Anybody else?

[Tay171]

Hands look like this? Why

[Pidgie]

Do they look like constantly, or is it after a bout of Reynaud's? My hands have been icy cold, painful, and white for the last three days. However, they occasionally warm up suddenly, and when they do, they look exactly like that.

[Tay171 in reply to Pidgie]

I originally had what looked like raynaurds but now they just go red theres no invetween . But it's usually once Iv been outside and come into the heat, or if I'm stressed etc

[amd21]

Are you on meds? My nifedipine sometimes makes my hands and face flush red.

[Tay171 in reply to amd21]

No meds

[zenabb]

My hands are like that because of poor blood circulation.

[Tay171 in reply to zenabb]

Do you have any autoimmune disease ?

[zenabb in reply to Tay171]

Yes. I have raynauds and scleroderma/

[Tay171 in reply to zenabb]

Awe i haven't been diagnosed yet but I guess I'm right I don't know how to take this

[zenabb in reply to Tay171]

Don't panic. Wait till you see your rheumatologist, get investigated and wait for results to see what you have to do. I have much experience. I am 87.

[Tay171 in reply to zenabb]

I'm only 20 when were u diagnosed ?

[zenabb in reply to Tay171]

I think that I've had it all my life but no-one knew anything about it. I was diagnosed 40 years ago.

[Goldyukr]

My hands do that. I have erythromelalgia and Raynaud's.

[Tay171 in reply to Goldyukr]

I haven't been diagnosed yet I'm scared lol

[Goldyukr in reply to Tay171]

I couldn't figure out what was going on with me. It scared me too. But now that I know what it is, it makes it easier to deal with. Just keep pushing for a diagnosis.

[Goldyukr in reply to Tay171]

If it is erythromelalgia, this is an excellent brochure that explains it: erythromelalgia.org/Portals...

[Tay171 in reply to Goldyukr]

My doctor has told me that I have health anxiety and he doesn't think it's anything serious . I'm convinced I'm dying Iv booked to see a private rheumatologist though

[Goldyukr in reply to Tay171]

Don't go there. You must try to think positive until you know for sure what's happening. Even if it is autoimmune, so much can be done to help control the symptoms and give you a quality life still. We are all dying at this point, but why dwell on it. You just need to find out what is happening so that you can have peace of mind. Glad you are getting a second opinion.

[Tay171 in reply to Goldyukr]

Thank you for putting it into perspective really helps!

[marilynmcl in reply to Tay171]

You need to get a proper diagnosis ...I was stressed out about my symptoms too until I got the diagnosis after being in hospital for the second time with pneumonia in as many months. The doctor I saw in hospital said that she was going to send a rheumatologist to see me....when that happened I was told I have Systemic Sclerosis and then started to receive treatment for this ....it so helps when you actually know what is wrong with you. Best of luck to you and feel better soon pet.

[sbbtd]

Are you talking about the puffiness or splotchiness?

[Tay171 in reply to sbbtd]

Both

[Tay171]

Can someone message me I need someone to talk to about this

[Goldyukr]

My erythremalalgia happens when I get hot, stressed, drink alcohol, standing for a long time or just as the day rolls on... It makes my feet, face, hands and sometimes knees turn bright red, swell and it burns like a really bad sunburn. The only thing that helps is cold packs. I've only just been diagnosed with this and still waiting to see a dermatologist about it. The hard part is usually jus the waiting and wondering. Hang in there. You will get answers. It took me almost four years before the autoimmune starting really becoming evident. It took a lot of searching until I found a good doctor. You will too.

[Tay171 in reply to Goldyukr]

Is it serious? Can u still exercise ? I play college soccer and want to go pro. This is worrying me.

[Goldyukr in reply to Tay171]

I would wait to worry until you know for sure what is going on. And even then, we are all different and it affects each person in a unique way. "Let each day have it's own worries."

[Tay171 in reply to Goldyukr]

And thank you for your reply! I hope you are keeping well.

[amd21]

like others have said you need to find out whats going on i have raynauds & CREST but my symptoms are well controlled by meds and i still can live pretty much as idid before i got sick

[Tay171 in reply to amd21]

My GPNsays it doesn't look like anything serious . Because my skin is leathery . Doesnt look normal To me

[marilynmcl]

Mine are similar...just more swollen around the joints. They get very pinky/red and blotchy but not all the time....when they are cold they are purple or sometimes white...mostly purple though.

[Tay171 in reply to marilynmcl]

Have u been diagnosed yet?

[marilynmcl]

Yes.....I have systemic sclerosis....have just posted further up this page....but, you seem to be a lot stressed out and would say....stop! I lost a lot of weight through stressing about what was wrong with me.....my joints were so painful and swollen...I had trouble breathing...turns out I have lung damage with COPD, bronchiecstasis, and pulmonary fibrosis. I thought I was dying too....but not anymore! Once I knew what was wrong then I moved forward. There are good days and bad days. Just pace yourself! Good luck moving forward. Once you are properly diagnosed and receive treatment you will feel so much better...and a lot less stressed.

[Tay171 in reply to marilynmcl]

Yea I need to stop worrying will make things worse

[marilynmcl in reply to Tay171]

Good for you! I really hope all goes well for you pet and things are always more worrying when you don't know what is going on...once you get a proper diagnosis you will be feeling a lot easier in your mind. Take care and feel better soon. x