Search
Search
About
Log in
Join
Experiences with
Brain haemorrhage
Posts
Communities
2,122 public posts
Filter results
DBS SURGERY
I had my first part of DBS on May 14 and the second part on May 21st Yesterday I went to have it turned on. I have a lot of faith that this is going to work well for me. I had the DBS done at Monroe Regional Hospital in Ocala. The neurosurgeon was fantastic and I am also blessed to have a wonderful
I had my first part of DBS on May 14 and the second part on May 21st Yesterday I went to have it turned on. I have a lot of faith that this is going to work well for me. I had the DBS done at Monroe Regional Hospital in Ocala. The neurosurgeon was fantastic and I am also blessed to have a wonderful
Brooke
in
Cure Parkinson's
11 years ago
DBS and waiting lists
I was seen by a nurosurgeon in May 2010. He said, admitt for investigations etc in autumn, maybe operation in spring next year, mind you, he didn't say which year. After many phone calls to Lund's neuro clinic and to be told by the RN, you're not on the list. I complained to my "Parkie" doctor at the
I was seen by a nurosurgeon in May 2010. He said, admitt for investigations etc in autumn, maybe operation in spring next year, mind you, he didn't say which year. After many phone calls to Lund's neuro clinic and to be told by the RN, you're not on the list. I complained to my "Parkie" doctor at the
Aussie
in
Cure Parkinson's
11 years ago
DBS on BBC
http://www.bbc.co.uk/news/health-22667597
http://www.bbc.co.uk/news/health-22667597
rons
in
Cure Parkinson's
11 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
DBS for gait freezing
Has anyone had DBS for gait freezing only (no tremor) and if so what was the outcome.
Has anyone had DBS for gait freezing only (no tremor) and if so what was the outcome.
camper
in
Cure Parkinson's
11 years ago
New DBS without surgery!
Hope so! Brain stimulation maths boost link http://www.bbc.co.uk/news/health-225567 Ron
Hope so! Brain stimulation maths boost link http://www.bbc.co.uk/news/health-225567 Ron
rons
in
Cure Parkinson's
11 years ago
WG and shingles
I have WG and this week developed a nasty attack of shingles - OUCH! Never knew it could be sooooooo painful! I read that shingles can be more serious and prolonged in patients on mycophenolate. My GP assures me this is not the case. Have any of you had this while on immu-suppressants?
I have WG and this week developed a nasty attack of shingles - OUCH! Never knew it could be sooooooo painful! I read that shingles can be more serious and prolonged in patients on mycophenolate. My GP assures me this is not the case. Have any of you had this while on immu-suppressants?
Keymer71
in
Vasculitis UK
11 years ago
Is it wise to cycle after DBS?
I'm in a dilemma here; I have a friend who has had DBS and wants to cycle. He bought a two wheel bicycle after a test run on an unused car park where he was quite safe. However, on his first cycle, he fell off twice into the road which fortunately did not result in a serious injury. Intuitively,
I'm in a dilemma here; I have a friend who has had DBS and wants to cycle. He bought a two wheel bicycle after a test run on an unused car park where he was quite safe. However, on his first cycle, he fell off twice into the road which fortunately did not result in a serious injury. Intuitively,
Norton1
in
Cure Parkinson's
11 years ago
Constipation Considerations
Lovely topic, I know. But a common concern amongst us parkies, especially those of us who are heavily medicated. I've been having trouble with constipation for quite a while. Even had an emergency room visit (which was SUPER lovely!). I was even starting to think I'd better push for DBS so I could cut
Lovely topic, I know. But a common concern amongst us parkies, especially those of us who are heavily medicated. I've been having trouble with constipation for quite a while. Even had an emergency room visit (which was SUPER lovely!). I was even starting to think I'd better push for DBS so I could cut
MichaelOM
in
Cure Parkinson's
11 years ago
i need to hear from people who have had dbs i am considering it i am scared but need relief from my symptoms my sister had it .
salon
in
Cure Parkinson's
11 years ago
Botox for feet/toe and calf dystonia
Hi everyone I have read that a lot of you have botox treatment for dystonia. I was told that I could not have it as I do not have dystonia all the time and it would make my legs and feet go very floppy so I would not be able to walk. The pain, sensation and discomfort is driving me nuts. What
Hi everyone I have read that a lot of you have botox treatment for dystonia. I was told that I could not have it as I do not have dystonia all the time and it would make my legs and feet go very floppy so I would not be able to walk. The pain, sensation and discomfort is driving me nuts. What
Yogibear
in
Cure Parkinson's
11 years ago
Is it me? or does everyone with PD ride this rollercoaster daily?
