Ultrasound

[Macberts]

Good morning

I have just received a letter from rheumatologist to advise that my ultrasound scan on my salivary glands has shown some changes that may be suggestive of Sjorgens syndrome. Now waiting on lip biopsy appointment. What should I expect from the biopsy and what are the chances that I do have sjorgens?

[Tempname]

Hi Macberts, welcome to the group. What are your symptoms and do you have positive SSA/B antibodies, ANA etc? There's no one test for SS, so the Drs look at a combination of symptoms, blood results and scans/biopsy results. In my case, my symptoms and blood results were all positive so the Dr didn't need to do a scan/biopsy to confirm. Hope it goes well for you and you get some answers soon.

[Macberts in reply to Tempname]

Thank you ! I have extremely dry mouth, sometimes choke when eating, inside lips feels like it’s peeling and stringy again especially in the morning, dry gritty eyes especially in the morning and nasal passage extremely dry and gets sores in nose . Have pain in wrists fingers and feet. Extreme fatigue! IBS. Extremely dry itchy skin and also come out in itchy red patches seen dermatologist and he thought ulticarial Vasculitis. Brain Fog is real !! I sometimes can’t find the words ! Told in 2016 I had fibromyalgia and then peri menopausal in 2017

That’s it I think 😬

[SusieW2 in reply to Macberts]

Wow, that's quite a litany. I hope you are finding things to address those symptoms and feel better. There's no reason not to use saline eye drops and sinus sprays. And have your thyroid levels checked. Fatigue is often a symptom of low thyroid. Don't worry so much about diagnoses. Find ways to feel better. Good luck.

[Macberts in reply to SusieW2]

Thank you yes thyroid has always been borderline apparently 🤷‍♂️ finding ways to cope all the time still working full time just need to get on with it and rest when I can x

[SusieW2 in reply to Macberts]

And in USA its had to get Rx for thyroid if you're not low enough. Finally found a Naturopath who would prescribe. It made a world of difference.

[Macberts in reply to Tempname]

Forgot to add I have a raised lymph node in neck been scanned 2x but no explanation as to why it’s raised but thankfully nothing to worry about. I have had recently a swollen pea sized lump on jaw line and my eyelids keep swelling!

[Tempname in reply to Macberts]

Those symptoms sound consistent with Sjogrens, so it's good to get those further tests done. Some hopeful news for you (if it is Sjogrens), after being on Plaquenil for 6 months I am slowly having more energy, less dryness & less pain. So fingers crossed you get the answer you want xxx

[Macberts in reply to Tempname]

Thank you 🙏

[weathervane]

If you go to the top of the page you will see a search option, but in lip biopsy and you can read related posts , good luck!