Any one on mycophenolate experienced low hemaglobin levels. Mine seems to have gone to 97 from 106 in a 4 week period -.one week it was 114. I have stopped the ferrous sulphate. Maybe i should start it again - just my stools were green (sorry for the detail).
Am now on the maximum dose of mycophenolate 2000g - seem to be ok - just a bit tired - on my 5th week, noticed small changed in skin. Am assuming it will take a good few months for it to kick in!
Also taking such a strong drug doesn't mean we shouldn't have holidays and breaks 😎 I was hoping to go Dubai or Morocco or Istanbul
PS - I have systemic sclerosis- diffuse