Hi I wonder if anyone has suffered on... - The Australian Sj...

The Australian Sjögren's Syndrome Association

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Hi I wonder if anyone has suffered only neurological symptoms, ie numbness of limbs, polyneuropathies, etc? you can share your experience

4 Replies

Today I've lost touch and fine motor skills. regards

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Beverly profile image
Beverly

it sounds like you have the first stages of Sjogren's peripheral neuropathy which is 3rd stage sjogrens, do you have numbness of the fingers or around your mouth, are you experiencing bladder weakness and uncontrollable flatulence, do you have blurred vision or seeing double, are your eyes sensitive to light, if you have any off these you need to see a neurologists before your breathing muscles are paralysed and you need to get a referral now its urgent

Mvuu profile image
Mvuu in reply to Beverly

Hi, I suffer from peripheral neuropathy of my feet, with burning of my feet. Worse at night. I use a capsicum cream on them with some relief. I have never hear of stage 3 in sjogrens. What does this entail. I also suffer from blocked ears, think its sinuses drying up. Any thoughts how to improve this as cause quite a bit of irritation. Certain sounds especially bass sounds dry me mad.

Beverly profile image
Beverly

you need to go to your GP and get a referral to a neurologists, ASAP do you have numbness of face and head or blurred vision or seeing double and eyes sensitive to light? or are you having trouble breathing, does it feel like you have brick on your chest?

jennye1967 profile image
jennye1967

Hi

I have just been dianosed with sjogren's and as with you I have peripheral neuropathy with numbness and pain in both feet and just starting in both hands. My specialist is still doing tests on me but for the moment she has perscribed Lyrica it supposed to help with the nerve pain, so I will let you know how it goes