Everyday every two hours I go from nauseous and fuzzy to right as rain and back again. When I'm up I'm up and when I'm down I'm down. In the evening when I stop the meds I feel better but less mobile. I'm 47, dx'd 3 years, 3 kids at home (15, 12 and 6), self-empoloyed whew! What I'm on: stalevo
Everyday every two hours I go from nauseous and fuzzy to right as rain and back again. When I'm up I'm up and when I'm down I'm down. In the evening when I stop the meds I feel better but less mobile. I'm 47, dx'd 3 years, 3 kids at home (15, 12 and 6), self-empoloyed whew! What I'm on: stalevo
rons
in
Cure Parkinson's
11 years ago
DBS
I would appreciate ANY info on DBS!
I would appreciate ANY info on DBS!
maidar
in
Cure Parkinson's
11 years ago
How will I cope without meds in preparation for DBS assessment?
I am beginning the road to DBS and have my memory test things?? tomorrow. I am really worried about the assessment where I need to be off medication as I literally cannot move without meds. My problem is mainly dystonia, stiffness, rigidity but the last time I came off meds it was agony and my cramps
I am beginning the road to DBS and have my memory test things?? tomorrow. I am really worried about the assessment where I need to be off medication as I literally cannot move without meds. My problem is mainly dystonia, stiffness, rigidity but the last time I came off meds it was agony and my cramps
hairnet
in
Cure Parkinson's
11 years ago
Does anyone know what the preferred TSH lab value is post Thyroidectomy for Thyroid Cancer? My doctor said TSH is too low at .03
thevoice
in
Thyroid UK
11 years ago
DBS
I am looking for people who have had any experience with DBS!
I am looking for people who have had any experience with DBS!
maidar
in
Cure Parkinson's
11 years ago
DBS
Does anyone have personal experience with DBS?
Does anyone have personal experience with DBS?
maidar
in
Cure Parkinson's
11 years ago
When is the right stage to have Deep Brain Stimulation?
BMichalos
in
Cure Parkinson's
11 years ago
Monday morning in New Mexico
This is an update on my recovery from the January 16th car accident after having DBS surgery last June. I encountered a return of my symptoms a few days after the accident. In February, I had the flu for over 10 days. Once I was over the flu I started exercising again at Munson Senior Center. I saw my
This is an update on my recovery from the January 16th car accident after having DBS surgery last June. I encountered a return of my symptoms a few days after the accident. In February, I had the flu for over 10 days. Once I was over the flu I started exercising again at Munson Senior Center. I saw my
jonroberts
in
Cure Parkinson's
11 years ago
Has any one who has had dbs found they have a funny sensation in their head?
Hidden
in
Cure Parkinson's
11 years ago
zandopa's choices?
what are the options to replace sinemet with micuna pruriens without the sugar existing in Zandopa? I discovered zandopa before DBS and I almoSt cancelled my DBS surgery (wish I had done it, because if something goes wrong surgeons have no clue about how to fix it; I got severe gait disturbances), because
what are the options to replace sinemet with micuna pruriens without the sugar existing in Zandopa? I discovered zandopa before DBS and I almoSt cancelled my DBS surgery (wish I had done it, because if something goes wrong surgeons have no clue about how to fix it; I got severe gait disturbances), because
eabud
in
Cure Parkinson's
11 years ago
1
...
93
94
95
...
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
786 results
Headway
266 results
Meningitis Now
231 results
View top 10 communities
Sort by
Most Relevant
Newest