Does anyone know much about bosentan?... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Does anyone know much about bosentan? Have read about it on internet but my consultant says it is still on trial.

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Anyone actually been prescribed it?

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nannysue1950
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It is supposed to help prevent/heal ulcers. I have been taking it for about a month now after my consultant fought my health authority for it as it is very expensive and only prescribed in extreme cases. They agreed on a 10 month course with a review after 6 months, Prob early days yet as I had to increase the dose gradually with regular blood tests too, but still no improvement (maybe even worse up to now). Still, I guess I need to wait longer to give it time to work, if it does!!

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nannysue1950

Fingers crossed that it does work for you. Do you know why regular blood tests?Any ideas on side effects? Please keep us posted on how you do

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