I've suffered for over 8 years now. Originally prescribed midodrine, but it gave me terrible headaches, so eventually changed to fludrocortisone (Florinef). Got to say that the 'fludro' works great and I get very few side effects. Seems to work well keeping me upright too! I do get quite a few 'pre-syncopial' moments though! Last time I passed out was around 5 months ago, so I think the fludro is suiting me.
Anyone else using fludrocortisone or have a bad reaction to midodrine?