Search
Search
About
Log in
Join
Experiences with
Afinitor
Posts
Communities
140 public posts
Filter results
Side effects of Afinitor and Aromasin.
I am 2 weeks in and the side effects have started. I am getting mouth sores, my face is breaking out and will turn beet red and extremely dry. I bought cream at the center that I used during radiation. I have the most horrible taste in my mouth because of the mouthwash. The fatigue is a bit more too.
I am 2 weeks in and the side effects have started. I am getting mouth sores, my face is breaking out and will turn beet red and extremely dry. I bought cream at the center that I used during radiation. I have the most horrible taste in my mouth because of the mouthwash. The fatigue is a bit more too.
Lovemylakie
in
SHARE Metastatic Breast Cancer
5 years ago
Afinitor and Aromasin
My meds arrive today. I am really nervous about starting them. So what time of day is best to take them, morning or evening? I don't want to be up all night if I have nausea and diarrhea. Any suggestions would be so helpful.
My meds arrive today. I am really nervous about starting them. So what time of day is best to take them, morning or evening? I don't want to be up all night if I have nausea and diarrhea. Any suggestions would be so helpful.
Lovemylakie
in
SHARE Metastatic Breast Cancer
5 years ago
Low Hgb!!!
On
Afinitor
and examethane!!! 15-3 still increasing!!! Running out of oral options- do not have the receptors for the new meds- have an appointment at the Mayo Clinic in November!!! For a third opinion. Thinking about taking a drug holiday!!!
On
Afinitor
and examethane!!! 15-3 still increasing!!! Running out of oral options- do not have the receptors for the new meds- have an appointment at the Mayo Clinic in November!!! For a third opinion. Thinking about taking a drug holiday!!!
MMMP
in
SHARE Metastatic Breast Cancer
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Afinitor 10mg and exemestane 25mg update
Thank you to everyone who responded to my previous post and gave me loads of really useful information. It real made me feel that the situation wasn't as hopeless as it felt. I've also had a break through of my own that I wanted to share with you just in case it works for someone else. I've done my first
Thank you to everyone who responded to my previous post and gave me loads of really useful information. It real made me feel that the situation wasn't as hopeless as it felt. I've also had a break through of my own that I wanted to share with you just in case it works for someone else. I've done my first
Julie2233
in
SHARE Metastatic Breast Cancer
5 years ago
Afinitor 10mg and exemestane 25mg
I've just done my first 4 weeks on this drug combination after 18 cycles of ibrance 125mg and faslodex. Not to pull punches it's been quite an awful month. I've felt really ill, all the pain is back in my hips and back, mouth ulcers made worse by a dental infection, headaches, upset tummy, nausea and
I've just done my first 4 weeks on this drug combination after 18 cycles of ibrance 125mg and faslodex. Not to pull punches it's been quite an awful month. I've felt really ill, all the pain is back in my hips and back, mouth ulcers made worse by a dental infection, headaches, upset tummy, nausea and
Julie2233
in
SHARE Metastatic Breast Cancer
5 years ago
I saw my oncologist today
I’ve just finished the second month on the new drugs (
afinitor
and exemestane) and I had an appointment with my oncologist today. It has been a hard couple of months though improving. I saw his registrar 4 weeks ago and he’d told me that I was doing really well with tolerating the side effects.
I’ve just finished the second month on the new drugs (
afinitor
and exemestane) and I had an appointment with my oncologist today. It has been a hard couple of months though improving. I saw his registrar 4 weeks ago and he’d told me that I was doing really well with tolerating the side effects.
Julie2233
in
SHARE Metastatic Breast Cancer
5 years ago
Afinitor broke me
Hoping that this will all correct itself once the
afinitor
is out of my system, could take 2 weeks. Lisa
Hoping that this will all correct itself once the
afinitor
is out of my system, could take 2 weeks. Lisa
LisaT23
in
SHARE Metastatic Breast Cancer
5 years ago
Afinitor & Exemestance now what?
