Duloxetine for fibromyalgia - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Duloxetine for fibromyalgia

momo17 profile image
7 Replies

After years of attributing my pain solely to my scleroderma, a new consultant has explained its more likely fibromyalgia I have now in addition to the scleroderma that is causing the pain. I’ve been prescribed duloxetine 30mg for 2 weeks then up to 30mg twice a day. I’m desperate to rid myself of the pain but struggling terribly with the duloxetine even at 30mg. The first night I was zonked, so for a bit of an insomniac I was pleased initially but then the following day I just felt abs rubbish. Heart palpitations, ears ringing, weakened n flu like. Like totally wiped most of day. I’ve tried to persevere but nearly 2 weeks in still the same. It’s like I can’t shake the feeling of them n struggling to function.

Anyone else feel the same starting out with them but it settled down? I suffer a bit of anxiety too so bad really hoped this was the answer for me. Don’t want to give up but it’s like I’ve even less of a life than before at the moment as still dealing with the pain n now this!

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7 Replies
MissusTee profile image
MissusTee

I was duloxetine and the first month or so was very difficult. Following this it had an amazing effect on pain and on my depression. Eventually I had to come off it due to headaches. I was very disappointed as it was se effective.

momo17 profile image
momo17 in reply toMissusTee

Thanks so much for your reply. That is such a shame. I had terrible headaches the first few days but they seem to have settled altho my head still feels a bit weird n spaced out. Have you tried anything else? I started on setraline before - a very low dose but changed to duloxetine as was recommended for fibromyalgia.

MissusTee profile image
MissusTee in reply tomomo17

I’m on other antidepressants but they aren’t effective on physical pain, duloxetin if you can tolerate it is extremely good!

momo17 profile image
momo17 in reply toMissusTee

Thank you. You’ve given me the encouragement to persevere. That’s a shame to hear your replacement prescription not so effective. Best wishes

Sanmateogirl107 profile image
Sanmateogirl107 in reply toMissusTee

WILD LETTUCE EXTRACT MT ROSE HERBS, EBAY HAS IT I USE IT FOR PASIN WORKS GREAT. LOVE JULIE

Midgebite21 profile image
Midgebite21

Hi, so sorry your struggling.I was diagnosed with fibromyalgia secondary to my 19 year scleroderma diagnosis about 7 years ago, I take amitriptyline for pain and difficulty sleeping. I hope your symptoms settle on your duloxetine but if not perhaps amitriptyline would be another drug to try. Don’t loose hope xx

momo17 profile image
momo17 in reply toMidgebite21

Thank you so much for that. That was one that was mentioned as well. How did you fair with side effects n has it had a real impact on your pain?

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