I would like to meet others .
Hi all. is there a crest syndrome gro... - Scleroderma & Ray...
Hi all. is there a crest syndrome group, that meets in west yorkshire (england)
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Hi Ceylon,I have CREST syndrome but I live in East Yorkshire and would love to learn of any group in my area.I hope you do fnd a group in West Yorkshire and are able to meet up.good luck and best wishes for 2014 x
Scleroderma Society have a web site which gives you that sort of information. If I remember rightly there is a co-ordinator for Yorkshire, not sure if it is both or just East or West.
Hello, a group used to meet at Chapel Allerton Hospital on the 2nd Thursday of each month. Don't know if it still does and I can't find the contact details. However if you contact the RSA or the Scleroderma helpline at Chapel All they should be able to put you in touch with someone. I think one of the ladies who helped to organise it was called Lynne Lister. Best of luck.
Thank you yorky, you have been most welcome . best wishes for 2014 x
Hello again, forgot to say that Chapel All hospital is in Leeds. The specialist nurse telephone number is 0113 3923035, it is usually an ansa phone. Best wishes to you too for 2014.
I looked again yesterday at The Scleroderma Society website. I am almost sure there was a heading for support groups last week!!!! A friend in West Sussex who co-ordinates a group there told me to look on The Scleroderma Society site, so I don't know what is going on. Perhaps send them a question I think there is a help heading somewhere.
Hiya have you had a look at the Raynauds and Scleroderma's group local contacts ? North Yorks is Tony Overend 01423 862551 ... not sure about West tho !