That is why I was switched to the
Afinitor
& Exemestance. But with these markers I am worried. If she decides to switch my meds I do not know what would be next. Lisa
That is why I was switched to the
Afinitor
& Exemestance. But with these markers I am worried. If she decides to switch my meds I do not know what would be next. Lisa
LisaT23
in
SHARE Metastatic Breast Cancer
5 years ago
Next steps continued
The up shot is that because of those questions he reviewed his treatment plan and has agreed to give me a 3 month trial of
afinitor
and aromisin. If after 3 months the ct scan shows progression then he will consider xeloda or taxol as the next step. But at least I will know we tried.
The up shot is that because of those questions he reviewed his treatment plan and has agreed to give me a 3 month trial of
afinitor
and aromisin. If after 3 months the ct scan shows progression then he will consider xeloda or taxol as the next step. But at least I will know we tried.
Julie2233
in
SHARE Metastatic Breast Cancer
5 years ago
My cancer markers have jumped from 104 to 483 after two weeks on afinitor. My doctor now wants to put me on Doxil. Any one else had this?
Went on
Afinitor
. Did not work, in fact my cancer markers went from 104 to 483. Now, my oncologist wants to put me on Doxil, provided that I pass an echo ultrasound of my heart. Has anyone else used Doxil successfully? I hear that it is called "the red devil." This doesn't ease my anxiety.
Went on
Afinitor
. Did not work, in fact my cancer markers went from 104 to 483. Now, my oncologist wants to put me on Doxil, provided that I pass an echo ultrasound of my heart. Has anyone else used Doxil successfully? I hear that it is called "the red devil." This doesn't ease my anxiety.
Iwngca
in
SHARE Metastatic Breast Cancer
5 years ago
Afinitor and blood sugar
Today is day 9 on
Afinitor
and Aromasin. I had previously been on Ibrance and it stopped working. Other than a few mouth sores, nausea, and some serious fatigue, the
Afinitor
seemed to be working.
Today is day 9 on
Afinitor
and Aromasin. I had previously been on Ibrance and it stopped working. Other than a few mouth sores, nausea, and some serious fatigue, the
Afinitor
seemed to be working.
Iwngca
in
SHARE Metastatic Breast Cancer
5 years ago
Afinitor : very tough side effects. Any1 else on this oral drug?
Sure hope the
Afinitor
is doing it's job on the adrenals. Then it would be worth it. Anyone out there on the
Afinitor
/Exastimine regiment? Would like to hear from you. My oncologist only says that he is surprised I have no mouth sores. My side effects don't seem to interest him.
Sure hope the
Afinitor
is doing it's job on the adrenals. Then it would be worth it. Anyone out there on the
Afinitor
/Exastimine regiment? Would like to hear from you. My oncologist only says that he is surprised I have no mouth sores. My side effects don't seem to interest him.
JBirdnut
in
SHARE Metastatic Breast Cancer
5 years ago
Trying to get a handle on mbc
Afinitor
and Ibrance.. Both have been stopped. I have not been on any treatment now for 3 months plus.. I did start flasdex 2 weeks ago . My wbc has dropped to 2. Never have I been this low. it seems that my bone marrow has been compromised. Just guessing .... I see my doctor on Friday .
Afinitor
and Ibrance.. Both have been stopped. I have not been on any treatment now for 3 months plus.. I did start flasdex 2 weeks ago . My wbc has dropped to 2. Never have I been this low. it seems that my bone marrow has been compromised. Just guessing .... I see my doctor on Friday .
Shelby4now
in
SHARE Metastatic Breast Cancer
5 years ago
Everolimus - Afinitor dosage
I have a quick question for anyone on
Afinitor
( everolimus)... I started 10 days ago after Ibrance stopped working. I have noticed that whilst I have been given a 5mg dose the recommended dose is 10mg... Did anyone else start on 5mg? Many thanks.
I have a quick question for anyone on
Afinitor
( everolimus)... I started 10 days ago after Ibrance stopped working. I have noticed that whilst I have been given a 5mg dose the recommended dose is 10mg... Did anyone else start on 5mg? Many thanks.
