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Dyskinesia
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Gratitude; transitioning away from Levodopa; emulating John Pepper's Azilect program
He would likely still be suffering from hallucinations, intense
dyskinesia
, inability to communicate, sharp cognitive decline and generally, feeling pretty hopeless.
He would likely still be suffering from hallucinations, intense
dyskinesia
, inability to communicate, sharp cognitive decline and generally, feeling pretty hopeless.
Dupree
in
Cure Parkinson's
4 years ago
“Effect of calcifediol treatment and best available therapy versus best available therapy on intensive care unit admission and mortality...
“Effect of calcifediol treatment and best available therapy versus best available therapy on intensive care unit admission and mortality among patients hospitalized for COVID-19: A pilot randomized clinical study” Highlights •The vitamin D endocrine system have a variety of actions on cells and tissues
“Effect of calcifediol treatment and best available therapy versus best available therapy on intensive care unit admission and mortality among patients hospitalized for COVID-19: A pilot randomized clinical study” Highlights •The vitamin D endocrine system have a variety of actions on cells and tissues
LAJ12345
in
Cure Parkinson's
4 years ago
Rasagiline and Depression
I have run out of rasagiline numerous times (expensive and difficult to get) and for the first few days I feel my head clear, the depression leave like a light switch, and my very pronounced
dyskinesia
calm down.
I have run out of rasagiline numerous times (expensive and difficult to get) and for the first few days I feel my head clear, the depression leave like a light switch, and my very pronounced
dyskinesia
calm down.
jlmerten
in
Cure Parkinson's
4 years ago
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Anyone else taking Ongentys?
For the past 6-8 months my levodopa has not been doing the job. My dosage was one 50/200 mg Sinemet ER (Extended Release) and one 25/100 CR (Continuous Release) every three hours. I also was taking two Selegiline 5 mg daily. I was wearing off in 2 hours. If i waited till my next 3 hour dosing time,
For the past 6-8 months my levodopa has not been doing the job. My dosage was one 50/200 mg Sinemet ER (Extended Release) and one 25/100 CR (Continuous Release) every three hours. I also was taking two Selegiline 5 mg daily. I was wearing off in 2 hours. If i waited till my next 3 hour dosing time,
Isthistheone
in
Cure Parkinson's
4 years ago
PTT trials for 50 participants at 8 locations* in the US. Out of nowhere. Bilateral will be offered if you qualify. (*Thank you Rebtar.)
Motor complications of PD on optimum medical treatment characterized
dyskinesia
(MDS-UPDRS item 4.2 score of 2 or greater in the meds ON condition) OR Motor fluctuations (MDS-UPDRS item 4.4 score of 2 or greater in the meds ON condition) Subject is on a stable dose of all PD medications for 30 days prior
Motor complications of PD on optimum medical treatment characterized
dyskinesia
(MDS-UPDRS item 4.2 score of 2 or greater in the meds ON condition) OR Motor fluctuations (MDS-UPDRS item 4.4 score of 2 or greater in the meds ON condition) Subject is on a stable dose of all PD medications for 30 days prior
MBAnderson
in
Cure Parkinson's
3 years ago
Rytary questions
We tried 3 caps 3 times a day but I was dancing about with too much
dyskinesia
on that dosage. Anyone have experience to share? Thanks, Bob
We tried 3 caps 3 times a day but I was dancing about with too much
dyskinesia
on that dosage. Anyone have experience to share? Thanks, Bob
bcowart
in
Cure Parkinson's
4 years ago
medication only works for 30/40 mins
hi all sinimet only lasts for a very short time. it does help get me moving but causes
dyskinesia
every time . after diagnosis meds lasted 2hrs max. it doesnt matter wether empty stomach, washed down with juice., washed down with hot water. it seems to get into my system within 30/40 mins after taking
hi all sinimet only lasts for a very short time. it does help get me moving but causes
dyskinesia
every time . after diagnosis meds lasted 2hrs max. it doesnt matter wether empty stomach, washed down with juice., washed down with hot water. it seems to get into my system within 30/40 mins after taking
Todd-pw
in
Cure Parkinson's
4 years ago
Davis Phinney Foundation has a free webinar on Dyskinesia.
