Hi folks, I am suffering with an injury to my lower back. it's the sacroiliac joint. does this have any relation to my scleroderma?

[titanicus]

Hi Folks, I am suffering with an Injury to my lower back.

It's the Sacroiliac Joint. Does this have any relation to my Scleroderma?

[mrsqwerty11]

Hi, I'm no doctor but I would say no. I've been having lower back and hip pain for years now on a daily basis. I have had physio but didn't change anything. I struggle to even put socks etc on when getting dressed. Seen my rheumy in November last year and he didn't think it was connected to sclerederma. My doc says it is wear and tear on my vertebrae, nerve ends. I now take 30mg per night of amitriptyline, after being on them for several months the pain as eased a lot but I still have lots of stiffness.

[bellejewel]

hi, i too have crest sd. i think this decease breaks the body down. i suffer with my whole spine hurting, legs are bad. i gets bruise spots everywhere, ihave the tumous calcification sd. its white lumps that appear all over. i just had hand operated on. this sd i have is the worse, i take pain pills just to do very little, my quality of life has gone down. i get so depress, thank god i have a good primary dr. i am seeing a pain clinic endif month. I'm praying for a good dr. that knows something about sd. their nurse some of them talk too you like your just another drug addict. their don't even know about sd. do any of you have that. i hate taking pain meds, but i suffer so much even when I'm taking them. i also have reflux with sd. this decease attacks all parts of body. i go to johns hopkins sd clinic in baltimore md. they tell me there is nothing they can do. i have been on trail meds, they did not help. i pray to the lord just to take me home early, this is a stuffing decease. i think some have it worst then others. i would love to talk with someone else that has sd like i do. its call sd, crest, tumoud calcification. lumps of calilium in tendons muscles joints. when they operate its white mess with pieces of bone. my dr, says it has eaten some of my fingers bad. he may have to take part of fingers. sorry to sound gross, but it is very painful. if there is anyone out there that is dealing with same thing. i would love to talk. I'm praying for us all god bless

[titanicus in reply to bellejewel]

Sorry to upset you Bellejewel. You take care, I care with everyone on the forum.

God bless. xx

[Thelma]

I have just read your inquiry and the trailing comments. I don't have any personal input right now. I must say that this forum is truly a tool for learning, collaborating and compassion. I endure a lot with my Scleroderma, Raynauds, Lung issues, fibrosis, congestive heart failure, etc. . . . however, overall, I do quite well with a positive attitude, love, support. a good team of doctors, lots of prayer and being regimented with my daily schedules and try to keep exercising. Please know that I have us all in my concern and ongoing prayers. My compassion is extended to you, reminding you that I do understand and we're all in these issues together, as a Family. GOD bless each of you and may GOD answer the desires of our hearts.

[titanicus]

Thank you Thelma. Take care.

[redtommy07]

there is no god! if there was why would he/she make you suffer like that ? unfortunately there is no cure for scleroderma either so we all just have to suffer it!