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Experiences with
Debulking surgery
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Dealing with NED in this stage 4 appendix cancer journey
I’ve been NED since HIPEC in May 2022 having previously had
debulking
surgery
followed by Folfiri and immunotherapy. I understand there’s a strong prospect I will have a recurrence so I am being monitored by CT-PET scans.
I’ve been NED since HIPEC in May 2022 having previously had
debulking
surgery
followed by Folfiri and immunotherapy. I understand there’s a strong prospect I will have a recurrence so I am being monitored by CT-PET scans.
Hidden
in
Pseudomyxoma Survivor
8 months ago
Advice for operation
Hi All,I'm scheduled for my
debulking
surgery
next week, I've been told to expect to be in hospital for 7-10 and will almost certainly have a stoma. Does anyone have any advice for me on what to take to hospital, and how to manage those first few days after the op?
Hi All,I'm scheduled for my
debulking
surgery
next week, I've been told to expect to be in hospital for 7-10 and will almost certainly have a stoma. Does anyone have any advice for me on what to take to hospital, and how to manage those first few days after the op?
LovemyJackRussell
in
My Ovacome
5 months ago
Post surgery recovery
Hello all I am 2 weeks post interval
debulking
surgery
and physically & emotionally up & down. Physically I feel extremely bloated much of the time, like I could literally split open. My appetite has reduced massively although I am trying to eat some healthy foods when I can.
Hello all I am 2 weeks post interval
debulking
surgery
and physically & emotionally up & down. Physically I feel extremely bloated much of the time, like I could literally split open. My appetite has reduced massively although I am trying to eat some healthy foods when I can.
Kazzh
in
My Ovacome
1 month ago
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Recurrence in spleen
Had chemo and
debulking
surgery
2 years ago. Stage 3 HGS OC. 1st recurrence 3 months ago with lesions in spleen and peritoneum. Consultant advises watch and wait and does not advise splenectomy. CA125 76, no symptoms.
Had chemo and
debulking
surgery
2 years ago. Stage 3 HGS OC. 1st recurrence 3 months ago with lesions in spleen and peritoneum. Consultant advises watch and wait and does not advise splenectomy. CA125 76, no symptoms.
hilaryjane
in
My Ovacome
8 months ago
Rucaparib
Awaiting phone call from my oncologist or appt I’m stage 4 OC misdiagnosed in 2018/2019 after being treated for water infections by my GP for a few months, numerous antibiotics given, finally sent for an ultrasound scan in March 2019, tumour found on scan, fast tracked for
debulking
surgery
4 weeks
Awaiting phone call from my oncologist or appt I’m stage 4 OC misdiagnosed in 2018/2019 after being treated for water infections by my GP for a few months, numerous antibiotics given, finally sent for an ultrasound scan in March 2019, tumour found on scan, fast tracked for
debulking
surgery
4 weeks
sarah040866
in
My Ovacome
8 months ago
First recurrence
Had 6 chemo treatments and
debulking
surgery
. 10 months after my last chemo, I am faced with a recurrence. Can you let me know what your treatment plan was after your first recurrence?
Had 6 chemo treatments and
debulking
surgery
. 10 months after my last chemo, I am faced with a recurrence. Can you let me know what your treatment plan was after your first recurrence?
Driebergen
in
My Ovacome
7 months ago
Bevacizumab v Niraparib
I've had chemo/
debulking
surgery
/ chemo, and have just come to the end of the post surgery chemo. I've been told all along that I will continue with Bevacizumab as a maintenance treatment (I've had 3 rounds of it alongside chemo, 2 before the surgery and 1 after).
I've had chemo/
debulking
surgery
/ chemo, and have just come to the end of the post surgery chemo. I've been told all along that I will continue with Bevacizumab as a maintenance treatment (I've had 3 rounds of it alongside chemo, 2 before the surgery and 1 after).
LovemyJackRussell
in
My Ovacome
18 days ago
ZEJULA PROS AND CONS
Hello, I was diagnosed with stage 3 c ovarian cancer had
debulking
surgery
complete hysterectomy and bowel resection on 11/29/22 did 6 rounds of carbo/paxtel?
Hello, I was diagnosed with stage 3 c ovarian cancer had
debulking
surgery
complete hysterectomy and bowel resection on 11/29/22 did 6 rounds of carbo/paxtel?
Mommashark6
in
SHARE Ovarian Cancer Support
7 months ago
Gemcitibane/intravenous zoledronic acid
I was diagnosed stage 4b in January 2018, had
debulking
surgery
, no adjuvant chemo, then two rounds of carboplatin about 18 months apart followed by Niraparib for 8 months, but no further treatment for the last 18 months.Then 3 weeks ago I needed treatment for hypercalcemia (which I didn't know I
I was diagnosed stage 4b in January 2018, had
debulking
surgery
, no adjuvant chemo, then two rounds of carboplatin about 18 months apart followed by Niraparib for 8 months, but no further treatment for the last 18 months.Then 3 weeks ago I needed treatment for hypercalcemia (which I didn't know I
bamboo89
in
My Ovacome
7 months ago
Help please!! Rucaparib to Letrozole.
My mum was diagnosed in May 2019, had chemo and
debulking
surgery
, which worked amazingly well. Sadly, reoccurred within 10months of being NED. Again, had Chemo and secondary debulking. Mum was then put on Rucaparib and has been taking it for the past two years.
