Sjogrens : Hi Everyone I have recently... - The Australian Sj...

The Australian Sjögren's Syndrome Association

2,431 members779 posts

Sjogrens

alfiro72 profile image
1 Reply

Hi Everyone

I have recently been diagnosed with Sjogrens syndrome, Primary Billiary cirrhosis and also have an under active thyroid gland. I have had continuous dry eye for about 2 years now and use drops constantly. Im not sure what to do - do i try to research each problem individually . Any tips or advice are welcome.

Thanks x

Written by
alfiro72 profile image
alfiro72
To view profiles and participate in discussions please or .
Read more about...
1 Reply
flora profile image
flora

Hi alfiro72

I to have sjogrens ,primary biliary cirrhosis and under active thyroid gland . fatigue is the worst thing, I work full time and only have one day off a week

After work I have to go to bed. It's just work and sleep but my home is now in a right state I do what I can but I'm so tired if I push myself then I have to pay for it next day. I'm going to ask my consultant at the next visit if I can have modafinil even once or twice a week to see if that helps. Flora x

You may also like...

Sjogrens or not?

a 53 year old from the Uk i have positive antibodies Ro and La i have had joint heat and pain with...

Sjogren's or kidneys?

wondering do I have Sjogren's or is it my kidneys that is making my mouth and body so dry? I am now...

Sjogrens or allergies ❓❓❓

paresthesia is better ! Good days, bad days. My eyes are still problematic, using Refresh frequently

Sinus pressure from sjogrens?

Does anyone with SS or RA have horrible sinus problems? I never had allergy or many colds before SS.

Natural support for sjogrens

but sjogrens. I have been very lucky that I have been able to manage symptoms ( dry mouth, dry nose