Has anyone ever experienced less common symptoms of Sweet's syndrome?

[Shell567]

Common symptoms of SS include skin lesions, fever, headaches, muscle pain, joint pain/swelling, eye problems, and mouth ulcers. However, there are numerous other symptoms that people with SS may or may not develop.

I would be interested to know if anyone has experienced less common symptoms as a direct result of SS.

[Shell567 Administrator Sweet's Syndrome UK]

Overall, my symptoms have been very typical of SS: skin lesions, fever, exhaustion, muscle and joint pain, joint swelling, conjunctivitis.

During the first few years of having SS, repeat episodes of conjunctivitis were particularly problematic. Fortunately, I was already quite adept at dealing with joint pain and swelling as I developed SS secondary to Rheumatoid arthritis.

[summerhays]

My SS has the usual problems blisters, joint pain, nerve pain swelling burning feet and hands. but also a 6 month chest infection that would not go away no matter what I was treated with Dermatologist confirmed that my SS was active so after a high dose of steroids it finally settled down. I had read that SS can attack organs.

[Shell567 Administrator Sweet's Syndrome UK]

Thanks for your reply, summerhays. It's always good to hear about other peoples experiences of SS.

You're right about SS affecting internal organs (and joints). And a 6 month chest infection - that's one hell of an infection!

Hope you're feeling much better.

[Durbajlo0405]

I was diagnosed 2 months ago, and suffering with real fatigue, exhaustion and insomnia which has meant I have been unable to work for 2 months I'm really hoping this clears up soon, I just want my energy back

[jspo]

I realize this is an old thread but I've had some strange, and extreme, symptoms from SS.

I was diagnosed in 2009 after a year long battle with night sweats, insomnia, fatigue and painful lesions on my arms and legs. In December of 2008, after an allergist sent me for a CT scan, I was immediately admitted to the hospital. I had pleural effusion, percardial effusion, anemia (7.4), proteinuria, hematuria and a renal infarct.

I'm better now.

[Shell567 Administrator Sweet's Syndrome UK]

Hi jspo,

Thanks for responding to the thread.

Your SS symptoms were clearly very severe, and even though some are rare, e.g. pericardial and pleural effusion, are symptoms that have been previously reported in SS patients.

I'm really glad to hear that your condition has improved.

Shell.