Davis Phinney Foundation------- on Oct. 22 will have a webinar on
Dyskinesia
. Sounds interesting, it's free. Have to register, however can watch a replay. Can do a Google search to register. They also have other topics.
Davis Phinney Foundation------- on Oct. 22 will have a webinar on
Dyskinesia
. Sounds interesting, it's free. Have to register, however can watch a replay. Can do a Google search to register. They also have other topics.
parkie13
in
Cure Parkinson's
4 years ago
99% ldopa products are not really 'mucuna'
https%3A%2F%2Fwww.intechopen.com%2Fbooks%2Fparkinson-s-disease-understanding-pathophysiology-and-developing-therapeutic-strategies%2Fmucuna-and-parkinson-s-disease-treatment-with-natural-levodopa (Note: some of the conclusions in that paper are not universal across all the papers, notably the one re
dyskinesia
https%3A%2F%2Fwww.intechopen.com%2Fbooks%2Fparkinson-s-disease-understanding-pathophysiology-and-developing-therapeutic-strategies%2Fmucuna-and-parkinson-s-disease-treatment-with-natural-levodopa (Note: some of the conclusions in that paper are not universal across all the papers, notably the one re
dyskinesia
Hidden
in
Cure Parkinson's
4 years ago
Initial Sinemet Dose
Should I worry about
dyskinesia
if I settle at 1 1/2 pills of Sinemet three times per day? Thanks! Jim
Should I worry about
dyskinesia
if I settle at 1 1/2 pills of Sinemet three times per day? Thanks! Jim
jimcaster
in
Cure Parkinson's
4 years ago
Losing my grip
I have schizoaffective and tardive
dyskinesia
and my mood swings+physical symptoms are driving me insane. I get really worked up and then can't be brought back down no matter what I do. My restlessness and movements make me look and act crazy and it frustrates people (mostly my wife).
I have schizoaffective and tardive
dyskinesia
and my mood swings+physical symptoms are driving me insane. I get really worked up and then can't be brought back down no matter what I do. My restlessness and movements make me look and act crazy and it frustrates people (mostly my wife).
1947treble
in
Anxiety and Depression Support
4 years ago
DBS — What questions to ask the DBS neurosurgeon?
Dyskinesia
and tremors on left arm/hand, and left leg/foot. Also spasms under front ribs and upper back. Slow movement, impaired balance, shortness of breath, shallow breathing. Was also diagnosed with Lymphedema 2 yrs ago.
Dyskinesia
and tremors on left arm/hand, and left leg/foot. Also spasms under front ribs and upper back. Slow movement, impaired balance, shortness of breath, shallow breathing. Was also diagnosed with Lymphedema 2 yrs ago.
Kingdomcome
in
Cure Parkinson's
4 years ago
Drug Fast
Either they’re giving me mild
dyskinesia
or the active time that they seem to be giving me freedom is getting quite short 😕. I’ve heard that ‘drug fasting’ can reset some of these lost properties but I wouldn’t really know how best to pursue this line of possibility, if at all.
Either they’re giving me mild
dyskinesia
or the active time that they seem to be giving me freedom is getting quite short 😕. I’ve heard that ‘drug fasting’ can reset some of these lost properties but I wouldn’t really know how best to pursue this line of possibility, if at all.
jeeves19
in
Cure Parkinson's
4 years ago
A question for my most knowledgeable friends around the world.
