsons
Are there any neurologists or other physicians that are currently writing nilotinib off label for the treatment of parkinsons? Has anyone out there been treated with Nilotinib off label for parkinsons? thanks
Are there any neurologists or other physicians that are currently writing nilotinib off label for the treatment of parkinsons? Has anyone out there been treated with Nilotinib off label for parkinsons? thanks
Horsetablerock
in
Parkinson's New Zealand
8 years ago
Tasignia
Hello, has anybody more information about the therapy with nilotinib, one study with eleven Patients showed very good results (improvent in 10 patients). Open Study not doubleblind). If the results are correct, the "holy grail" of parkinson therapy. https://gumc.georgetown.edu/news/Cancer-Drug-Improved-Cognition-and-Motor-Skills-in-Small-Parkinsons-Clinical-Trial
Hello, has anybody more information about the therapy with nilotinib, one study with eleven Patients showed very good results (improvent in 10 patients). Open Study not doubleblind). If the results are correct, the "holy grail" of parkinson therapy. https://gumc.georgetown.edu/news/Cancer-Drug-Improved-Cognition-and-Motor-Skills-in-Small-Parkinsons-Clinical-Trial
maier1959
in
Cure Parkinson's
8 years ago
Hair loss
So I mentioned in my life earlier post that I was experiencing very dry skin and cracked lips, I have had some helpful advice and got different creams from my docs, anyway I have now noticed that my eyebrows and eyelashes are thinning is this because of the (TARCEVA -
ERLOTINIB
)
So I mentioned in my life earlier post that I was experiencing very dry skin and cracked lips, I have had some helpful advice and got different creams from my docs, anyway I have now noticed that my eyebrows and eyelashes are thinning is this because of the (TARCEVA -
ERLOTINIB
)
Littleannies
in
The Roy Castle Lung Cancer Foundation
8 years ago
Tarceva (Erlotinib)
Hello everyone I was diagnosed with non small lung cancer this time last yr treatment has gone well so for, the cancer had spread to my adrenal glands on my liver both side but the chemo didn't work, so my consultant put me on TARCEVA don't know if they are doing there job yet - anyway I have been experiencing
Hello everyone I was diagnosed with non small lung cancer this time last yr treatment has gone well so for, the cancer had spread to my adrenal glands on my liver both side but the chemo didn't work, so my consultant put me on TARCEVA don't know if they are doing there job yet - anyway I have been experiencing
Littleannies
in
The Roy Castle Lung Cancer Foundation
8 years ago
a-Syn misfolding blockers/repairers (updated)
This is an update of a previous post. The number of compounds that help in the test tube or mice is overwhelming. Unfortunately, there is not a standard test to determine which ones reach the human brain and work the best. It's not possible to take all of them. But the long list gives hope: there
This is an update of a previous post. The number of compounds that help in the test tube or mice is overwhelming. Unfortunately, there is not a standard test to determine which ones reach the human brain and work the best. It's not possible to take all of them. But the long list gives hope: there
zawy
in
Cure Parkinson's
8 years ago
Starting Salsalate for PSP
My wife has been suffering from PSP for several years with the first symptoms appearing in 2006! Apparently it is a slow evolving form of PSP. Was not diagnosed as such until about 18 months ago. Have been looking on internet for any trial or treatment that would be applicable. Found several clinical
My wife has been suffering from PSP for several years with the first symptoms appearing in 2006! Apparently it is a slow evolving form of PSP. Was not diagnosed as such until about 18 months ago. Have been looking on internet for any trial or treatment that would be applicable. Found several clinical
loustalet
in
PSP Association
9 years ago
Offlabel Nilotinib for parkinsons
Has anyone used nilotinib for parkinson ?
Has anyone used nilotinib for parkinson ?
kj555
in
Parkinson's New Zealand
9 years ago
offlabel Nilotinib use for their Parkinsons ?
Has anyone tried offlabel Nilotinib use for their Parkinsons ?
