My daughter was recently diagnosed with reflex anoxic seizures. Since then she has been having 1-2 a week. The funny thing is so far they have only been around me and her dad. I am absolutely lost it's the most frightening thing I've ever seen. Where now on our 7th seizure and each time I worry this will be the time she doesn't come round.
Triggers seem to be unexpected pain and when she gets really upset but it doesn't happen everytime so I'm at a loss. I worry about going into the kitchen incase this is the time she has one and I don't get back in time.
Does anyone have any tips for coping or catching these before they happen and stopping them.
I also work and I'm really worried about her at nursery.
Thanks for any feedback really appreciate it.