Introduce yourself to the community

We're all here for similar reasons, so why not introduce yourself? Hopefully we can get to know each other a little better and create a supportive environment

[boo16]

There doesn't seem to be a community - or is there..........?

[Hidden in reply to boo16]

Hi boo16,

That's what we are trying to create. In the early stages it takes a bit of time to get things started but I'm hoping more people will join and become engaged. Thanks for being here!

Lora

[Hidden]

Hi. I believe my daughter has suffered an anoxic seizure. It was very scary.

[willbex69]

Thank you for taking the time and effort to set up this site.My son has had these episodes since he was one and is now 5 .It has been such a long struggle and copious amounts of trips to doctors hospitals etc.It took almost 4 years to get RAS as a confirmed diagnosis.When we have the clusters I am at my wits end and it is so upsetting to witness but when those days pass we are back to a happy family again.Im hoping and praying he will grow out of them