Marieleb
in
SHARE Metastatic Breast Cancer
5 years ago
Shelby4now
I was also taken off
afinitor
for the same reason my lips swell. Has anyone had a reaction to faslodex. How would they no with one caused this reaction. Tomorrow I have to have another faslodex shot. Looking forward to your responses. Shelley
I was also taken off
afinitor
for the same reason my lips swell. Has anyone had a reaction to faslodex. How would they no with one caused this reaction. Tomorrow I have to have another faslodex shot. Looking forward to your responses. Shelley
Shelby4now
in
SHARE Metastatic Breast Cancer
5 years ago
Allergic reaction
I was on
Afinitor
and developed an allergic reaction (Mouth started swelling. I took some time off and just started Ibrance . Only three days in and my lips started to swell again. Onc says stop Ibrance My onc wants to send me to an allergist. Has anyone had this happen to them?
I was on
Afinitor
and developed an allergic reaction (Mouth started swelling. I took some time off and just started Ibrance . Only three days in and my lips started to swell again. Onc says stop Ibrance My onc wants to send me to an allergist. Has anyone had this happen to them?
Shelby4now
in
SHARE Metastatic Breast Cancer
5 years ago
FDA-Approved Treatments for HR+, HER2- Premenopausal Patients
•With an LHRH agonist,
Afinitor
(Everolimus) can be taken in combination with either an Aromatase Inhibitor (Letrozole, Arimidex, or Aromasin), or with Faslodex, or with Tamoxifen.
•With an LHRH agonist,
Afinitor
(Everolimus) can be taken in combination with either an Aromatase Inhibitor (Letrozole, Arimidex, or Aromasin), or with Faslodex, or with Tamoxifen.
Bestbird
in
SHARE Metastatic Breast Cancer
5 years ago
Afinitor and diabetes and other questions.
She wants to move me to
afinitor
and aromasin. I am diabetic and worry that the
afinitor
will mess with my blood sugar. Anyone have any experience with this? Also, as always, I am terrified of the cost. I am lucky, have good insurance, but meds are so costly! My Ibrance was free.
She wants to move me to
afinitor
and aromasin. I am diabetic and worry that the
afinitor
will mess with my blood sugar. Anyone have any experience with this? Also, as always, I am terrified of the cost. I am lucky, have good insurance, but meds are so costly! My Ibrance was free.
Iwngca
in
SHARE Metastatic Breast Cancer
5 years ago
Approved Treatment Options for HR+, HER2- Postmenopausal Women
•
Afinitor
(Everolimus) with either an Aromatase Inhibitor, Faslodex, or Tamoxifen. •Verzenio alone (after disease progression on endocrine therapy and prior chemotherapy for MBC). •Piqray (Alpelisib) in combination with Faslodex if the cancer has a PI3K mutation (more about this below).
•
Afinitor
(Everolimus) with either an Aromatase Inhibitor, Faslodex, or Tamoxifen. •Verzenio alone (after disease progression on endocrine therapy and prior chemotherapy for MBC). •Piqray (Alpelisib) in combination with Faslodex if the cancer has a PI3K mutation (more about this below).
Bestbird
in
SHARE Metastatic Breast Cancer
5 years ago
change in meds to afinitor & exemestance
They met before I was seen today, and decided to switch me to
Afinitor
5mg and Exemestance 25 mg. My new Onc says that depending on how I do on the
Afinitor
5mg, the dose might be increased to 10mg in the future. She will also give me a mouthwash to help avoid mouth sores.
They met before I was seen today, and decided to switch me to
Afinitor
5mg and Exemestance 25 mg. My new Onc says that depending on how I do on the
Afinitor
5mg, the dose might be increased to 10mg in the future. She will also give me a mouthwash to help avoid mouth sores.
LisaT23
in
SHARE Metastatic Breast Cancer
5 years ago
1
...
4
5
6
7
Next page
Filter results
Clear filters
Posted in
All communities
SHARE Metastatic Breast Cancer
135 results
My Ovacome
3 results
SHARE Breast Cancer Support
2 results
Sort by
Most Relevant
Newest