Has anyone tried offlabel Nilotinib use for their Parkinsons ?
kj555
in
Cure Parkinson's
9 years ago
Starting Nilotinib for PSP
Hi, Has anyone started Nilotinib for PSP.We have started it off label. Thanks
Hi, Has anyone started Nilotinib for PSP.We have started it off label. Thanks
kj555
in
PSP Association
9 years ago
Was PD cured in the 1980's? It's a GM1 Ganglioside deficiency?
Again and again, I accidentally come across some compound that seems to have profound effects for PD, and yet there is no one getting paid to tell us about it, so we never hear about unless it is through each other. For example, here's a phase 2 trial completed 4 YEARS AGO for a compound shown in
Again and again, I accidentally come across some compound that seems to have profound effects for PD, and yet there is no one getting paid to tell us about it, so we never hear about unless it is through each other. For example, here's a phase 2 trial completed 4 YEARS AGO for a compound shown in
zawy
in
Cure Parkinson's
9 years ago
Compounds that prevent a-syn misfolding
This is a list of the best compounds with the ability to reach the human brain and have been shown in test tube or animal research to slow or stop the accumulation of misfolding a-Syn. The first 4 have the added evidence that they work in humans by epidemiological studies. Most of the other compounds
This is a list of the best compounds with the ability to reach the human brain and have been shown in test tube or animal research to slow or stop the accumulation of misfolding a-Syn. The first 4 have the added evidence that they work in humans by epidemiological studies. Most of the other compounds
zawy
in
Cure Parkinson's
9 years ago
New scientist article October 2015
A trial of anti cancer medication has helped bedridden ppl walk and talk for the first time in years, finds Jessica Hamzelou. It is the first drug that seems to directly target the causes of Parkinson's disease. People taking part in a trial have had their symptoms reversed, allowing them to talk, get
A trial of anti cancer medication has helped bedridden ppl walk and talk for the first time in years, finds Jessica Hamzelou. It is the first drug that seems to directly target the causes of Parkinson's disease. People taking part in a trial have had their symptoms reversed, allowing them to talk, get
Hidden
in
PSP Association
9 years ago
Novartis' nilotinib (AMN107, trade name Tasigna)
The drug, already approved by the FDA for cancer treatment, improved cognition, motor skills and non-motor function in patients with Parkinson's disease, the university researchers reported. Note: earlier/sooner FDA approval as it is existing drug "To my knowledge, this study represents the first time
The drug, already approved by the FDA for cancer treatment, improved cognition, motor skills and non-motor function in patients with Parkinson's disease, the university researchers reported. Note: earlier/sooner FDA approval as it is existing drug "To my knowledge, this study represents the first time
Hidden
in
Cure Parkinson's
9 years ago
New hope for PD
Has anyone read about a new study that found a leukemia drug, nilotinib, looks very promising for Parkinson's and related diseases. It was a small study, but 10 out of 12 patients had quite dramatic reversal of symptoms. I'm sorry, I can't get a link to copy here, but I am sure if you google it you can
Has anyone read about a new study that found a leukemia drug, nilotinib, looks very promising for Parkinson's and related diseases. It was a small study, but 10 out of 12 patients had quite dramatic reversal of symptoms. I'm sorry, I can't get a link to copy here, but I am sure if you google it you can
Finoni
in
PSP Association
9 years ago
Are you EGFR+?
At present this drug and
erlotinib
(tarceva) are used to treat people with EGFR+ tumours in England and Wales. In Scotland on
erlotinib
is currently licensed. If you have had experience of either drug and are EGFR+ it would be good to hear from you.
At present this drug and
erlotinib
(tarceva) are used to treat people with EGFR+ tumours in England and Wales. In Scotland on
erlotinib
is currently licensed. If you have had experience of either drug and are EGFR+ it would be good to hear from you.
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
9 years ago
Treatment for Advanced /METASTIC NSCLC
Result of post treatment scan shows that there is No further growth but also NO shrinkage" the Oncologist wants me to consider either Docetaxel or
Erlotinib
.. Does anybody out there have any experience with either of these treatments?
Result of post treatment scan shows that there is No further growth but also NO shrinkage" the Oncologist wants me to consider either Docetaxel or
Erlotinib
.. Does anybody out there have any experience with either of these treatments?
1122334455321
in
The Roy Castle Lung Cancer Foundation
10 years ago
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