Suspected Sweets Syndrome : Hi,I have... - Sweet's Syndrome UK

Sweet's Syndrome UK

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Suspected Sweets Syndrome

Lolabear1975 profile image
4 Replies

Hi,I have been suffering with these lesions on my arms for the past 12 months.

Very painful, hot and get infected. Not itchy, skin doesn't break.

When faded I'm left with awful permanent scars.

Gp is baffled. I've researched myself and this is the closest I've come to answer. What do you think?

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Lolabear1975 profile image
Lolabear1975
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4 Replies
Nomescrowie profile image
Nomescrowie

looks very much like my sweets spots. After being pink/red and inflamed, they go purple. They do eventually fade.

CGWestview2018 profile image
CGWestview2018

I have SS . It looks exactly like mine did . My GP also had no idea. After several visits and creams etc . I was sent to the dermatologist . I had a punch biopsy. And a diagnosis 2 yrs later. 6yrs on I have been on treatment and no lesions for a year. It was the constant fatigue that got me down. I am now anemic. Take care and good luck

Lolabear1975 profile image
Lolabear1975 in reply toCGWestview2018

Thank you for replying,😊Do you mind if I ask what medication you take for this? We're you told what causes it? Yes the fatigue is awful. I also have pernicious anaemia and should have B12 injections every 8 weeks but my gp stopped them..funny enough this all started shortly after! Maybe a cause? I'm seeing dermatologist Wednesday x

Shell567 profile image
Shell567AdministratorSweet's Syndrome UK

Hi Lolabear,

Possibly SS. You'll need blood tests and a skin biopsy.

- Sweet's syndrome (acute febrile neutrophilic dermatosis) dermnetnz.org/topics/acute-...

- List of neutrophilic dermatoses, including SS dermnetnz.org/topics/neutro...

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