Recently, three years after my diagnosis, after I stopped mirapexin, I switched to an effervescent formulation of levodopa called Sirio 25/100. I take half a tablet in the morning and a half after lunch (plus 1 mg of rasagiline in the evening). Why is the best time of the day in the evening from 5pm
Recently, three years after my diagnosis, after I stopped mirapexin, I switched to an effervescent formulation of levodopa called Sirio 25/100. I take half a tablet in the morning and a half after lunch (plus 1 mg of rasagiline in the evening). Why is the best time of the day in the evening from 5pm
Lucal
in
Cure Parkinson's
4 years ago
Long term use of large doses of ldopa. Any risks?
Kinda following on from my previous post about high concentration ldopa supplements. Several forum members - off the top of my head Strevenmast, ErnieDiaz, Cons10 (sorry if I got any of those wrong) - have reported good short (good symptom relief) and medium (for at least a year or more, and no nasty
Kinda following on from my previous post about high concentration ldopa supplements. Several forum members - off the top of my head Strevenmast, ErnieDiaz, Cons10 (sorry if I got any of those wrong) - have reported good short (good symptom relief) and medium (for at least a year or more, and no nasty
Hidden
in
Cure Parkinson's
4 years ago
Amantadine for fatigue/spasms
It's also prescribed for Parkinson's
dyskinesia
(that's involuntary body movements). It's prescribed off-label for MS related fatigue, and to a certain extent CFS.
It's also prescribed for Parkinson's
dyskinesia
(that's involuntary body movements). It's prescribed off-label for MS related fatigue, and to a certain extent CFS.
monkeybus
in
AMN EASIER
4 years ago
Help Staying Asleep!!
I have Parkinson’s and I’m 59. Had it for awhile I guess. I go to bed around 10:00 pm and wake up around 2:00 am. I lay alone on the sofa until morning. I want to sleep so desperately. Falling asleep is easy. Staying asleep is impossible. I’ve tried everything natural there is on the market. I take a
I have Parkinson’s and I’m 59. Had it for awhile I guess. I go to bed around 10:00 pm and wake up around 2:00 am. I lay alone on the sofa until morning. I want to sleep so desperately. Falling asleep is easy. Staying asleep is impossible. I’ve tried everything natural there is on the market. I take a
Kevinbg
in
Cure Parkinson's
4 years ago
A riddle, wrapped in a mystery, inside an enigma!
I currently take 4 doses of c/l IR + c/l CR + entacapone on 3 hour intervals... Recently I skipped dose 4, and I found that dose 3 does not wear off for 6.5 hours! I have 2 theories at this time: 1. the effectivness of the entacapone increases with each successive dose 2. one of the other drugs I am
I currently take 4 doses of c/l IR + c/l CR + entacapone on 3 hour intervals... Recently I skipped dose 4, and I found that dose 3 does not wear off for 6.5 hours! I have 2 theories at this time: 1. the effectivness of the entacapone increases with each successive dose 2. one of the other drugs I am
Hidden
in
Cure Parkinson's
4 years ago
Amantadine
I’ve been on Amantadine for about 6 weeks and have felt worse than ever. Symptoms were worst I’ve ever had. Dry. Mouth, very dry eyes to the point of not being able to see. Starting seeing images all over my house, bad dreams. D/C per MDS, but.nothing to replace. Has anyone else had these issues?
I’ve been on Amantadine for about 6 weeks and have felt worse than ever. Symptoms were worst I’ve ever had. Dry. Mouth, very dry eyes to the point of not being able to see. Starting seeing images all over my house, bad dreams. D/C per MDS, but.nothing to replace. Has anyone else had these issues?
Foncie
in
Cure Parkinson's
4 years ago
Amantadine for…
"Amantadine is an antiviral medicine that blocks the actions of viruses in your body. Amantadine is used to treat or prevent influenza A in adults and children. Amantadine may not be effective during every flu season because certain strains of the virus may be resistant to this medicine. Amantadine
"Amantadine is an antiviral medicine that blocks the actions of viruses in your body. Amantadine is used to treat or prevent influenza A in adults and children. Amantadine may not be effective during every flu season because certain strains of the virus may be resistant to this medicine. Amantadine
kaypeeoh
in
Cure Parkinson's
4 years ago
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