Pots syndrome : Hey all. Today my... - Unexplained Faint...

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Pots syndrome

Aston_Danielle2014 profile image
β€’5 Replies

Hey all. Today my partner (Danielle) was diagnosed with pots syndrome and we was told about a wonderful site we could visit for support for her. So here we are giving you all a wave from us πŸ™‹πŸ»πŸ™‹πŸ»

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Aston_Danielle2014 profile image
Aston_Danielle2014
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5 Replies
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Kate37 profile image
Kate37

Hi . Have you looked at potsuk.org/

Kate37 profile image
Kate37

It's a really informative website with great information. It really helped me when I was diagnosed. I hope all goes well for you.

Aston_Danielle2014 profile image
Aston_Danielle2014β€’ in reply toKate37

What I've been through so far is putting the light on what's happening the doctor told us nothing about it just this page

Kate37 profile image
Kate37

I printed the info for doctors page off for my GP as little is known about it by most doctors. The lifestyle changes can really help. It took a lot of trying different types and sizes but the compression socks and increasing salt and water intake really helped.

Aston_Danielle2014 profile image
Aston_Danielle2014β€’ in reply toKate37

Yeah the doctor told us nothing about it just told about a site made us feel alone with it to be honest. It's very life changing for my partner

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