📊Help SRUK Help You: Take Part in ou... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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📊Help SRUK Help You: Take Part in our Patient Registry Survey

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SRUK have launched a Patient Registry Survey, which asks for your feedback on how you might feel about sharing health information.

A patient registry would:

📋 Help us advocate for improved care

📋 Improve access to treatments

📋 Improve patient outcomes

But before we can do it, we need to know what you think.

Let us know your thoughts here:

surveymonkey.co.uk/r/8NH8Z9N

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Kilncadzow profile image
Kilncadzow

Happy to take part although I was treated for scleroderma from 1976-1986. Still have Raynaud’s and slightly deformed right hand as a result of scleroderma.

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