Hi, I have today been told I have Sjögren's Syndrome,

[JaneBG]

The uk thyroid support group recommended you. I have had an under active thyroid since January and today been told I also have Sjögren's Syndrome and wondered if this mean things like coughs and colds or infections are going to be harder to get rid off? Any info would be great, thanks x

[june_jdr]

Hello JaneBG I really do feel for you...I can imagine you must feel very scared and worried about the future....don't be we are here to help and give support. As you may know Sjogren's Syndrome is an autoimmune disorder which may course skin, nose, and vaginal dryness, and may affect other organs of the body, including the kidneys, blood vessels, lungs, liver, pancreas, peripheral nervous system and brain. Please ask your consultant whether you have primary or secondary Sjogren's and ask them what you should expect. You will also receive information and support from BSSA (British Sjogren's Syndrome Association), PO Box 10867, Birmingham, B16 0ZW. Their telephone number is 0121 455 6532. Good luck and take care...let us know how you get on and ask us any questions you may have. gentle hugs to you.

[Beverly]

With the colds and flue it is critical you keep your vitamin levels up with a compromised immune system not only will you get them easily but they can start your immune system attacking your organs or nervous system, so you need vitamin c horseradish and garlic in the winter and you need a good grape seed tablet at least 2,000 mg a day a good probiotic powder, hope this is helpful

[JaneBG]

Thanks, Only though of this question after seeing Dr yesterday. Thanks also for the address for british support, that is really helpful x

[shaz59]

I would like to say hello to everyone.

I have been diagnosed with Sjogrens for about a year now. It took over 3 years to get a proper diagnosis. I am under a Rheumatologist now and i am on Plaqanil for the joint pain and fatigue. I find the fatigue the hardest symptom to deal with. I work full time and had a terrible year with viruses, i was off work a few times with bad flu's that took a long time to get rid of. I find this stressful as i worry about the time off work but what can you do. I feel that is shouldn't complain as my daughter has Rhuematoid arthritis and is under Dr Shenstone at Concord Hospital. She is only 21.

Thanks for the support it is great.

[faeryfey]

hey! Me too!! Prof Hughes at London bridge diagnosed me with secondary sjogrens ( to lupus). I also have thyroid disease. xx

Diet matters big time!!!!

My body likes watery foods, nothing that thickens the blood like sugar, my body hates sugar, it hates meat and gluten. I have to drink gallons of water everyday, otherwise i silmply drop alseep like a narcoleptic!!!

Do you also have trouble eating dry foods? i do.

Dunno if this forum has live chat?... see if you can flag me up! x