Hello everyone, this could possibly be a really long post but will try to keep it brief. Early diagnosis mild Lupus in 1997 and 2001. Ongoing symptoms of miscarriages, hair loss, seizures, chronic kidney disease, enlarged liver, pleurisy, heart failure, cold sores, vitamin D deficient and painful aching joints.
Over the years have gone to my GP with above symptoms and more and recently Nephrologist thought maybe it could be Lupus. Recently admitted twice with periods of unconsciousness.
So fed up waiting for various appointments and decided to go privately, however have been told it could be 50/50. Most recent tests negative ANCA, ANA
My questions is has anyone been diagnosed without positive blood tests. Currently on Amitriptyline which is helping slightly but leaves me a bit groggy.