Sleepy: Hi am new on here just been... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Sandie12 profile image
12 Replies

Hi am new on here just been diagnosed with Raynaud's,s and Scleroderma started taking butcher's broom , fish oil, odourless garlic , and Ginkgo Biloba that seems to ease the tingling but I seem to get very tired is that normal?

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Sandie12
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12 Replies
Mylreaclairelee profile image
Mylreaclairelee

Oh the chronic fatigue is my biggest problem. Really struggle to walk up the slightest rise let alone stairs. By the way what is butcher's broom?

Sandie12 profile image
Sandie12 in reply to Mylreaclairelee

Butcher's broom is a herdal tablet

Littleleni profile image
Littleleni

Do I have a naturopath? Ur regimen is good you

Need to address the fatigue. She would know what to give

You. Ask her about low dose naltrexone or licorice root.

Sandie12 profile image
Sandie12 in reply to Littleleni

Ok thanks so much

jacquelinajane profile image
jacquelinajane in reply to Littleleni

Licorice vasoconstricts!

Littleleni profile image
Littleleni in reply to jacquelinajane

Yeh so does prednisone only way worse and it has three times as many side affects and depletes your adrenals. Licorice in small doses supports that. You need to be guided by a qualified natural path. People are so quick to get on ten different drugs thinking each one is a quick fix. Be careful, they can kill you more than the disease.

Fatigue can be a part of it. Nutritional supplements are helpful, especially B complex, B 12, calcium and vitamin C. Niacin, 500 mgs three times daily helps Raynaud's syndrome.

Sandie12 profile image
Sandie12 in reply to

Thanks so much I feel all I do is take lots of vitamin n lots of herbal tablets

in reply to Sandie12

Yes, me too! People need nutritional supplements all the time.

Sandie12 profile image
Sandie12 in reply to

Hi where do u get Niacin from?

Sandie12 profile image
Sandie12

Hi lol I get sweats all the time no it's not from Raynaud's is it from Scleroderma? I've also got a 3 bruises on my knee cap they don't go away or fade does anyone else have these symptoms?

JessicaEccles6 profile image
JessicaEccles6 in reply to Sandie12

I have always had a lot of sweats with scleroderma- and still do. It wasn't until I came on these sites that I found out it's a common symptom and lots of other people suffer with it as well. It's got worse since I have been on prednisolone.

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