Driving with POTS

[louyoung92]

Hi all,

I just wondered what everyone's situation is in regards to driving with pots. I know everyone is different but although I have suffered for about half my life, I have only recently been diagnosed and am still getting my head around adjusting my life.

Do you have any details strategies and ways of coping? I've also not long been in my dream job and I'm already signed off. It's not looking like I'm going to be able to work full time, if at all, so it's all a lot to take in!

Thank you all in advance

L x

[Babyblueeyes]

Hi

There is advice on the dvla website about syncope as will depend on your triggers etc about driving.

I too found it difficult to work full time since my diagnosis and work offered me part time hours which really helps me manage pots.

Hope this helps

[louyoung92 in reply to Babyblueeyes]

Thank your for your reply, it definitely helps. I have now had to voluntarily surrender my license as the symptoms are too unpredictable x

[Babyblueeyes in reply to louyoung92]

Yes I had to do that but got it back once they had stabilised and could prove I didn’t faint unless standing. X

[louyoung92 in reply to Babyblueeyes]

Ah well that's promising! Thank you

[skybluepink in reply to Babyblueeyes]

The Dr on phone from Glos royal who had never met hospital refused to collaborate , reported me to DVLA re license when had gone to a Disability Advocate & MP to intervene & represent .The ambulance 111 have diagnosed left hand bundle block yet allowed hospitals to ignore or follow up when constantly ignored symptons as did before my cardiac 2004 .They then give preventative medications yet allow delay & witholding which have since realise caused problems re arousal[ composing] sleeping & regurgitation on ingestion .With no access to Specialist treatment re urosepsis as cannot catheterise re primary lipomas-lymphoedema. now stage 5 no provision or monitoring defunct Reveal Device Royal Free ignoring falling Tilt test & severe pain spasticity kyphosis triggered by delay & no monitoring or planning .In fact bullying online.

[waveylines]

I drive......when I was diagnosed by the neurologist the issue of driving never came up. I used to find keeping the clutch depressed at traffic lights hard for any length of time as it triggered my tremors so had to park the car at lights. B12 injections daily have greatly improved my tremors.....still have them but they are mild.

Guess an automatic or electric car would get round the pedal problem if they worsen......you can also have adaptions to give you hand controls on your steering column so no pedal work.

[louyoung92 in reply to waveylines]

That's really useful information and advice, thank you so much x

[waveylines in reply to louyoung92]

My pleasure! Hope you find a way foreward. I would be lost without my car as it would limit me even further.