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Collected Responses to Give more funding for thyroid research and patients after price hike Petition
The petition launched by Pete Taylor has received a response, and there have now been numerous posts referencing that. And replies on each of them. This it is getting spread and some will be missed, there will be much repetition, etc. For that reason, this new post is intended to collect everything
The petition launched by Pete Taylor has received a response, and there have now been numerous posts referencing that. And replies on each of them. This it is getting spread and some will be missed, there will be much repetition, etc. For that reason, this new post is intended to collect everything
helvella
Thyroid UK
in
Thyroid UK
4 months ago
Contacting UK thyroid 😬
A lovely member mentioned the UK thyroid site to me, about looking for a endocrinologist who as knowledge of intolorences to thyroid medication, or who is just more knowledgeable than the ones I've seen these last 4 years .I know it's a list, can anyone direct me as to how I access it. Thank you ❤️
A lovely member mentioned the UK thyroid site to me, about looking for a endocrinologist who as knowledge of intolorences to thyroid medication, or who is just more knowledgeable than the ones I've seen these last 4 years .I know it's a list, can anyone direct me as to how I access it. Thank you ❤️
birkie
in
Thyroid UK
4 months ago
small thyroid
I have just had an ultrasound of my neck and was told my thyroid gland is small. What is the significance of this? Does anyone know?
I have just had an ultrasound of my neck and was told my thyroid gland is small. What is the significance of this? Does anyone know?
Thirtyone
in
Thyroid UK
4 months ago
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Thyroid S
I have been on Thyroid S for years, always ordering from Thailand, and have recommended them to a few here. A couple of forum members were having trouble ordering lately. I was due to re-order, went to the website to find it no longer has thyroid medication. Now I am in a flat panic! The website
I have been on Thyroid S for years, always ordering from Thailand, and have recommended them to a few here. A couple of forum members were having trouble ordering lately. I was due to re-order, went to the website to find it no longer has thyroid medication. Now I am in a flat panic! The website
serenfach
in
Thyroid UK
4 months ago
Nurse phone call update
I put the results of my thyroid and cholesterol blood test result on here the other day and today I heard back from the nurse who said my Thyroid was fine “within the range” the usual thing. but my cholesterol was very high at 8 which I knew. So, as always, just concentrating on my cholesterol levels
I put the results of my thyroid and cholesterol blood test result on here the other day and today I heard back from the nurse who said my Thyroid was fine “within the range” the usual thing. but my cholesterol was very high at 8 which I knew. So, as always, just concentrating on my cholesterol levels
Hidden
in
Thyroid UK
4 months ago
armour thyroid
does any buy Armour thyroid 1grain I used to get from America customs was an issue, they do it in the uk but they have put it up to £167 for 100 tablets ! Any one else buy and use this please
does any buy Armour thyroid 1grain I used to get from America customs was an issue, they do it in the uk but they have put it up to £167 for 100 tablets ! Any one else buy and use this please
Joannebulldog
in
Thyroid UK
4 months ago
Endo appointment sorted.... But... 🤦♀️
Hi everyone ❤️ I've now received my endocrinologist appointment, it appears to be at the RVI Newcastle on April 2nd 9.20am..one problem, I can't get there for 9.20am🤦♀️ I have to catch a taxi to train station, then the first train from my end to Newcastle, then a taxi to the RVI... Then do it all
Hi everyone ❤️ I've now received my endocrinologist appointment, it appears to be at the RVI Newcastle on April 2nd 9.20am..one problem, I can't get there for 9.20am🤦♀️ I have to catch a taxi to train station, then the first train from my end to Newcastle, then a taxi to the RVI... Then do it all
birkie
in
Thyroid UK
4 months ago
Is this a "normal" reaction to NDT?
Hi All, I'm trying to take NDT instead of levo, on which I was for around 20 years before, mostly on 75 mcg. My TSH went out of balance back in October 2022 and between then and now it's been a massive struggle. I increase my T4 slightly (even by 12,5 mcg) and get heart palpitations (heart was checked
Hi All, I'm trying to take NDT instead of levo, on which I was for around 20 years before, mostly on 75 mcg. My TSH went out of balance back in October 2022 and between then and now it's been a massive struggle. I increase my T4 slightly (even by 12,5 mcg) and get heart palpitations (heart was checked
Juliet_22
in
Thyroid UK
10 months ago
Tall Cell Aggressive Papillary Thyroid Cancer
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now
Portugal-2
in
Thyroid UK
4 months ago
Tall Cell Agressive Papillary Thyroid Cancer
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now have
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now have
Portugal-2
in
Thyroid Cancer Support
4 months ago
blue horizon premium gold
hi would this test also provide results to determine autoimmune conditions such as Graves’ disease? Thanks matty
hi would this test also provide results to determine autoimmune conditions such as Graves’ disease? Thanks matty
Mattydonald1984
in
Thyroid UK
4 months ago
Well we're back to the Endo to be told we're trying Stop and Block again.