My mum was diagnosed in May 2019, had chemo and
debulking
surgery
, which worked amazingly well. Sadly, reoccurred within 10months of being NED. Again, had Chemo and secondary debulking. Mum was then put on Rucaparib and has been taking it for the past two years.
Jayk26
in
My Ovacome
8 months ago
DDS query
Turns out it’s delayed
debulking
surgery
. Wasn’t eligible for IDS. So there’s still a possibility of surgery if disease has shrunk significantly after my 6th cycle, which is on the 22nd. Scan on 25th. Feel a bit better thst surgery hasn’t been ruled out altogether. Bev x
Turns out it’s delayed
debulking
surgery
. Wasn’t eligible for IDS. So there’s still a possibility of surgery if disease has shrunk significantly after my 6th cycle, which is on the 22nd. Scan on 25th. Feel a bit better thst surgery hasn’t been ruled out altogether. Bev x
Beaver54
in
My Ovacome
8 months ago
Travel Insurance
Despite successful
debulking
surgery
for stage 1C so am now clear I am not managing to get a quote. Want to get back to living life to the full including trips so any advice would be great.
Despite successful
debulking
surgery
for stage 1C so am now clear I am not managing to get a quote. Want to get back to living life to the full including trips so any advice would be great.
Jholly4
in
My Ovacome
11 months ago
Always thinking the worst
After several pain-free weeks I started getting abdo pains yesterday and although these may jusy be muscles adjusting to increasing activity level as I recover 11 weeks out of
debulking
surgery
my silly brain jumps straight to "its come back already".
After several pain-free weeks I started getting abdo pains yesterday and although these may jusy be muscles adjusting to increasing activity level as I recover 11 weeks out of
debulking
surgery
my silly brain jumps straight to "its come back already".
Jholly4
in
My Ovacome
9 months ago
Advice please
She had
debulking
surgery
followed by 6 rounds of carbo/taxol. She recovered well and continued with Avastin infusions every 3 weeks until May this year when her CA125 started to gradually rise. Her CT scan at this time showed NED and they recommended stopping the Avastin.
She had
debulking
surgery
followed by 6 rounds of carbo/taxol. She recovered well and continued with Avastin infusions every 3 weeks until May this year when her CA125 started to gradually rise. Her CT scan at this time showed NED and they recommended stopping the Avastin.
Pitchperfec
in
My Ovacome
8 months ago
immunotherapy
My midway scans are showing my lymph nodes that grew after my huge
debulking
surgery
in March have not shrunk with the chemotherapy and I have some nodules on peritoneum ( nothing in any organs) So he can’t say that the chemo hasn’t worked in other type cancer but it’s not doing anything to these ones
My midway scans are showing my lymph nodes that grew after my huge
debulking
surgery
in March have not shrunk with the chemotherapy and I have some nodules on peritoneum ( nothing in any organs) So he can’t say that the chemo hasn’t worked in other type cancer but it’s not doing anything to these ones
Le-gra143
in
My Ovacome
8 months ago
Abnormal liver function
Hi all, did any of you have abnormal liver function which was deemed just related to the stress of the
surgery
. I am 12 weeks post
debulking
surgery
for mucinous ovary stage 1C3. My tumor markers currently normal which I am pleased with. I have not had chemo.
Hi all, did any of you have abnormal liver function which was deemed just related to the stress of the
surgery
. I am 12 weeks post
debulking
surgery
for mucinous ovary stage 1C3. My tumor markers currently normal which I am pleased with. I have not had chemo.
Jholly4
in
My Ovacome
10 months ago
Advice for Chemo Treatment
She had a complicated
debulking
surgery
but is now recovering well from that and is due for an oncologist appointment next week to arrange chemo. So far her surgeon has said surgery went well and she got everything out, but she will need to start chemo asap for any leftover.
She had a complicated
debulking
surgery
but is now recovering well from that and is due for an oncologist appointment next week to arrange chemo. So far her surgeon has said surgery went well and she got everything out, but she will need to start chemo asap for any leftover.
Ripley9696
in
My Ovacome
7 months ago
Remission
I had four chemos ,
debulking
surgery
and three chemos following surgery. I was then put on Niraparib and now my Dr. said that I can discontinue this drug. I am NED after all that and now I will be on surveillance tests and visits occasionally.
I had four chemos ,
debulking
surgery
and three chemos following surgery. I was then put on Niraparib and now my Dr. said that I can discontinue this drug. I am NED after all that and now I will be on surveillance tests and visits occasionally.
Pianoplayer731021
in
My Ovacome
10 months ago
Hot flushes help
I also have a bit of liver impairment since
debulking
surgery
in May without a known cause yet so need to check that wouldn't be a blocker for trying supplements.
I also have a bit of liver impairment since
debulking
surgery
in May without a known cause yet so need to check that wouldn't be a blocker for trying supplements.
Jholly4
in
My Ovacome
8 months ago
From cancer to Kilimanjaro
I underwent a huge
debulking
surgery
and a round of chemo. I am pretty lucky and am now Ned with no further treatment. To celebrate getting better I wanted to repay Ovacome back for all of their support and help that they give and continue to give.
I underwent a huge
debulking
surgery
and a round of chemo. I am pretty lucky and am now Ned with no further treatment. To celebrate getting better I wanted to repay Ovacome back for all of their support and help that they give and continue to give.
Mrs_Thomas
in
My Ovacome
10 months ago
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