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4 public communities
Cholesterol Support
9,611 members
A new peer support community for people with high cholesterol (e.g. familial hypercholesterolaemia and hyperlipidaemia). Join to share your experiences, ask questions and connect with others going through the same challenge.
Aspergillosis and Rare Fungal Infection Support
3,873 members
Serious fungal infections are very rare but also very under-diagnosed and that has several consequences. 1) There are many more cases than we currently know about 2) People who are diagnosed can be very isolated and benefit from community support This community is intended to address these issues by informing and educating people in the UK about serious fungal infections, what to look out for, how to get diagnosed and where the expert help is in the UK. We also feel that informing patients is a great way to support their medical teams. The National Aspergillosis Centre (www.nationalaspergillosiscentre.org.uk), currently based in Manchester is the main UK centre for the serious fungal infections caused by Aspergillus (see aspergillosis.org) and is where admin of this community is based, so we have all we need t to advise you on aspergillosis - maybe even get you a referral to this centre if warranted. This is also the site of the Mycology Reference Centre in Manchester (http://mrcm.org.uk/) which is a big skill base for the identification of all pathogenic fungi, consequently, we can support the diagnosis and treatment of other rare fungal diseases like cryptococcal meningitis, Candida bloodstream infection, Pneumocystis pneumonia and more. Note that we only support people who can use the UK NHS and only for questions and conversation about serious rare fungal infections and NOT the very common infections that you should be consulting your GP or pharmacist about - we cannot replace your relationship with your medical team but we may be able to help them help you. Any entries that seem to us to be better dealt with by your medical team first will be deleted. Any non-UK questions will also be deleted - sorry, but we are funded by the UK taxpayer and they have to come first!
MY SKIN
8,621 members
Welcome to the MY SKIN Community, a peer support community for those experiencing issues with their skin. Join us to share your story and experiences, ask questions, and support others. Connect with others like you today and get real opinions from others who have experienced similar conditions. Anyone needing help or support from a patient organisation can choose from the list of resources in the pinned post in the right hand column on the posts/home page.
Changing Faces
3,209 members
This community is for the 1.3 million people in the UK with a visible difference, from a mark, scar or condition that makes them look different. We provide advice, support and psycho-social services to children, young people and adults. We challenge discrimination and we campaign for Face Equality: a world that truly values and respects people who look different We want a future where everyone with a visible difference on their face or body has the confidence, support and opportunity to lead the lives they want. If you would like to talk to someone, Changing Faces offers the Support and Information Line in the UK, for people affected by any visible difference caused by a mark, scar or condition, whether on the face or body, and families and friends. To get in touch with us, please follow this link: https://www.changingfaces.org.uk/services-support/support-information-line/