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Alendronic acid
I am on 4 and a half mg of prednisone and biweekly
Actemra
. No pain. Feel great. I eat calcium laden foods and take daily supplements. Any opinions as I feel guilty?!!
I am on 4 and a half mg of prednisone and biweekly
Actemra
. No pain. Feel great. I eat calcium laden foods and take daily supplements. Any opinions as I feel guilty?!!
Strelitzia
in
PMRGCAuk
9 months ago
Should it take this long to taper with PMR/GCA?
I have had three
Actemra
infusions, with the fourth today. My sed rate and CRP levels are normal today. They were elevated in February. My rheumatologist, as of today, is referring me to an arthritis clinic in a neighboring city for another opinion.
I have had three
Actemra
infusions, with the fourth today. My sed rate and CRP levels are normal today. They were elevated in February. My rheumatologist, as of today, is referring me to an arthritis clinic in a neighboring city for another opinion.
Bummed24
in
PMRGCAuk
10 days ago
Actemra
Just wondered if anyone on this side has ever tried
Actemra
?
Just wondered if anyone on this side has ever tried
Actemra
?
brenda1207
in
PMRGCAuk
10 months ago
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Back again
Next week I will start
Actemra
. Just curious, did anyone else have a re-occurrence of GCA and PMR? How did it go? Thanks for your feedback.
Next week I will start
Actemra
. Just curious, did anyone else have a re-occurrence of GCA and PMR? How did it go? Thanks for your feedback.
Tj2017
in
PMRGCAuk
7 months ago
How long to take Actemra?
I've been on
Actemra
for almost a year. I was tapering steroids pretty well, but had a flare that lasted 2-3 months so I'm back up to 35- 32.5mg of Pred per day. I'm wondering if the
Actemra
shots are even working for me.
I've been on
Actemra
for almost a year. I was tapering steroids pretty well, but had a flare that lasted 2-3 months so I'm back up to 35- 32.5mg of Pred per day. I'm wondering if the
Actemra
shots are even working for me.
potterylady
in
PMRGCAuk
10 months ago
skin lesions that are not typical bruising from prednisone
I am on
Actemra
infusions but have not had any problems with that so far. Thanks for any information you can give me and Happy Thanksgiving!
I am on
Actemra
infusions but have not had any problems with that so far. Thanks for any information you can give me and Happy Thanksgiving!
Kt1943
in
PMRGCAuk
6 months ago
Doing what is necessary....skipping Actemra
I'm not really sure if
Actemra
was to blame for that??? I will finally be seeing my rheumatologist on the 14th of September. I had blood work done this week and of course, everything is normal since I am back on the
Actemra
.
I'm not really sure if
Actemra
was to blame for that??? I will finally be seeing my rheumatologist on the 14th of September. I had blood work done this week and of course, everything is normal since I am back on the
Actemra
.
Grammy80
in
PMRGCAuk
8 months ago
GCA with Lupus
Nothing was working until I started the
Actemra
shots once a week. Seemed to be going great. Then diagnosed with a sarcoma and rheumatologist took me off
Actemra
and left me on minimum prednisone. After treatment of radiation and three surgeries I was back on
Actemra
.
Nothing was working until I started the
Actemra
shots once a week. Seemed to be going great. Then diagnosed with a sarcoma and rheumatologist took me off
Actemra
and left me on minimum prednisone. After treatment of radiation and three surgeries I was back on
Actemra
.
Gluten
in
PMRGCAuk
10 months ago
How I reinvented my life after GCA.
I’m only on
Actemra
which helped give me my life back but if I had to back on prednisone I would. I at least know a little more to expect. Good luck to all of you and keep going. It will be ok.
I’m only on
Actemra
which helped give me my life back but if I had to back on prednisone I would. I at least know a little more to expect. Good luck to all of you and keep going. It will be ok.
nallufl24
in
PMRGCAuk
4 months ago
"Scientists achieve breakthrough in treating 'neglected' polymyalgia rheumatica" - that's the headline but don't get too excited ...
However - it is still a monoclonal antibody, a biologic, which does the same as tocilizumab/
Actemra
, and I imagine that means it is still pretty pricey.
However - it is still a monoclonal antibody, a biologic, which does the same as tocilizumab/
Actemra
, and I imagine that means it is still pretty pricey.
PMRpro
Ambassador
in
PMRGCAuk
7 months ago
Broken record head pain
I have the
Actemra
injections once a month. I cannot help but feel there is something else going on in my head, not just possible GCA. I have asked for a PET scan by my Rhumy but he does not see the need. A year ago my GP ordered a MRI do to ear pain and hearing a heart beat in my head.
I have the
Actemra
injections once a month. I cannot help but feel there is something else going on in my head, not just possible GCA. I have asked for a PET scan by my Rhumy but he does not see the need. A year ago my GP ordered a MRI do to ear pain and hearing a heart beat in my head.
