Pots syndrome : Hey all. Today my partner (Danielle... - STARS

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Pots syndrome

Aston_Danielle2014 profile image
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Hey all. Today my partner (Danielle) was diagnosed with pots syndrome and we was told about a wonderful site we could visit for support for her. So here we are giving you all a wave from us πŸ™‹πŸ»πŸ™‹πŸ»

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Aston_Danielle2014 profile image
Aston_Danielle2014
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Kate37 profile image
Kate37

Hi . Have you looked at potsuk.org/

Kate37 profile image
Kate37

It's a really informative website with great information. It really helped me when I was diagnosed. I hope all goes well for you.

Aston_Danielle2014 profile image
Aston_Danielle2014 in reply to Kate37

What I've been through so far is putting the light on what's happening the doctor told us nothing about it just this page

Kate37 profile image
Kate37

I printed the info for doctors page off for my GP as little is known about it by most doctors. The lifestyle changes can really help. It took a lot of trying different types and sizes but the compression socks and increasing salt and water intake really helped.

Aston_Danielle2014 profile image
Aston_Danielle2014 in reply to Kate37

Yeah the doctor told us nothing about it just told about a site made us feel alone with it to be honest. It's very life changing for my partner

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