I have heard the sympathy and advice over and over " keep going", "hang in there" I don't think I can much longer.
I have Lupus, Menieres. Diabetes, and AI Hepatitis. I have researched all my conditions. I am on Azathioprine, Betahistine, Quincloric, anti histamine, and serious anti depressants.
I was diagnosed with AI Hepatitis in 2001 which was identified as the cause of the Lupus. Other AI conditions followed as above. I have 4 weekly blood tests for taking Azathioprine which show that my LFTs are within normal measurements and everything else seems stable.
I have been suffering pains in my wrists which shoot from my wrist up through my thumb. I thought it was to do with joints and stuff so I "saved it up" for my Rheumatology appointment two weeks ago. I described the feel and sound of a piece of elastic snapping. The young doctor prodded and manipulated but did not replicate the movement to cause the pain. It centred around specific grasping type movements. She asked if I had painkillers and intimated wear and tear. On thursday my left thumb began to feel numb and remains so. There must be some AI complaint to explain this, rather than being patronised and ignored. The pain, numbness etc remain.
I have had a seriously dry mouth since the 1990s. It makes the morning break with a thick, dry tongue and dryness down into my throat. I am careful with my dental hygeine and drink up to 10 litres of water a day. My dry mouth has resulted in the calcium erosion of my teeth for which the only plan is extraction or expensive correction needing nearly £1,000 worth of work.
I have a dry cough for nearly a year. The only treatment I have received is an x ray which was clear. The cough could be sparked by dry food, apples (!) and the dry mouth. The cough progressed to always end in a baulking movement which tipped "water" and clear mucus back up into my mouth. I have waited all that time to be referred plus a month trying to diagnose GORD, which was not proved.
Today I saw a consultant in ENT. His first question was " how old are you? "67.
He used a metal camera instrument an examined my nose and throat.
His diagnosis? Dry mouth. I have nose bleeds, sores in my nose, painful mouth ulcers and a sore tongue. He urged me to drink drink .Despite my interjecting that I drink continually, one has no choice in the matter, I was ignored. His comment to the nurse at the end of the 10 minute session, 4 months, we'll see if she has taken in enough fluids.
I am aware of other AI complaints which can be more than suggested by my symptoms. I do not cry wolf, nor do I continually go to my GPs unnecessarily. I am not unintelligent and know my body.
Why do I have to "Push and push' to have my symptoms given true weight and have treatment given?
Am I passed my sell by date? Do,I have diseases that gov't want ignored?
Twice in one 14 day period I am ignored.
I don't think I have any "push" left in me