My fibro and rheumatism have been mor... - The Australian Sj...

The Australian Sjögren's Syndrome Association

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My fibro and rheumatism have been more severe since my second pfizer shot. It's been a month with no let up. Is this my new normal?

grahamb profile image
7 Replies

I have had Sjogrens for 13 years and have never taken any pain meds or anti-inflammatory or immuno-suppressant. The rheumy and fibro have restricted me but have been managable. My first pfizer jab didn't seem a problem. I had my 2nd 3 weeks afterwards and since then the reactivity/pain have been so severe I can injure myself just turning over in bed and can't function during the day. I have always been highly sensitive to meds. My dryness etc don't seem worse and I've had no rashes or nausea. Can anyone shed some light on whether this reaction is temporary or whether it has reset my immune system to a permanently higher degree of overreacting?

7 Replies
weathervane profile image
weathervane

Hi there, sorry to hear you are going through a bad time . I had the pfizer jab , i had no reaction to the first though after the second i had a sore arm and felt tired for s week . I was told by my surgery nurse that a reaction is good! You may be having a flare , you could contact your rheumatologist for advice or rheumy nurse if you have one .

Hope it settles soon.

grahamb profile image
grahamb in reply to weathervane

Thanks, yes I saw my GP yesterday (had been in lockdown for the four weeks) and they are testing my blood to eliminate other causes and will se a rheumy soon.

grahamb profile image
grahamb in reply to grahamb

Well, my blood work was all normal. No ease of symptoms. I've been refered to a rheumy.

grahamb profile image
grahamb in reply to grahamb

The Rheumatologist declined to see me because my inlammatory markers were so low. These can change from day to day, but his point was that the symptoms I described were all fibro related and I was told that anti-inflams or immuno suppressors won't help with that. I'm making some diet and lifestyle changes in the hope that this helps.

SusieW2 profile image
SusieW2

Hi. I had the Moderna jab. I hadn't noticed any longer term effects. But now that you mention it, I do seem to injure more easily and my pain is a little more noticeable. I hope that is at least will protect me from the virus.

grahamb profile image
grahamb in reply to SusieW2

Was that your first or second jab? I'm wondering if it's because I'm not on any pain meds for sjogrens that I'm noticing it this much.

SusieW2 profile image
SusieW2 in reply to grahamb

It's been nine months since my second injection. So my reaction is mild and seems to be coming on slowly. I don't really know the cause. I also don't take pain medications except occasionally but am taking a prescribed anti-inflammatory as well as turmeric capsules and ingest other anti-inflammatory foods. Inflammation is probably our biggest enemy with SS. So I do what I can safely to lower it. It causes a lot of damage. I'm pretty sure that pain is lessened when inflammation is controlled as well. Keep plugging along and good luck!

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