My question is about the best way of... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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My question is about the best way of getting a diagnosis of sarcoidosis or of discounting it?

strongmouse profile image
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I was diagnosed recently with Raynauds disease which can get quie painful, but is manageable. I have GORD and a small hiatus hernia. However I do get abdominal pain and have asthma exacerbated by allergies. I have just had a CT scan and was told the pain is probably musco-skeletal, plus I have an atryphed Pancreas. I am thinking of asking my GP for a blood test for autoimmune disease. Any one's experience or ideas most welcome.

Thanks

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OldTed60

No idea about sarcoidosis as it’s extremely rare to have this and scleroderma - do you have lung issues as well as asthma? I guess GI, late onset Raynauds and the pancreas point equally if not more to scleroderma so you should get full ANA & ENA panel run and ask to get the Sarcoidosis antibody checked too although don’t know much about it tbh xx

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strongmouse in reply to OldTed60

Thanks Old Ted. Must have had a bit of a brain storm - I meant scleroderma! 😆

(Its my husband has symtoms similar to sarcoidosis).

I'm seeing my GP next week and it helps to know what I'm asking for. Will make a note to take with me.

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