some may remember my thyroid story as it's been a while since I've posted, but I'm still a regular reader of posts. Tuesday the day all meds are being stopped. I refused the op to remove my thyroid and have it burned out through the great advice in here plus I wasn't keen on having a op at my age either
some may remember my thyroid story as it's been a while since I've posted, but I'm still a regular reader of posts. Tuesday the day all meds are being stopped. I refused the op to remove my thyroid and have it burned out through the great advice in here plus I wasn't keen on having a op at my age either
Billyboy2u
in
Thyroid UK
4 months ago
changes
I have underactive thyroid and have been stable for years. Recently I had some routine bloods which showed very low thyroid levels. My meds were increased but I still feel dreadful. Repeat bloods are just above normal. The only changes I can recall making is when I moved last year and the new pharmacy
I have underactive thyroid and have been stable for years. Recently I had some routine bloods which showed very low thyroid levels. My meds were increased but I still feel dreadful. Repeat bloods are just above normal. The only changes I can recall making is when I moved last year and the new pharmacy
Cariad20
in
Thyroid UK
4 months ago
Total thyroidectomy - anyone have a positive story ?
Hey everyone - I’m very nervous about having a total thyroidectomy in mid February. I have seen so many horror stories. Do any of you have an experience that didn’t turn sour ? Some have said they have levithyroxine issues … I’m not sure if this is the right decision but my heart rhythm is being seriously
Hey everyone - I’m very nervous about having a total thyroidectomy in mid February. I have seen so many horror stories. Do any of you have an experience that didn’t turn sour ? Some have said they have levithyroxine issues … I’m not sure if this is the right decision but my heart rhythm is being seriously
JiggyGillo
in
Thyroid UK
4 months ago
T3/NDT costs; for comparison/discussion
Hi all, Have recently contacted all the pharmacies on the
Thyroid
UK list to quote me for 1grain (60mg)
Erfa
NDT and 10mcg T3. Above are the prices - I've not included the pharmacy name but I can pass that on via PM if you're interested.
Hi all, Have recently contacted all the pharmacies on the
Thyroid
UK list to quote me for 1grain (60mg)
Erfa
NDT and 10mcg T3. Above are the prices - I've not included the pharmacy name but I can pass that on via PM if you're interested.
Hidden
in
Thyroid UK
1 year ago
Test results - please advise
Hi everyone, Can I please ask your thoughts on my last test results? TSH: 2.77 mU/l (Range 0.35 - 5.5) 46.99% FT4: 9 pmol/l (Range 9 - 23) 0.00% FT3: 4.7 pmol/l (Range 3.5 - 6.5) 40.00% Vitamin D is still at 87 nmol/L (50nmol/L - sufficiency) , while on
Hi everyone, Can I please ask your thoughts on my last test results? TSH: 2.77 mU/l (Range 0.35 - 5.5) 46.99% FT4: 9 pmol/l (Range 9 - 23) 0.00% FT3: 4.7 pmol/l (Range 3.5 - 6.5) 40.00% Vitamin D is still at 87 nmol/L (50nmol/L - sufficiency) , while on
Dandelions
in
Thyroid UK
4 months ago
Report letter from dodo🙄
Hi everyone ❤️ Finally getting round to posting this lovely letter from endo 🙄 Firstly I feel by the contents of said letter, I wasn't even in the room with this endo😂 She as put... problems: 1,..total thyroidectomy for graves thyrotoxicosis 2019 2,..history of intolerance to both thyroid medication
Hi everyone ❤️ Finally getting round to posting this lovely letter from endo 🙄 Firstly I feel by the contents of said letter, I wasn't even in the room with this endo😂 She as put... problems: 1,..total thyroidectomy for graves thyrotoxicosis 2019 2,..history of intolerance to both thyroid medication
birkie
in
Thyroid UK
4 months ago
Thyroid research project
I wrote to complain about the thyroid research being carried out in Newcastle and there have been a little flurry of emails with me getting nowhere. Here is what has been written. The article he refers to can be found in THYROID Volume 31, Number 5, 2021 Clinical Outcomes After Discontinuation of Thyroid
I wrote to complain about the thyroid research being carried out in Newcastle and there have been a little flurry of emails with me getting nowhere. Here is what has been written. The article he refers to can be found in THYROID Volume 31, Number 5, 2021 Clinical Outcomes After Discontinuation of Thyroid
mstp
in
Thyroid UK
4 months ago
'Routine' appointment to discuss thyroid results?
I had some blood tests about 10 days ago, one of which was thyroid function. I've had the same in the past and usually no follow up call. Today I've had a call from the GP to book a 'routine' appointment to discuss the results. Is this something they start doing after a certain age? Or could it mean
I had some blood tests about 10 days ago, one of which was thyroid function. I've had the same in the past and usually no follow up call. Today I've had a call from the GP to book a 'routine' appointment to discuss the results. Is this something they start doing after a certain age? Or could it mean
Lemonandginger1
in
Thyroid UK
4 months ago
Thyroid s supplier
forgot to mention in previous note any supplier detail needs to be DM’d!!! After 6 years of myxedema coma I’ve got brain of a muddled toddler. wee bit scary.
forgot to mention in previous note any supplier detail needs to be DM’d!!! After 6 years of myxedema coma I’ve got brain of a muddled toddler. wee bit scary.
joydot
in
Thyroid UK
4 months ago
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