Plains
in
PMRGCAuk
7 months ago
35mg Pred after a year of GCA,PMR
She thinks I should be way lower due to the
Actemra
. I tried to explain that
Actemra
doesn't work for everyone the same way. She wants me to see a neurologist to check for other diseases. I'd love your advice on what to do. Is this on the spectrum of normal for GCA and PMR?
She thinks I should be way lower due to the
Actemra
. I tried to explain that
Actemra
doesn't work for everyone the same way. She wants me to see a neurologist to check for other diseases. I'd love your advice on what to do. Is this on the spectrum of normal for GCA and PMR?
potterylady
in
PMRGCAuk
11 months ago
GCA and starting Actemra at 10 mg
Actemra
was not started until I was at 10 mg. currently I’m at 3 and a half daily with
Actemra
every other week. My question is, at this point in my taper is
Actemra
even worth it? I noticed here that people on
Actemra
are tapering just as slow as I did before
Actemra
.
Actemra
was not started until I was at 10 mg. currently I’m at 3 and a half daily with
Actemra
every other week. My question is, at this point in my taper is
Actemra
even worth it? I noticed here that people on
Actemra
are tapering just as slow as I did before
Actemra
.
Pamk1949
in
PMRGCAuk
1 year ago
GCA Relapse —Is +5 Pred Enough?
I am curently on my second bout of GCA/PMR, and curently on prednisone with every other week
Actemra
injections. Last week I had PMR symptoms, so I went up from 1.5 to 2 mg prednisone.
I am curently on my second bout of GCA/PMR, and curently on prednisone with every other week
Actemra
injections. Last week I had PMR symptoms, so I went up from 1.5 to 2 mg prednisone.
Pamk1949
in
PMRGCAuk
9 months ago
Info onActemra
Then March 22 I started
Actemra
weekly injections. I have been very fortunate so far as I tapered and stopped Pred in Dec 22 but still taking
Actemra
shots - fortnightly now. My question is how long have others had to take
Actemra
after cessation of pain and no flares?
Then March 22 I started
Actemra
weekly injections. I have been very fortunate so far as I tapered and stopped Pred in Dec 22 but still taking
Actemra
shots - fortnightly now. My question is how long have others had to take
Actemra
after cessation of pain and no flares?
MarksPoint
in
PMRGCAuk
11 months ago
GCA Osteoarthritis
The rheumatologist wants to treat the osteoarthritis with 30mg of prednisone and he also mentioned
Actemra
infusion. Not really sure what to do. Vision is opthamologist area but arthritis is rheumatologist specialty.
The rheumatologist wants to treat the osteoarthritis with 30mg of prednisone and he also mentioned
Actemra
infusion. Not really sure what to do. Vision is opthamologist area but arthritis is rheumatologist specialty.
Kittymom7
in
PMRGCAuk
10 months ago
Let’s see? Bowel perforation and GCA Flare ?
Since I was still on antibiotics for three weeks after discharge…no
Actemra
for me!
Since I was still on antibiotics for three weeks after discharge…no
Actemra
for me!
Grammy80
in
PMRGCAuk
6 months ago
Painful feet, back, thighs
I started on 60mg prednisolone and have now reduced to 7mg/6mg with the help of Tocilizumab/
Actemra
injections for one year, now stopped, and methotrexate 10mg per week, which I am still on. I have had one relaps last summer but have been ok since, apart from the usual side- effects.
I started on 60mg prednisolone and have now reduced to 7mg/6mg with the help of Tocilizumab/
Actemra
injections for one year, now stopped, and methotrexate 10mg per week, which I am still on. I have had one relaps last summer but have been ok since, apart from the usual side- effects.
Antschi
in
PMRGCAuk
9 months ago
Finishing with Actemra
I would like to stop
Actemra
as soon as is reasonably possible, but I haven't heard anyone on this site - or anywhere else for that matter, who has ceased
Actemra
and what the criteria for cessation is.
I would like to stop
Actemra
as soon as is reasonably possible, but I haven't heard anyone on this site - or anywhere else for that matter, who has ceased
Actemra
and what the criteria for cessation is.
MarksPoint
in
PMRGCAuk
11 months ago
9 years PMR and counting!
In 2014 I was finally diagnosed with PMR and GCA in 2018 and shortly after I developed lung fibrosis around the time I was put on
Actemra
. The subsequent mucus in the lungs rapidly cleared when I adopted a gluten free diet and minimal wheat (which always did bind me up!).
In 2014 I was finally diagnosed with PMR and GCA in 2018 and shortly after I developed lung fibrosis around the time I was put on
Actemra
. The subsequent mucus in the lungs rapidly cleared when I adopted a gluten free diet and minimal wheat (which always did bind me up!).
AussieKid
in
PMRGCAuk
8 months ago
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