Hi. Can anyone please help. I have been ill almost continuously for 12 years, lost most of my beautiful hair, which has never grown back 😢 I have pain in my back & hips (16 years), neck, hands, I have severe acne as well as dreadfully sore facial blemishes which come and go. I have fatigue so bad, I can barely stand/walk at times, I suffer periods that are beyond painful, and inconvenient to the point I can't leave the house for the first 3 days. I was accused of attention seeking and being lazy for the first 11 years, and "cutting my own hair off" because there was NO medical reasons for my symptoms! I was told I must be "very bored with my life to keep saying I'm ill"-- no I WAS ill, I have better things to do with my life, than pretend to be ill, when I'm not! Anyway, last year after I made legal threats, I was eventually allowed tests. A biopsy result confirmed inflammation and my blood results showed Lupus antibody. Still, no effective treatment!!! I am beyond desperate, I am depressed that at 43 years old, I am nothing more than a hideous head on a crumbling body of bones. I am in a constant state of illness with NO let up. I take a bare minimum dose of Quinoric but I would like to know the name of steroid medications so I can ask for them. I am done being friendly with the NHS and I'm going to demand proper, constructive treatment, I think I at least deserve to have hair that grows. Thank you in advance.
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